Providing Answers, Support and Hope in the Southeastern US
Show us how YOU are sharing the love by sharing your story.
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Lupus is an unpredictable illness, which affects everyone differently. In our newest program, Lupus Empowerment Series: From Surviving to Thriving, we will learn from experts how to shape our best selves, even amid a pandemic. Dr. Robert H. Phillips, founder, and director of the Center for Coping presents the first installment, Coping with the Pandemic, to address the impact of isolation, decreased motivation, and negative thinking. He offers relaxation techniques, ways to build a support network, and other lessons for coping with illness during trying times. Dr. Phillips is a licensed clinical psychologist who throughout his extensive career has published and spoken widely on coping with physical ailments and other psychological topics.
In this program, Aliciee discusses lupus and its various manifestations. She demonstrates how to take back control by building a care team of physicians, loved ones, and community resources, including GSK’s Us in Lupus initiative. Aliciee empowers us to participate in our own care and shares insights on communication, record keeping, and sun protection strategies.
The U.S. Food and Drug Administration (FDA) today approved Benlysta® to treat lupus nephritis (lupus-related kidney disease) in adults. The decision makes Benlysta the first lupus therapy authorized to treat this potentially life-threatening complication of the disease. Read more.
The way lupus affects the immune system, in addition to medications that lupus warriors often take to manage disease activity, increases the risk of infection in those with lupus. Read more on protecting yourself from infections. Read more.
Florida Lupus Warriors are now able to apply for immediate financial support in the amount of $100 through the Warrior's Heart Holiday Fund in memory of LFA Florida Board Member, Ivy Shapiro, and thanks to some incredibly giving individuals. Learn more on how to apply and read more about the fund!
Tomorrow, Thursday, 12/10, is the Walk Fundraising Deadline for 2020 prizes - the walk shirt & mask, medal, and additional prizes at $250+
We are following the developments regarding a COVID-19 vaccine very closely. As we learn more we will keep you up to date on what is important for people with lupus. Read the latest on the vaccine and lupus.
The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans, has reopened its Systemic Lupus Erythematosus (SLE) fund to help people living with lupus afford their treatments. Read more about the fund and how you can apply for the grant and - eligibility requirements.
This webinar is designed for parent(s)/guardians of children or teens diagnosed with lupus or those needing more information. The webinar will feature an in-depth look at lupus after the shock of the initial diagnosis with Kelly Rouster-Stevens, Md, PharmD pediatric rheumatologist from Children’s Healthcare of Atlanta and a panel discussion that includes Dr. Rouster-Stevens, Andrea Knight MD, MSCE at Children’s Hospital of Philadelphia, and parents of children with lupus. Topics include: Recognizing and preventing a flare Infection Prevention, What does this new normal look like, Importance of medications.
Give back, on Giving Tuesday. Help raise awareness and funds to support the critical lupus research, disease education, and services that so many rely on. We are so excited that an anonymous donor has stepped up and will match your gift up to $10,000, this Giving Tuesday. Now is your chance to make TWICE the impact! Donate today!
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Dr. Caricchio is passionate about lupus research and will discuss clinical trials at length, including what to expect in a clinical trial, the challenges facing rheumatologists and patients alike, and how to enroll in one. Register today!
Are you shopping on Amazon today for #BlackFriday sales? If so, don’t forget to shop through Amazon Smileand a percentage of your gift list goes to LFA Florida.
Vote for our lupus awareness video in the Positive Energy contest and spread the word! Videos with the most likes will be in the running to receive donations.
Our #WCW is Alix Beaupierre. Alix share's how living with an invisible illness like lupus has taught her to advocate for herself. She wants to remain vocal about living with a disease you cannot see to encourage more awareness, research, and compassion for those who suffer from it as well! Read more of her story.
If you’ve been diagnosed with lupus, treatment is probably your biggest concern. Treating lupus is a team effort — so you and your doctors will work together to find the treatment plan that’s right for you. Read more.
The first all-virtual annual meeting experience from the American College of Rheumatology (#ACR20) is a wrap! The momentum and commitment towards new lupus treatments is stronger than ever. LFA was in attendance presenting new LFA research and reporting on other noteworthy studies, including many they've supported. Read the #ACR20 conference recap.
Dr. Steven Neucks, a rheumatologist in Indianapolis who is board certified in pain management, will be discussing the multiple non-opioid options available for managing the pain associated with living with lupus. Register today!
The Senate Appropriations Committee released their spending bills for the fiscal year 2021 and they included critical funding for lupus research and education! Learn more.
#WellnessWednesday: Before your next appointment with your doctor, read what preparation measures some lupus warriors take to ensure a successful and productive visit in this month's Sharing the Journey blog.
Eight months in a pandemic has caused chronic stress among many of us -- and for people living with lupus, any stress can induce flares or other symptoms. Learn more about coping with the stress and emotional strain of the coronavirus pandemic.
November is Native American Heritage Month. Throughout the month of November, we will explore how living with a disease like lupus impacts Native Americans. By sharing the stories of those living with lupus in the Native American community, we can highlight the need for advancements in research and improved healthcare, access, and treatments for people in these communities. Learn more.
Whether it's because of symptoms or other factors, people with lupus can sometimes struggle to get a good night's sleep. Discover what bedtime tips and nightly rituals lupus warriors are sharing for a good night’s sleep.
The Health Insurance Marketplace can help you get the coverage that meets your needs and fits your budget. Whether you need health coverage or have it already, the healthcare law offers new rights and protections that make coverage fairer and easier to understand.
No one understands lupus better than those living with it. Share your experience now and help brighten the future of lupus research. Learn more.
U.S. Food and Drug Administration has recently approved the first treatment for COVID_19 - remdesivir (Veklury). The FDA has found remdesivir to be safe and effective as a COVID treatment but may not be as effective if taken with hydroxycholoroquine or chloroquine.
Watch our new COVID-19 update video with Chair of our Medical-Scientific Advisory Council, Dr. Costenbader, to learn differences between a flare and coronavirus, recommendations on vaccines, and flu shots for people with lupus, and more!
