Skip to main content
Close
Providing Answers, Support and Hope in Florida
This is my chapter   |   
Reset

Ask The Experts

Ask the Experts is a series of live educational webinars and teleconferences on a variety of topics designed to provide you with important information about living with lupus. Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home. Participate in several or just the one that most interests you. Missed an event? No problem. We record them all because they are Worth the Listen!

Upcoming Virtual Programs
How to Create A Flare Plan (Under 60 Min)

Tuesday, October 27, 2020

 

Description: Lupus is met with unpredictability, which often leads to stress and anxiety. Focus on what you can control in the meantime. A flare plan will allow you to organize everything ahead of time in case of an emergency. Learn the effective points of a flare plan and receive additional resources to get started, including a guided worksheet to fill out your own flare plan. Additionally, a rheumatologist will be answering your questions about flares, like when to go to the hospital vs. when to call your doctor.

Presenters: Cheri Perron, Board Member at the Lupus Foundation of America

Dr. Belinda Birnbaum, Rheumatologist with the Bryn Mawr Medical Specialists Association

 

Register Today! 

Lupus & Exercise: How To Get Started

Tuesday, October 13, 2020 

When it comes to exercising with an autoimmune disease, it can be difficult to find what works best for you. Maybe you feel hindered by chronic pain and the thought of going to the gym is too much to handle. Maybe you are an avid exerciser but somehow you still end up with a significant amount of flare-ups. Learn what factors are important to consider when exercising with an autoimmune disease; from exercise intolerance to which kind of exercise is best. Certified Personal Trainer and Strength and Conditioning Specialist, Daniela Spear, will cover the ins and outs of a healthy exercise routine that will benefit you while living with an autoimmune disease.

Register Today! 

Managing Pain: Non-Opioid Treatment Options

Thursday, November 19, 2020

Dr. Steven Neucks, a rheumatologist in Indianapolis who is board certified in pain management, will be discussing the multiple non-opioid options available for managing the pain associated with living with lupus.

Register Today! 

 

When the Rheumatologist and Patient Fight Lupus Together: Clinical Trials

Monday, December 7, 2020 

Clinical trials are an essential part of how advances are made in medicine. Current knowledge of lupus is built upon the results of yesterday’s clinical trials. But what exactly is a clinical trial? How do you find more information about clinical trials or go about enrolling in a clinical trial? Dr. Caricchio is passionate about lupus research and will discuss clinical trials at length, including what to expect in a clinical trial, the challenges facing rheumatologists and patients alike, and how to enroll in one.

Register Today! 

Webinars

Pediatric Lupus: What to Expect

This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, Clinical Director of the Division of Rheumatology, Director of the Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, a psychologist and parents of children with lupus.

Before and After a Lupus Diagnosis Merging Lifestyles and Taking Control

The effects of lupus are always on the back of your mind, making you feel like you are losing control. From unpredictable symptoms, fatigue, and pain to worry, anxiety and depression, Dr. Cristina Drenkard will provide self-management skills to help you successfully manage daily disease-related challenges and improve your quality of life.

Hydroxychloroquine: Facts vs Fiction Webinar

Join Dr. Batt as he provides an overview and answers to the most popular questions we receive as they relate to HCQ and lupus.

Lupus and Men Webinar

Please join us for our Lupus and Men live webinar with Dr. Sam Lim, a top researcher at Emory University and head of the Georgia Lupus Registry, who will talk about the unique challenges of being a man with this disease and explore opportunities to take charge of your life.⁣

The Lupus Diet: Is there one? Webinar

"What's the right diet? What should I avoid? Does what I eat really affect inflammation?" Food is something we're so familiar with, yet it can be such a confusing thing to navigate—especially with lupus. From reducing inflammation to maintaining energy, certified dietician Gretchen Spetz, MS, RDN, LD, will share ways to use diet as a tool in managing lupus. Join us for this webinar as we address one of our most frequently asked questions: "Is there a lupus diet?"

Worth the Listen!
Depression and Lupus Fog: What's the difference?

Depression and Lupus Fog: What is the difference?

Depression and anxiety are related and common emotional states. Approximately 3-7% of the general population experience depression and anxiety that are related to mental disorders. This talk will focus on identifying depressive symptoms and disorders. I will also distinguish between depression and “lupus fog,” and discuss coping strategies for both issues.

Presenter: Dr. Sharon Boyd-Jackson, Ph.D.

Lupus and the Skin: A Helpful Guide

With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.   

Presenter: Dr. Victoria Werth, MD

Lupus and the Skin: A Helpful Guide Presentation

 

 

Disability: Navigating the Maze

Lupus may affect many aspects of a patient's life, including the ability to work. Disability insurance policies are designed to provide benefits for people living with severe chronic illness, and understanding your rights is the first step to maximizing your security. This presentation will help you navigate the private and group disability maze- including eligibility, filing, and qualifying. 

Presenter: Alicia Paulino-Grisham  

Download the PDF Presentation

Lupus and the Kidneys

Dr.Gupta will discuss the various aspects of the kidneys and how lupus can affect them. She will cover kidney function, how kidneys can be damaged, how it is diagnosed and treatments. 

