Health Care Professionals
A toolkit of resources on living with lupus for health care professionals to share with their patients.
Thank you for all you do to care for people with lupus.
The Lupus Foundation of America is proud to provide you with tools and resources on living with lupus that you can share with your patients. All toolkits, guides, fact sheets and additional resources are available to complement your medical care.
Online and Printable Fact Sheets
Copies of our fact sheets covering the most frequent questions about lupus are available in English, Spanish and Chinese, and can be downloaded as a PDF right from your computer.
- Understanding — Learning about lupus is an important first step to managing the disease. Download printable PDF in: English | Español | 在这里下载
- Diagnosing — Understanding steps to obtain an accurate lupus diagnosis. Download printable PDF in: English | Español | 在这里下载
- Treating — Working with doctors to find the best treatment plan. Download printable PDF in: English | Español | 在这里下载
- Coping — Learning strategies to help lighten the burden of lupus and maintain a fulfilling life. Download printable PDF in: English | Español |在这里下载
- Living — Developing healthy habits and navigating the challenges that arise while living with lupus. Download printable PDF in: English | Español | 在这里下载
Printed Materials to Order
Services Brochure — Provides an overview of available Lupus Foundation of America resources and services to directly help people find the answers they need and how to get involved in the fight against lupus.
Wallet Card — An easy reference to access the Lupus Foundation of America’s National Resource Center on Lupus providing information on understanding lupus and tips for coping and living with the disease. It is available in English and Spanish.
Wondering if It’s Lupus? Brochure — Provides information on the signs and symptoms of lupus, and how doctors diagnose the disease. It is available in English and Spanish.
Health Educator Network Flier — Shares how to reach our certified health educators who are trained to provide people with lupus, their families, and caregivers with non-medical counseling, disease education and helpful resources.
Note: If you would like to order hard copies of our fact sheets or printed materials to share with your patients and their families, please use our online order form.
Lupus and School Toolkit — This toolkit provides tips for parents on communicating with schools about lupus, a template to customize a letter to discuss adjustments, assistance, and any other issues. This information is available as a PDF in English, Spanish and Chinese (simplified).
School Survival Guide for Kids — This guide is for kids and provides ideas on things they can do to make sure school is as productive and fun as possible.
School Survival Guide for Teens with Lupus — Lupus can be a lot to deal with on top of the demands of middle and high school. This guide provides tips to help teens take charge of their health and manage their symptoms at school. This information is available as a PDF in English, Spanish and Chinese (simplified).
Toolkit for Caregivers — This toolkit is designed to provide caregivers with guidance, support and advice. It covers topics such as self-care and setting limits, managing finances and legal matters for your loved one. It includes a daily care plan template, problem-solving tips, helpful forms, templates for tracking vital information and more.
Support Beyond the Office Visit
Our national network of health educators can provide your patients with non-medical counseling, disease education, information and helpful resources.
We also have a number of online resources that can be accessed at any time:
A collection of up-to-date resources and support services that help to educate, empower and connect all those impacted by lupus.
A monthly educational video series featuring empowering presentations from leading lupus experts with a focus on helping people with lupus live well.
An online community where members can engage with others to share experiences and practical tips for coping with lupus, and find emotional support.
A 12-week email series on managing lupus. The series covers topics such as medication adherence, tracking symptoms, building a support network and healthy eating.
We offer several online courses for people with lupus on living and coping with the disease — from tracking symptoms to communicating with health care providers.
We explain why patients are important to advancing lupus research and provide information and search tools on lupus clinical trials, and why participating in RAY: Research Accelerated by You helps to fuel new treatments.
A one-page flyer that includes a description and link for our Take Charge email series.
Resources for Health Care Professionals
Professional Education: We have medical education activities available for both lupus specialists, primary care providers and nurses.
Researcher Funding Opportunities: We have research and grant opportunities available.
Lupus Science & Medicine Journal: A peer-reviewed, open access, online journal that provides a central point for publication of basic, clinical, translational, and epidemiological studies of all aspects of lupus and related diseases.