Lupus is met with unpredictability, which often leads to stress and anxiety. Focus on what you can control in the meantime. A flare plan will allow you to organize everything ahead of time in case of an emergency. Learn the effective points of a flare plan and receive additional resources to get started, including a guided worksheet to fill out your own flare plan. Additionally, a rheumatologist will be answering your questions about flares, like when to go to the hospital vs. when to call your doctor. Register today!
Our #WCW is lupus warrior, Ashley Pippin-Jones. Ashley has been living with lupus for 8 years. Ashley shares how scary it was to receive a #lupus diagnosis, but through the years has been able to learn to cope with the disease while having a supportive family as well as friends going through a similar situation. Read more of her journey.
Living with #lupus can be physically, emotionally, and mentally challenging but having reliable support networks can help you better cope and live with lupus. Learn about the importance of support and support groups for people living with lupus in the latest podcast episode of #TheExpertSeries.
Did you miss the opening ceremony or did you want to view it again? Well, back by popular demand - join us on October 20 at 12:30 pm or 5:30 pm for a re-broadcast. Sign up now to watch!
Don't forget to join us tomorrow for Florida and National's Live Walk Day Broadcasts on 10.10.20 starting at 10:30 am! Check out our pre-event slideshow today, chat with others, start winning prizes, and get your raffle tickets now! Be sure to check your email for our walk day guide too! *Separate sign-up is required to participate in Florida and National ceremonies. Get signed up for both today:
Certified Personal Trainer and Strength and Conditioning Specialist, Daniela Spear, will cover the ins and outs of a healthy exercise routine that will benefit you while living with an autoimmune disease.
Did you know we archive all of our teleconferences and webinars? Don't miss this opportunity to learn from some of the world's leading #lupus experts from the comfort of your home.
The exploration between diet and lupus continues. A new study shows that long-term healthy diet did not impact lupus risk, though the consumption of legumes and beans showed potential benefits. Read the study:
This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, Clinical Director of the Division of Rheumatology, Director of the Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, a psychologist and parents of children with lupus. Topics include: Overview of lupus Treatments and side effects Working with your child to take medications consistently Understanding doctor’s visits How to help you and your child cope with the diagnosis
Ana has been living with lupus for 8 years and is sharing what living a healthy lifestyle means for her. She answers such questions as - ???? ?? ???? ?????? ??? ?????? ???? ????? ???? ??? ???? ?? ???? ?? ??? ?????? ?? ???? ????? ??????? ???????? and ??? ?? ?? ????????? ??? ?????? ???? ????? ?? ??? ???? ??? ?? ?? ?????? ?? ???? ???? Ana ha estado viviendo con lupus desde hace 8 años y nos comparte lo que significa para ella llevar un estilo de vida saludable. Ella responde a preguntas como: ¿???? ?? ?? ??????? ??? ?? ?????? ??? ? ??? ???????? ??? ????? ??? ?????? ????? ???????????? ???? ?????????? ??????? ? ????? ????? ?????????? ??????????? y ¿??? ??é ?? ?????????? ??? ??? ???????? ??? ????? ????? ???? ? ???? ?? ?á? ??????? ????????
Improved vision screening tests and updated dosing guidelines are key to avoiding such complications. Read more on what steps you can take to protect your eyesight if you are taking #Hydroxycholoroquine.
A living collection of up-to-date resources and information on lupus. El Centro Nacional de Recursos sobre el Lupus presenta información actualizada sobre todo lo que quiere saber acerca del lupus.
Join us for our September teleconference on Depression and Lupus Fog: What's the difference? This teleconference will focus on identifying depressive symptoms and disorders. Dr. Sharon Boyd-Jackson, will also distinguish between depression and “lupus fog” and discuss coping strategies for both issues. Register today!
Applications for the $500 Ivy Shapiro College Stipend Award are open until October 1, 2020. You must be currently attending a technical program, community college, university, or certification program for the Fall 2020 semester to be eligible. Learn more.
Share team incentives graphic with your team encouraging them to help you hit your team goal
While overall quality of life scores were relatively good, participants reported being the most negatively affected by light sensitivity and the cosmetic side effects of cutaneous lupus (e.g., scarring, skin discoloration). Read more of the study! {link in bio}
Connect a Facebook Fundraiser to your walk page.
A living collection of up-to-date resources and information on lupus.
There are just 30 days left until the nation unites together to show our collective power over lupus. For the next 30 days, we will be sharing with you a weekly calendar with reminders, programs, helpful resources, and ways for you to stay connected with your lupus community.
Septiembre es el Mes de la Herencia Hispana y nos gustaría presentarles nuestro nuevo Grupo de Apoyo virtual en Español.
The best way to determine whether or not you are having a flare is to learn about lupus symptoms and triggers, track them carefully, and share them with your doctor. Download a worksheet that is designed for you to fill in with help from the doctor who's managing your lupus care and treatment. Keep the completed worksheet to use as a guide when you have a lupus flare.
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Compared to the general population, people with #lupus are more than 2 times less likely to follow their therapy as prescribed due to costs. Read more of this study here.
If you need help accessing your medications, visit our prescription assistance resource page here.
Our #WCW is #lupuswarrior, Shani Brewer. Shani shares her journey on how she was diagnosed at age 24 with #lupus. She finds comfort knowing that by sharing her journey it is encouraging to her and others who are going through a similar #lupusjourney.
We will be announcing our largest incentive program ever and some fun upcoming contests. We will also be giving some more details about event day and answering any questions you and your team may have!
Take Charge of your health and sign up for our weekly educational email series. Each week for 12 weeks, you'll get an email from our Health Educators with tips and resources that can empower you to take charge of your health. Register today!
#TipTuesday: If you are still having trouble accessing your Hydroxychloroquine prescription here are some resources that may help you access your medications. If you need additional help, email support@lupusfl.org.
When you fundraise for #WalktoEndLupusNow, not only are you helping to raise #lupus awareness while supporting lupus research, education, and support programs, you can also earn some cool swag! Check out our 6️⃣ fundraising levels and the 30+ different items you can choose from.
Read some tips that families need to take additional precautions to ensure a safe transition back to school.
Your chances for a successful pregnancy are excellent if you plan properly—when lupus symptoms are in remission—and your rheumatologist and specialists in maternal-fetal medicine monitor you closely. Read more.
