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2020 National Lupus Advocacy Summit

Learn. Connect. Advocate.

From March 15-17, lupus advocates will once again converge on Washington, DC for the nation's largest lupus advocacy event. Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of fellow lupus advocates, and storm Capitol Hill to urge their members of Congress to join our fight and support policies to improve the lives of all people affected by lupus.

Registration for the 2020 National Lupus Advocacy Summit is now open!
Register Now

Each March, the National Lupus Advocacy Summit brings together the entire lupus community in pursuit of our shared goal: a world without lupus. Join lupus advocates from across the country to share your story with Congress and urge them to support policies that increase funding for lupus research and improve the lives of those living with this disease.

The National Lupus Advocacy Summit is the keystone of our comprehensive advocacy program that has generated more than $500 million in federal funding for lupus research and education in the last five years alone.

At the 2020 Summit, you'll help us build on our past successes and further advance policy priorities that are accelerating the search for new lupus treatments, better educating physicians who diagnose and treat the disease, and much more. In addition to meeting with your members of Congress, Summit attendees will hear firsthand from the brightest minds researching and treating this disease and learn how to advocate for themselves and others throughout the entire year.

Attend the 2020 National Lupus Advocacy Summit in Washington, DC

We can't turn Capitol Hill purple without you! Don't miss out on this opportunity to raise your voice in support of the 1.5 million Americans living with lupus.

Register Now

Preliminary Schedule of Events
Sunday, March 15

6:30 - 8:30 pm          |    Welcome to Washington Reception
Join us at The Mayflower Hotel for an informal evening reception with Summit attendees and Lupus Foundation of America staff as we honor our National Ambassadors. Receive your materials for the rest of the Summit and enjoy light refreshments as you get to know lupus advocates from all across the country.

Monday, March 16

8:00 - 9:00 am          |    Registration and breakfast

9:00 - 9:30 am          |    Opening remarks

9:30 - 10:45 am       |    Today & Tomorrow in Lupus Research 
2019 was a significant year in lupus research, and 2020 promises to push us even further in our pursuit of quicker diagnoses and safer, more effective treatments. In this session, you'll hear from leading lupus researchers about the recent breakthroughs in lupus drug development and those soon to come.

10:45 - 11:00 am    |    Break

11:00 - 12:00 pm    |    From Participant to Partner: Patient-Driven Research
People with lupus are the most critical aspect of any lupus research initiative. This session will detail our efforts to amplify the voices and experiences of people with lupus, including through our innovative new data hub that will help usher in the future of lupus drug development.

12:00 - 12:30 pm    |    Lunch

12:30 - 1:15 pm       |    Excellence in Advocacy Awards
Lupus advocates are the engine behind everything we do, and none of our advocacy successes would be possible without the tremendous efforts of people with lupus and those who love them. Join us in honoring those who went above and beyond in 2019 in support of the entire lupus community.

1:15 - 1:30 pm          |    Break

1:30 - 2:15 pm          |    Navigating the Healthcare System
Quality, affordable healthcare is critical for people with lupus. Learn how to take control of your healthcare and learn about the different federal and state assistance programs, including Social Security Disability Insurance, available for people with lupus.

2:15 - 3:00 pm          |    Advocacy x 365
The Summit is just one part of our advocacy strategy. Join us for a deep dive into our year-round advocacy efforts and hear how you can be involved with them to help us continue securing advocacy victories for the entire lupus community.

3:00 - 3:15 pm          |    Break

3:15 - 4:30 pm          |    Storytelling & Preparing for Capitol Hill
To close out the day, the Foundation's Advocacy & Government Relations team will discuss the issues we will be taking to Capitol Hill, prepare you to tell your story in the most impactful way, explain how to structure a congressional meeting, and make sure you are fully prepared for three successful meetings with your members of Congress the following day.

4:00 - 5:00 pm          |    Closing remarks & delegation meetings
Connect with those advocates you will be in meetings with on Tuesday and plan your approach for each meeting. Foundation staff will be present to answer any questions and help you practice.

Tuesday, March 17

7:30 - 9:00 am          |    Breakfast

8:00 - 4:00 pm          |    Meetings with members of Congress
Put on your purple and head to Capitol Hill, where we will have arranged meetings for you with your members of Congress. You'll meet with your U.S. Representative and both of your U.S. Senators to tell them how lupus has changed your life and what they can do to join our fight against this devastating disease.

3:00 - 6:00 pm          |    Hospitality room at The Mayflower Hotel
After your meetings, join us back at The Mayflower to recap your day with Foundation staff, say goodbye to your new friends, and grab a snack before heading home.

Registration Details

Your Summit registration fee of $50 provides you with an all-access pass to the 2020 National Lupus Advocacy Summit. We collect this fee to reserve your spot at the event and slightly offset the costs associated with planning and executing an event of this size. The registration fee is waived for advocates under 21.

Included in your registration fee is:

  • Exclusive access to our discounted room rate at The Mayflower Hotel;
  • Access to the Welcome to Washington Reception on Sunday, March 15;
  • Breakfast, lunch, and snacks throughout the day on Monday, March 16;
  • Breakfast on Tuesday, March 17 and refreshments after your meetings on Capitol Hill;
  • Discounted transportation to and from Capitol Hill;
  • Scheduled meetings with your members of Congress and access to a mobile app to help you navigate Capitol Hill, keep notes on your meetings, engage your members of Congress on social media, and more.

After you register for the Summit, you'll receive much more information to help you prepare for your trip to Washington. The week before the Summit, we will host a webinar to review everything you need to know and answer any final questions you may have. If you have any questions in the meantime, please contact us

Register Now for the 2020 National Lupus Advocacy Summit

Hotel Information

The 2020 National Lupus Advocacy Summit will be hosted by The Mayflower Hotel. After you register for the Summit, you will receive information on how to reserve your hotel room at our discounted rate of $304 per night, available exclusively to Summit attendees. You are not required to stay at The Mayflower to participate in the Summit.

Congressional Meetings

The Foundation will use the address you provide when registering to schedule meetings for you with your three members of Congress. Please do not attempt to schedule your own meetings. Click here to find out who represents you in Congress, and please let Travis Smith know if you have any issues or questions related to your meetings.

Youth Programming

For lupus advocates under 21 and their families, the 2020 Summit will once again feature a youth track focusing on topics specific to growing up with lupus. Youth advocates will have a dedicated space available to them throughout the Summit to connect with their peers in a relaxed setting.

Traveling with Lupus

If you are living with lupus and planning to attend the Summit, check out our guide to traveling with the disease and this helpful packing list as you prepare for your trip to Washington. If you have specific nutritional needs or require ADA hotel accommodations, please contact Travis Smith after you have registered for the Summit. 

Fundraise your way to Washington, DC

We understand that traveling to Washington can be costly. It's important to us that we provide advocates every opportunity to be a part of this powerful event, and that's why we developed this fundraising guide to help you offset the cost of attending the Summit. The guide will help you budget for your trip, leverage the power of crowdsourcing, and much more.

Download the Guide
Summit Scholarships

Each year, the Foundation is proud to provide scholarships for advocates to attend the Summit. Due to the amount of applications we receive, we are not able to provide scholarships for everyone who applies - as much as we wish we could! The deadline to apply for a Summit scholarship was December 22 and submissions are now closed.

Learn More

For questions about the 2020 National Lupus Advocacy Summit, please contact Travis Smith, Director of Government Relations, at [email protected] or 202-212-6778.