The effects of lupus are always on the back of your mind, making you feel like you are losing control. From unpredictable symptoms, fatigue, and pain to worry, anxiety and depression, Dr. Cristina Drenkard will provide self-management skills to help you successfully manage daily disease-related challenges and improve your quality of life.
Our #WCW is Lynn Hernandez who was diagnosed with lupus in 2015 and has gone through multiple surgeries since being diagnosed. As a lupus warrior and mother, she tries to stay positive by surrounding herself with the right people that lift her up while going through the journey. Read her story here.
In addition to the support and information the LFA provides through its programs and services, we provide free downloadable materials and a list of helpful resources including financial resources. Find them here.
BREAKING NEWS❗️ The House of Representatives just passed legislation that includes more than $20 million in lupus-specific funding and $47 billion for the National Institutes of Health (NIH) in fiscal year 2021! Read more.
It's #InternationalDayofFriendship! It can be hard to understand the needs of someone with a chronic and often disabling condition like lupus, especially when the signs aren’t always obvious. It's natural to worry about your friendships. Read about two best friends who make it work, and how the rewards can go both ways.
In people with lupus, caffeine consumption may help reduce disease activity. Read more.
Building a “lupus kit” now can save a lot of worry and time when a disaster strikes.
In honor of our nationwide Virtual Walk to End Lupus Now on 10.10.20, we would like to announce our Registration Contest!! The first 20 people to ???????? ??? ?????? $25 or more to their walk fundraiser from July 24- July 31, will get a FREE mask!
Meet Sarah Beard a lupus warrior! Sarah has her own blog called, ?????????? ???????? ?????? ???? ??????? ???????. She shares how chronic illness is considered a full-time job. Read it here.
Our #WCW is lupus warrior, Gabrielle Davis. Gabrielle has been living with lupus since 2009 and despite many tough obstacles throughout the years, including her current search for a kidney donor, she has become an advocate and a voice for lupus patients. Read more about Gabrielle's story and her tips for others. Please also share this story to help us raise awareness about the importance of kidney donation for people like Gabrielle and others living with lupus who are waiting for a life-saving kidney transplant.
Aurinia’s voclosporin moves one step closer to the final decision on a potential new treatment for lupus kidney disease.
With many states lifting restrictions and businesses and schools preparing to open once again, people with lupus have many questions about how they can remain safe while living with lupus. Dr. Karen Costenbader, Chair of the Lupus Foundation of America Medical-Scientific Advisory Council, and Director of the Lupus Program at Brigham & Women's Hospital in Boston, answers frequently asked questions that have been submitted to the Foundation's national network of health educators.
We are excited to share the six recipients of the 2020 Gina M. Finzi Memorial Student Fellowship Program. This grant and mentorship program plays a critical role in cultivating an interest in lupus research among young scientists and establishing the next generation of lupus researchers. Learn more.
The COVID-19 pandemic is widening disparities among people with rheumatic diseases, like lupus. Researchers call for community partnerships to close the gap and offer six steps. Read more.
In this COVID-19 update, Dr. Tamar Rubinstein, a pediatric rheumatologist with Children's Hospital at Montefiore in The Bronx, New York, addresses questions parents of children with lupus may have about states reopening, what is safe/unsafe, and precautions they and their children need to take.
This year, Florida will join the nation to take Walk to End Lupus Now virtual, culminating in a historic national celebration on 10.10.20. Join us as we come together from coast to coast for a virtual walk event unlike any other. This new experience will keep us together safely while we are apart due to the coronavirus.
Register today for July's The Lupus Diet: Is there one? Webinar. Learn the truth about a lupus diet and What diet really is most effective for a lupus patient.
Register today!
Interesting new data on alcohol and lupus. Moderate consumption, from ½ to 1 alcoholic beverage a day, may be linked to reduced lupus risk by decreasing levels of stem cell factors in the blood. Read more.
Looking for support? Join our July virtual lupus support groups! All of our in-person support groups are being held virtually until further notice. If you would like to attend one, please fill out an RSVP form!
These are the top three concerns during the pandemic that respondents (n=3,000) selected. Read more on the findings of the survey and the impact of the coronavirus pandemic on the lupus community.
With the uncertainty and anxiety that comes from the coronavirus pandemic, it's important that you don't neglect your mental health. On this podcast, Dr. Neda Gould shares coping strategies for stress and anxiety and leads a guided meditation.
Read more about the findings from our survey to learn more about the impact of the coronavirus on people living with lupus.
The Lupus Foundation of America would like to wish our community of lupus warriors, caretakers, advocates, and health care professionals a happy Juneteenth! Read the Lupus Foundation of America's message here.
On the latest episode of #TheExpertSeries, Dr. Salmon will teach you more about women's health, reproductive issues with lupus, tips for a safe pregnancy and more!
For our #WarriorCrushWednesday we are featuring our Central Florida support group facilitator and 2019 Ambassador, Kenny London who is a licensed therapist and lupus warrior. Kenny’s blog post is called “Making Peace with Lupus: Perspectives from the Counselors Coach”. Read it here!
Yesterday, the U.S. Food and Drug Administration announced the end of their Emergency Use Authorization for hydroxychloroquine and chloroquine, determining they were "unlikely to be effective in treating COVID-19 for the authorized uses."
Men represent 10 percent of people with lupus. It’s important for men living with lupus to know that they’re not alone and to be able to find all the information and support they need to help them live with lupus. Dr. Sam Lim, a top researcher at Emory University and head of the Georgia Lupus Registry, will talk about the unique challenges of being a man with this disease and explore opportunities to take charge of your life. Register today!
Everyone should have an emergency preparedness plan and, in addition, for people living with lupus make sure you have a “lupus kit" ready to go.
TipTuesday: If you missed last week’s Hydroxychloroquine: Facts vs Fiction webinar, we have good news! The recording is now up on our YouTube channel. Join Dr. Batt as he provides an overview and answers the most popular questions we receive as they relate to HCQ and lupus. Tap the link in our bio to view it!
New data on lupus and COVID-19 from the Global Rheumatology Alliance. Moderate to high prednisone usage associated with greater risk of hospitalization. Read more.
Men develop the same typical clinical manifestations of lupus as women, yet certain key symptoms may be different. Throughout June for Men's Health Month we will learn more about these differences and what it's like for men to live with lupus. Learn more.
The findings of this study underscore how fatigue and pain significantly burden those living with lupus, and further research is needed to help solve the inadequacies in treatment and management of these commonly experienced lupus symptoms. Read more.
Research into the wide-ranging effects of hydroxychloroquine has revealed many important benefits in the treatment of lupus. To find out more about HCQ including how to access it if you are having trouble filling your prescription, please visit our COVID-19 and Lupus: The Latest page.
The use of hydroxychloroquine (HCQ) as a COVID-19 treatment is back in the news. Join Dr. Batt as he provides an overview and answers your questions as they relate to HCQ and lupus
Over the last several months, the lupus community has been uniquely affected by the coronavirus (COVID-19), especially with access to medications like hydroxychloroquine (Plaquenil) and chloroquine (Aralen). We would like to hear from people with lupus about their experience so we can continue to better serve them, the lupus community, and learn from this unique situation.
Read about how people with #lupus can use telehealth and telemedicine, the practice of providing health-related services, and patient care using technology.
During Lupus Awareness Month, with your gift of $25 or more we will send you a Lupus Foundation of America face mask.
What's Lupus Awareness Month without a GIVEAWAY! We are so excited to announce our Facebook Fundraising Contest! Create a Lupus Awareness Month or Walk Facebook Fundraiser and raise $100 by 6/1 to be entered to win a Lupus Swag Bag with so much cool stuff (valued at over $200)! Start your Facebook Fundraising today!
We know coronavirus is keeping us from our usual activities, but there are still plenty of ways to have fun while raising money to end lupus. We will show the world we can stand together even when we’re apart! Join us and Go Virtual to End Lupus with our Make Your Mark program and host a virtual fundraiser for Lupus Awareness Month!
If you’ve been diagnosed with lupus, treatment is probably your biggest concern. Treating lupus is a team effort — so you and your doctors will work together to find the treatment plan that’s right for you.
Play the Know Lupus game and test your knowledge of this cruel disease.
A Put on Purple Day Message from Nick Cannon: Host and entertainer Nick Cannon was diagnosed with lupus in 2012 and has a special Lupus Awareness Month message of support for fellow lupus warriors and urges them, people, to come together to get involved, donate and raise awareness during May. Watch his POP message here
Please join us for our May teleconference, Lupus and the Skin. With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
Thanks to your past fundraising efforts, we are making progress and continue to help thousands during these difficult times. Tap the link in our bio to start fundraising!
What do you get when you combine Instagram challenges and #LupusAwarenessMonth? #LupusBingo! Play our Bingo game this month and have fun while you help us raise more awareness and make #lupus visible.
Game On to End Lupus! Help us battle lupus with a charity stream starting today through May 10. This is a way to unite streamers from around the world to play video games and use their platforms to help end lupus. Join us and play your favorite games while helping to raise funds and awareness for lupus. Find out more to sign up.
Today is #WorldLupusDay and we think of the 5 million people worldwide living with lupus, those who love them who continue to fight to make a difference, and those who lost their lives to this disease. We stand with you and in honor of you! Visit our Lupus Awareness Month page to find social media shareables to post on your social media channels and raise awareness!
We know many of our walkers have had to cancel in-person fundraisers to support their walk team goals but we love seeing the creative ways that you have come up with to continue fundraising! From Facebook Fundraisers to virtual sales like Central Florida top walker and Walk Committee Member Amanda Quiñones's Avon fundraiser. All sales made through the link will donate 25-40% of sales to #lupusfl. With a virtual fundraiser like Amanda’s, you can also invite your friends and family to support the fight against lupus no matter where they live. Thank you Amanda and to all those who show that our #CommunityCares even through a pandemic! We are so grateful.
#WellnessWednesday: Looking for support? Good news! All of our in-person support groups are being held virtually until further notice. If you would like to attend one, please fill out a RSVP form . If you do not live in Florida, check your local chapter or go to lupus.org for a virtual support group in area. Fill out the form here.
A number of states and local jurisdictions have begun “opening up” by lifting restrictions on people’s movements and which businesses can operate. However, the threat for people with lupus from the coronavirus and illness it causes, COVID-19, remains higher than for the general population. Follow these CDC recommendations to protect your health and lower risk for infection when your local area lifts quarantine restrictions around COVID-19
#GivingTuesdayNow is a global day of giving and unity. It was created as an emergency response to the unprecedented need caused by #COVID-19. It’s also the perfect way to help make #lupus more visible and support lupus warriors in Florida. From an increased risk of infection to drug shortages, the coronavirus pandemic has been especially hard on people living with lupus. Your #GivingTuesdayNow gift will help provide the research, resources, support, and advocacy those living with lupus need now. Give your gift today.
#LupusAwarenessMonth is here and, now more than ever, your support is greatly needed. Those living with lupus, especially during this pandemic, are counting on us. Lupus doesn’t stop so neither will we! Facebook Fundraisers for Lupus Awareness Month or your walk team are easy, quick, and allow you to raise funds that will make a difference in the lives of millions of families impacted by lupus now. 100% of the funds raised on Facebook come straight to LFA (no fees). Click here to get started on your Lupus Facebook Fundraiser!
This May, join our nationwide effort with lupus warriors, friends, family members, and caregivers to make lupus visible! Lupus is more pervasive and severe than many realize since many of its symptoms can be invisible. Join us to this May to make lupus visible, by raising awareness and educating the public about this devastating disease, and raise funds for critical research and support programs! We know people with lupus are being heavily impacted by COVID-19, but that’s why we think it’s more important than ever that we come together and rally our communities to raise awareness and funds to support all those affected. Visit our Lupus Awareness Month page to find the tools (social media graphics, social media sample post and much more) to raise #lupusawareness virtually! There is still so much you can do to increase awareness and show your support — even from your home! You can share your story, use social media to raise funds for lupus research, put your purple on and so much more!
In today’s #TalkAboutIt we feature Kristin Brittain, one of our Ambassadors. Kristin is living with lupus and was recently diagnosed with COVID-19. She shares her experience with coronavirus and lupus. She answers such questions like -What were your symptoms. Did it feel different than a bad lupus flare? How did they treat you for COVID-19? Read more.
In a recently published letter, lupus experts discuss the current facts, uncertainties and recommendations for people with lupus during the COVID-19 pandemic. Read more.
Today’s blog written by Sara Esidore, the Lupus Trainer, tackles this tough topic. Sara gives us a glimpse into what it is like as she lives with chronic illnesses during this pandemic. Sara points out – “The truth is that I have to be realistic with myself when I start to speculate about this. Until there is a vaccine or cure for COVID-19, I will not be able to safely go outside in public or resume activities. This is a completely different ballgame and timeframe if you are chronically ill. There is no just “going back” to where we were before, at least not until a vaccine or cure is found.” Read more
Even though we cannot meet in-person, our Facebook Fundraisers continue to support our mission which is now more critical than ever during this pandemic and through the hydroxychloroquine shortages that we are working daily to overcome. Start your fundraiser today!
Our Support Group Facilitators, often lupus warriors themselves, are volunteers who commit their time and energy to provide a warm and caring environment where people with lupus, their family members, caregivers, and loved ones can share their experiences at monthly support groups. During these unusual times, all of our in-person support group will be held virtually. If you are looking for support and would like to attend a virtual support group, please fill out our RSVP form.
This National Volunteer Week, we are thanking the many caring and compassionate volunteers who have dedicated their time, talent and resources in the fight to end Lupus. We are kicking off this week thanking our 2019-20 LFAFL Ambassador class (who also have a message to share). They have all been impacted by lupus and use their voices daily to ensure no one fights lupus alone. If you are interested in being part of our 2020-21 class, you can learn more and apply at:
Researchers suggest maintaining disease remission in people with #lupus, especially during a pandemic infection, is extremely important. Data on people with rheumatologic autoimmune diseases, such as lupus, is currently lacking. There are many efforts underway in the form of registries to report and analyze the outcome of COVID-19 in people with rheumatological diseases such as the EULAR-COVID-19 Database and the COVID-19 Global Rheumatology Alliance Registry. The pandemic poses several areas of concern to the lupus community. Read them here.
We are pleased to feature Dr. Danine Fruge for our #TalkAboutIt series this week! Dr. Fruge is part of Pritikin Longevity Center and Spa team. She specializes in disease prevention with a focus on healthy lifestyle and mindfulness to heal the often reversible causes of chronic disease states. She shares advice on nutrition as well as healthy lifestyle techniques you can incorporate to help during this time and for life while living with a chronic disease. Some of the questions are, Fresh fruits and vegetables may become scarce. How would you suggest we maintain a healthy diet with the necessary vitamins/minerals? Living healthy during a pandemic can be challenging. What habits do you recommend to help me feel well during this time? Read more.
What is the impact of COVID-19 on people with lupus? There is much to consider and research is underway to understand the impact.
If you have #lupus, you are at higher risk for infections like the coronavirus (COVID-19).That is why it is not only important to protect yourself from COVID-19 but to also know what to do if you began experiencing symptoms of the virus. If you suspect you have COVID-19 or have been exposed to it, we urge you to follow these Centers for Disease Control (CDC).
Right now, thousands of Floridians living with lupus are having issues accessing the medications they rely on to manage their symptoms. Hydroxychloroquine (Plaquenil) and chloroquine (Aralen), two of the most commonly used medications by people with lupus, are currently being studied as possible treatments for COVID-19. Take action.
Our Q&A series, #TalkAboutIt, is happy to feature Dr. Robert H. Phillips. Dr. Phillips, a licensed psychologist, is the founder and director of the Center for Coping. He will be sharing techniques to help us cope with the current situation and answering your questions, such as: Everywhere I look in the news I see panic and it increases my own fears—what can I do? I’m beginning to get cabin fever—how can I feel happier during this confinement? Read more here.
Having trouble finding hydroxychloroquine in your area? An online pharmacy Honeybee Health is here to help the lupus and arthritis communities! Learn more about getting your prescription filled as we continue to work to address this shortage.
On March 30, 2020, the Centers for Medicare & Medicaid Services (CMS) announced new regulations that will affect people with lupus who are on Medicare and take Benlysta. Read more.
Lupus may affect many aspects of a patient's life, including the ability to work. Disability insurance policies are designed to provide benefits for people living with severe chronic illness, and understanding your rights is the first step to maximizing your security. This presentation will help you navigate the private and group disability maze- including eligibility, filing, and qualifying.
We all want answers. You can help us get them. Will you take a minute to take this quick survey? The #COVID-19 Global Rheumatology Alliance is conducting a study to understand how COVID-19 affects adults and children with lupus and other rheumatic diseases throughout the world. LFA and #Covid4Rheum want to help doctors and other health care providers make decisions about how to treat patients with lupus and other rheumatic diseases.
A joint statement issued by the COVID-19 Global Rheumatology Alliance cites the rapid and overly simplified reporting on the antimalarial drugs hydroxychloroquine (HCQ or “Plaquenil”) and chloroquine as responsible for the recent misuse and overuse of the therapies to treat the novel coronavirus 2019 (COVID-19). Representing an international effort to collect information related to COVID-19 infection in people with rheumatic diseases, the Alliance calls upon drug manufacturers, clinicians, pharmacies, health systems, and governmental health agencies to continue to coordinate an aggressive response to ensure use of these drugs is appropriately managed and vulnerable patient populations, like people with lupus, are protected.
Encuentre toda la información en Español sobre el coronavirus y lupus en nuestra página web, Covid-19: The Latest. Como por el ejemplo, algunos consejos sobre cómo rellenar su receta de hidroxicloroquina (Plaquenil).
We need your voice again. The Congressional Lupus Caucus has partnered with the Congressional Arthritis Caucus on a letter to the White House Coronavirus Task Force urging them to address this issue and ensure access to these drugs for people with lupus and rheumatoid arthritis. Ask your Representative to sign onto the letter! The letter is open to any U.S. Representative, and the more that sign the letter, the more effective it will be when it reaches the White House. We know that these are stressful times, and it’s easy to become overwhelmed by the news. But we will never stop fighting for people with lupus, and we know that you won’t either. It only takes one minute to make an enormous impact — please, act now.
As we’ve led the way in actively working to address these challenges, we have received positive responses from federal and state officials and other key stakeholders, including the manufacturers of hydroxychloroquine and chloroquine, state boards of pharmacy, health plans, pharmacies and pharmacists, and physicians – all of who can play a role in helping to ensure people with lupus have access to the medications they need. Read more.
The second Q&A series of our newest program, #TalkAboutIt, features Paul Steidle. Paul is a registered pharmacist—licensed in Florida and New York. He will be answering your questions about the current #Hydroxychloroquine situation, as well as other questions such as: If the pharmacy runs out of medication, as a lupus patient, am I put on a waiting list? Read the rest of this Q&A segment here:
Late yesterday, the U.S. Food and Drug Administration (FDA) issued an Emergency Use Authorization (EUA) to allow hydroxychloroquine and chloroquine for coronavirus COVID-19 treatment.
Thank you for continuing to support our mission during these unprecedented times by donating, hosting or joining in Facebook Fundraiser or virtual events. We love the creativity of annual events like the South Broward Alumnae Chapter of Delta Sigma Theta Sorority's 3rd Annual Delta's on the Run 5k benefitting LFA that has gone virtual so you can participate from the comfort of your home. Click here to see how you can support this event and others.
The Lupus Foundation of America in partnership with the Arthritis Foundation are urging state pharmacy boards and other important stakeholders involved with the drug supply chain to take immediate action to ensure the availability of hydroxychloroquine (Plaquenil) and chloroquine (Aralen) for people with lupus and rheumatoid arthritis.
Join our #WithoutMyHCQ campaign and help us safeguard these life-saving medications for people with lupus by reaching out to your members of Congress now to ensure people with lupus can access the medications they need.
The outbreak of the #coronavirus can bring about any number of negative feelings -- whether it’s about the health and safety of both you and your loved ones, your work status, medication supplies, or other fears. Read a number of healthy, effective ways for people with #lupus to manage stress and anxiety levels to maintain a positive outlook.
Check out our Covid-19: The Latest Page for updates/news on #lupus and #coronavirus as well as fun and entertaining activities you can do virtually with your family from the comfort of your home.
The Lupus Foundation of America is aware of the potential use of hydroxychloroquine (Plaquenil) and chloroquine (Aralen) for the treatment of coronavirus (COVID-19). This means that these drugs may be in high demand in the coming weeks.
Will you help me to ensure all of Congress hears the lupus community loud and clear by contacting your representatives and senators as part of Virtual Advocacy Day? The more people that contact their members of Congress, the more likely they will be to support our cause!
Will you contact your Senators and Representative and send a message during the Lupus Foundation of America’s Virtual Advocacy Day? Urge them to support funding for critical lupus research and education programs.
People with lupus are at higher risk from infections like the coronavirus, as well as more common illnesses like colds and the flu. Some people with lupus may also be at risk for more serious complications from catching the coronavirus. We urge you to follow the CDC recommendations for people at higher risk.
Introducing our new program #TalkAboutIt, a new Q&A series where we feature lupus warriors, health care professionals, caregivers and other experts in their field. The more we talk about how lupus impacts our daily lives, the better armed we are to battle this cruel and mysterious disease. Meet CFL Walk Committee Member and 2019 Ambassador, Shannon Small. Learn about how getting involved has changed how she lives with lupus and how she has become one of Florida’s top fundraisers.
In honor of International Women’s Day, we want to celebrate women who have made an incredible impact in the lupus research field.
Es importante que cuide su salud y mantenga el riesgo de infección bajo. La mejor manera de hacer esto es tomar las mismas medidas que tomaría para evitar otros tipos de virus como los resfriados y la gripe.
You may have heard that a new virus called coronavirus is spreading around the globe. People with lupus are at increased risk of infection. Take care of yourself and lower your risk.
When building a new relationship, whether friendship or romantic, it's important to think through what you want to share with that person about lupus. Read how other warriors handle new relationships.
Do you know a lupus warrior? Show them some love by making a gift in their honor and we will send them an acknowledgment card in the mail with your message. It doesn’t have to be Valentine’s Day to show love. You can make a honor gift and we can send a card any day of the year
Lupus symptoms can come and go, and different symptoms may appear at different times during the course of the disease. Download the lupus symptom tracker to help you monitor your lupus symptoms so you and your health team can best manage your disease.
Team Make Your Mark has helped Sharon find a new purpose. Read more about Sharon's Team Make Your Mark journey.
Read the latest lupus news in our February newsletter!
Some steps you can take today to better support your loved one with lupus.
February is also American Heart Month! It's crucial for people with lupus to minimize risk factors for heart disease. Watch this episode of The Expert Series this month to learn warning signs and steps you can take to lead longer, healthier lives with lupus.
Need ideas meeting your walk fundraising goal? Check out Orlando Top Walker Shannon Small’s event on Sunday, 2/9 at Traders Bar in New Smyrna for a great example! There will be free food, live music, 50/50 Raffle and a live auction to raise funds for her Central Florida Walk Team. Stop by and support her if you are in the area too!
From March 15-17, lupus advocates will once again converge on Washington, DC for the nation's largest lupus advocacy event. Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of fellow lupus advocates, and storm Capitol Hill to urge their members of Congress to join our fight and support policies to improve the lives of all people affected by lupus.
Did you know we archive all of our teleconferences? Don't miss this opportunity to learn from some of the world's leading #lupus experts. Keep an eye out for our 2020 Ask the Experts Teleconferences coming to you soon! In the meantime check out some of our past teleconferences.
Raynauds is a common overlapping condition with lupus that can cause numbness in the fingertips and toes. Learn the triggers and how to avoid them.
The South Broward Alumnae Chapter of Delta Sigma Theta Sorority, Inc.'s 3rd Annual 5K/Virtual Walk/Run for wellness will take place along the beautiful Hollywood Beach Boardwalk to support the Lupus Foundation of America/Florida Chapter.
Because #lupus may manifest itself in a variety of ways, it is often hard to tell just what is—or isn’t—a symptom of lupus, its treatment, or something else. However make sure to take all of your symptoms seriously, even those that may seem unrelated to lupus. Read more on what to do about uncommon symptoms.
Already registered to run a half marathon, marathon, or complete a triathlon? Have another endurance goal in mind? Put that personal challenge to work by signing up as a Team Make Your Mark athlete and fundraiser and help to create a world without lupus! We want as many people as possible crossing the finish line and fundraising for lupus!
Ten men and women with a variety of job types share how they've managed to stay engaged with work while dealing with the pain and fatigue of #lupus.
You may need to make adjustments to your relationships, your attitude and your lifestyle to create a "new normal" after a lupus diagnosis. Here three ways you can take charge to start feeling better.
We are thrilled to report more great news about a potential new treatment for lupus-related kidney disease (lupus nephritis).
The upcoming new year is a great opportunity to reflect and meditate on both your trials and victories within the past year. For your lupus journey specifically, it gives you a chance to holistically evaluate how you’re coping with your symptoms and if there are things you can do to improve that experience.
Registration is now open for the 2020 National Lupus Advocacy Summit! From March 16-17, Join #lupus advocates in Washington, DC for the nation's largest lupus advocacy event. Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of fellow lupus advocates, and storm Capitol Hill to urge their members of Congress to join our fight and support policies to improve the lives of all people affected by lupus.
Registration is now open for the 2020 National Lupus Advocacy Summit! From March 16-17, Join #lupus advocates in Washington, DC for the nation's largest lupus advocacy event. Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of fellow lupus advocates, and storm Capitol Hill to urge their members of Congress to join our fight and support policies to improve the lives of all people affected by lupus.
The Expert Series: Lupus and the Kidneys. In this episode of The Expert Series, Dr. Brad Rovin discusses lupus nephritis and why it’s important for you and your doctor to regularly monitor your blood pressure and do tests to check for any signs of lupus kidney disease. Listen in now!
Read some common questions about voclosporin, a potential new treatment for #lupusnephritis.
#LFADAY: Did you know we archive all of our teleconferences? Don't miss this opportunity to learn from some of the world's leading #lupus experts. Make sure to register for December's Teleconference, Lupus and Overlapping Connective Tissue Disease.
SHOP AND GIVE THIS HOLIDAY SEASON As you are making your list and checking it twice this holiday season, don’t forget to shop through amazonsmile.com (link in bio) and a percentage of your gift list goes to LFA Florida.
It's Giving Tuesday! Join us in raising money to end lupus. Your Giving Tuesday gift will help provide the research, resources, support, and advocacy we need to help end the suffering of the cruel mystery of #lupus.
If you have #lupus, the most important thing you can do is let family members know the extent of your pain and fatigue. This will help them know when they need to help out. Tap the link in our read more.
The holidays can be fun, but they can also be stressful. Since excess stress is a suspected trigger for lupus flares, it is important to manage your time, emotions and resources.
The ALPHA Project is a global effort to address top challenges in lupus that are slowing down the development of new lupus treatments, time to diagnosis, and access to care.
When you have lupus, you have to be careful to protect yourself from viruses because they have the potential to not only make you feel horrible from the illness itself but to cause a flare or increased activity of your lupus, providing a double whammy.
While a person’s genes may increase the chance that he or she will develop lupus, it takes some kind of environmental trigger to set off the illness or to bring on a flare.
Through the Health Insurance Marketplace, individuals, families and small businesses can learn about their health coverage options; compare health insurance plans based on costs, benefits, and other important features; choose a plan, and enroll in coverage.
Disease activity and medication make people with lupus more susceptible to infections. Learn the importance of vaccines for those with lupus.
If you are a caregiver for someone with #lupus, you are not alone. This toolkit is designed to provide you with guidance, support, and advice, whether you have been a caregiver for just a few days, or for several years.
Medicare Open Enrollment starts today! You can review your current plan and make changes for 2020 between October 15 and December 7.
inks for Lupus has been helping raise money for the Lupus Foundation of America, Florida Chapter (LFA) for 3 years. Golfers enjoy a round of golf, lunch, dinner, and a goodie bag while they raise funds to help advance the science and medicine of lupus to ultimately find a cure and improve the quality of life for all people affected by lupus.
For people with lupus, sleep is critical in helping to prevent flares, manage fatigue, conserve energy and keep your immune system healthy.
We are looking to grow our list of lupus aware physicians. Please take a few minutes and complete this form to help others living with lupus find a lupus aware physician (rheumatologist, neurologist, cardiologist, dentist, etc).
#WellnessWednesday: It's #NationalWomensHealthandFitnessDay. Regular exercise can reduce inflammation, combat fatigue, and boost your mental health in people living with #lupus. Be sure to discuss your exercise plans with your physician or exercise specialist in order to maximize results and minimize possible harm.
Use this worksheet to reflect on strategies and behaviors you can use to overcome #lupus challenges and better cope with your lupus.
An effective way to keep track of a complex disease like lupus is with a daily medical diary or journal. This can be kept by you, or by a trusted family member or friend who can go with you to your doctor appointments. Details about medications, such as dosage and possible side effects, can be recorded, as well as questions to ask at your next appointment.
Everyone should have an emergency preparedness plan and, in addition, for people living with lupus make sure you have a “lupus kit" ready to go.
Exercise is important when you have #lupus. It can reduce fatigue, keep you moving, and boost your mood. Tap the link in our bio to learn more.
There's no limit to how you can raise money to fight lupus. Here are some popular ways lupus advocates like you around the U.S. are bringing their communities closer to raise critical funds for lupus research
Lupus can be a lot to deal with on top of the demands of middle and high school. But there’s a lot you can do to take charge of your health and manage your symptoms at school. Use these tips to help you keep your school days fun, productive, and healthy!
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you!
There are many different ways to teach newly diagnosed children and teens about lupus. Whatever way you choose, make sure what you say is appropriate for your child’s age and maturity level. You may also want to ask your child’s doctors for advice — they have lots of experience talking to children and can help you teach your child how to manage symptoms and cope with having a chronic illness.
Register for Florida's largest lupus walk!
People with #lupus may experience problems in any area of the gastrointestinal system. Learn more.
The unpredictability of lupus can be overwhelming at times, especially when attempting to navigate a maze-like healthcare system. It is important to know how to self-advocate by knowing your rights and responsibilities, speaking up for your rights, and making choices and decisions that affect your health.
Apply for the 2019-2020 LFAFL Ambassador Program.
Register for Florida's largest lupus walk!!
To better assess Cardiovascular Disease (CVD) risk associated with #lupus a recent study looked at coronary artery calcium (CAC) levels in people with lupus. This new research shows that young adults with lupus may already show early warning signs of heart disease.
#TipTuesday: Watch a slideshare with ten essential tips from experts on how to live your best life with #lupus. Tap the link in our bio to read the rest of them! #lupusFL #endlupusnowFL #lupusawareness #knowlupus #nolupus #cruelmystery #autoimmunedisease #livingwithlupus #lupuswarriors #lupuswarrior
Join us for our July Teleconference: Clinical Trials & the Latest on Lupus Research Teleconference. Dr. Samuel Pegram will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial and much more.
In this episode of The Expert Series, Andrea Knight, MD discusses the importance of early detection of mental health challenges among children with lupus and proactive treatment for those at risk.
In this segment of The Expert Series: Financing your medical care, you'll learn strategies for financing your medical care whether or not you have insurance, drug discount tools, and savings programs and how to get the most out of your health insurance benefits. Tap the link in our bio to listen in!
Yesterday, the U.S. House of Representatives approved legislation that will provide $17.5 million in funding for lupus-specific research programs at the Centers for Disease Control and Prevention (CDC) and Department of Defense (DoD) in the fiscal year 2020.
The philosophy of LFA support groups is to provide a warm and caring environment where people with lupus, their family members, caregivers, and loved ones can share their experiences, methods of coping and insights into living with this chronic illness. We are currently looking for co-facilitators for some of our monthly lupus support group meetings. If you are interested in becoming a co-facilitator, please fill out this form here.
Check out our latest episode of The Expert Series for tips to help improve communication between you and your health care provider to get the most out of your doctor appointments
Get your tickets here!
To gain some insight into coping strategies specifically for men, we posed questions to six men about their lives with lupus. We think you will find their responses helpful and inspiring.
LupusConnect™ is an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease. It’s an easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community.
#WellnessWednesday: #Lupus can make each day a challenge. Learn about the various ways you can take control to minimize the burden of your illness.
Beyond skin rashes that can develop, exposure to the sun can cause those living with lupus to experience increased disease activity with symptoms such as joint pains, weakness, fatigue and fever. Here are 10 truths about UV radiation.
Take the purple pledge to help others learn about lupus so more people will know about this serious, debilitating and potentially life-threatening disease.
Are you interested in raising awareness about lupus and sharing your story? Are you interested in being part of the LFA family? If yes, please apply for the LFA Ambassador Program.
Take the #WorldLupusDay pledge. An pledge to increase awareness and understanding of #lupus.
Please complete and submit this application. Upon completion please deliver or send supporting documents via mail, email or fax to the LFA Florida office prior to May 31.
A recent survey was conducted for the Lupus Foundation of America by Qualtrics to explore American adults’ awareness and knowledge of lupus. Read it here.
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
You can help by raising awareness of #lupus and its symptoms this May--whether its sharing lupus facts on social media or hosting an event in your community. We have all the tools and resources you need to get started! Tap the link in our bio to find out more. http://ow.ly/Wuy450skHPV
Check out what individuals across the state of Florida are doing to raise awareness and funds. From a Lupus Bowl to a Lupus Party!!
Systemic diseases such as lupus may include some sort of oral involvement. And, good regular dental care with a trusted dentist can help discover and alleviate any problems that might arise.
It's important to understand your medications and to have a strategy for keeping track of them. Follow this guidance to get the most out of your meds while minimizing side effects.
Lupus can be a lot to deal with on top of the demands of middle and high school. But there’s a lot you can do to take charge of your health and manage your symptoms at school. Use these tips to help you keep your schooldays fun, productive, and healthy!
If your Lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This teleconference covers what Lupus patients need to know about their rights and the filing process.
Interested in volunteering the day of the Walk? Click the SignUp button below, fill out the form, and a member of our walk staff will contact you. Please note that volunteers must have a liability waiver signed in order to volunteer at the event. Please click here to view and print the liability waiver. Bring the signed waiver with you on walk day and submit it to the coordinator when you check-in. Thank you so much for your interest in volunteering with us!
Not getting enough sleep increases inflammation in your body, worsening your other #lupus symptoms. Learn more on ways to get a better sleep when you have #lupus.
: What does it mean when #lupus is "active"? Read more on some of the symptoms that indicate you might be in a flare.
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
TipTuesday: What to do when you don't feel like your doctor is listening? Read some advice and encouragement for improving communication with your doctor. Learn more.
Anything that limits your ability to think clearly, reason, or remember something is a cognitive symptom. The American College of Rheumatology has identified 19 psychiatric symptoms associated with lupus. Learn some tips for coping with lupus-related cognitive symptoms.
In this episode of The Expert Series, Victoria Werth, MD will teach you about how lupus can affect the skin as she describes skin lupus subtypes and how to manage living with lupus.
Did you know people with #lupus are at higher risk for heart problems, such as heart attacks and cardiovascular disease (CVD)? Learn the risk of heart disease in lupus patients and how to minimize them.
Participants in yoga, tai chi, and Pilates all benefit physically and mentally from the exercises. However, there are differences between the forms. With your doctor’s approval, these three exercises can be tailored to your needs and abilities
Support groups meet in person in counties across Florida and online in our LupusConnect Community.
LupusConnect™ is an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease. It’s an easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community.
Exercise, especially gentle strength training, can improve some #lupus symptoms. Here is a quick low-impact exercise routine for lupus you can try once you get the green light from your doctor!
Life with lupus can be difficult at times, but it doesn’t have to stop you from doing the things that matter to you. Many people with lupus live happy, active lives — and you can, too. Read more from the guide to coping with #lupus.
Learn about the various cardiovascular disease conditions that affect people living with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
February is #HearMonth. Learn how #lupus affects the heart and circulation and what you can do to stay #HeartHealthy.
Hair loss: Expert addresses common concerns
Infections pose a greater risk for people living with lupus. In fact, infections are the second most common major cause of illness and death for people with the disease.
Learn some essential advice from a #lupus doctor on coping and managing the disease. Above all: realize you will get through this.
Keep up with everything happening this year at LFAFL! Join our email list and get the inside scoop on upcoming events, success stories, our growth and upcoming projects! Tap the link in our bio to sign up!
When you're newly diagnosed with lupus, you have a lot of questions. We created this guide to make sure you don't miss any critical information during those initial visits with your rheumatologist.