Presenter: Dr. Arti Gupta, MD 

Download the PDF Presentation 

Download the Lupus Educational Literature PDF

Lupus and Your Heart

Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.

Presented by Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University 

Download the Presentation

Lupus and the Immune System

Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required. 

Presented by Dr. Rebecca Sadun 

Download the PDF Presentation 

The Role of Rheumatologist in Treating Lupus

Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis. 

 

Presented by Dr.Lesley Davila M.D.

 

Download the PDF Presentation

 

 

 

Social Security and Disability : What Every Patient Should Know

Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process. 

 

Presenter: Thomas J. Giordano, JR., Esquire

 

Download the PDF Presentation

 

 

 

Lupus and Nutrition

Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.

Presenter: Lindsay Sappah, RD LDN CNSC

Download the PDF Presentation 

Clinical Trials

Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced Rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.

Presenter: Dr. Samuel Pegram 

Download the PDF Presentation

Managing the Side Effects of Medications

The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.

 

Presenter: Dr. Mohammad Kamran

 

Download the PDF Presentation

 

 

Lupus in Minority Populations

"Systemic Lupus Erythematosus, a multi-organ system autoimmune disease, has been shown to affect ethnic minorities more frequently and more severely than other populations. Minorities are 3-4 times more likely to develop SLE and twice as likely to experience severe manifestations such as kidney disease. Finding personalized approaches to treating minority patients starts with quality research. In our talk with Dr. Ashira Blazer, an academic rheumatologist at NYU Langone Hospital, we will explore the presumed causes and contributors to disparities in SLE, future directions in management, and tools to help even the most vulnerable of patients live well."

Presenter: Dr. Ashira Blazer 

Download the PDF Presentation

 

Coping with Lupus

Lupus affects each of us—patients and loved ones alike—and too often we struggle daily with this illness. Join Dr. Phillips for Coping with Lupus—a conversation about living better with this devastating disease. Hear techniques explained and learn new ideas and strategies, which can be tailored to meet your individual needs.

Presenter: Dr. Robert H. Phillips 

Coping with Lupus Presentation

Joint Replacement with Lupus

Dr. Antonelli is a rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at Metro Health Medical Center in Cleveland, Ohio. She is an Assistant Professor of Medicine at Case Western Reserve University. She is a passionate physician that cares greatly for the lupus community. She will focus the presentation on the correlations of Joint replacement with Lupus. The goal is to give us a better understanding of the topic and learn how to live well with lupus.

Presenter: Dr. Maria Antonelli, M.D.

Joint Replacement with Lupus Presentation 

 

Lupus and Overlapping Connective Tissue Disease

This presentation will look at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome.  We will cover how they are similar and different, and the approaches to treatment.

Presenter: Dr. Kathleen M. O'Neil, MD

Lupus and Overlapping Connective Tissue Disease 

 

Teens with Lupus: Transitioning into Adulthood

Teens with Lupus: Transitioning into Adulthood

With:  Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.

As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years. 

Download the presentation (PDF)

 


Clinical Trials 101

Clinical Trials 101

 

With: Dr. Namieta Janssen, Rheumatologist from Houston, TX

This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus. 

Download the presentation (PDF)

 


Workplace Accommodation for Individuals with Lupus

Workplace Accommodation for Individuals with Lupus 

With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair 

People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.

 

 


An Overview of Social Security Disability Benefits

An Overview of Social Security Disability Benefits 

With: Andrew Salata, Public Affairs Specialist, Social Security Administration

The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process.  The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.

Download the presentation (PDF)

 

 


Lupus and Female Issues: From Puberty to Menopause

Lupus and Female Issues: From Puberty to Menopause

7:00 pm – 8:00 pm EST
with  Amber R. Cooper, MD, MSCI

Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.

Download the PDF Presentation

Listen to the Recording:

Pediatric Lupus

Pediatric Lupus 
With  Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center

Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.

Download Dr. Reema Syed's presentation

 

 

 

Vivir con Lupus

Vivir con Lupus 
with Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

Download Dr. Leyka Barbosa's presentation

 

 

Lupus and Women's Issues


Lupus and Women's Issues
with Anupama Shahane, MD, MPH
Assistant Professor of Clinical Medicine
Division of Rheumatology
University of Pennsylvania

More than 90 percent of people with lupus are women between the ages of 15 and 45. Having lupus increases your risk of other health problems that are common in women. Women living with lupus also face a variety of concerns from pregnancy to body image issues. Learn how to live better with lupus and cope with issues many women face after a lupus diagnosis.

Download the presentation (PDF)

 


Lupus and Overlapping Disease

Lupus and Overlapping Disease
with Mark Box, MD
Kansas City Internal Medicine, St. Joseph Health Center
 
Although lupus most often occurs alone, many people with lupus also have characteristics of one or more of the other connective tissue diseases, such as scleroderma or rheumatoid arthritis. This is called overlap disease. Learn more about common connective tissue diseases that may overlap with a lupus diagnosis and how they are treated and managed.

Download the presentation (PDF)


Lupus and Depression

Lupus and Depression

With Brian Poole, Ph.D., Associate Professor, Brigham Young University

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.

 

 

Download the PDF Presentation

Lupus and Your Heart

Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.

Presented by Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University 

Download the Presentation

Tools for Living Well with Lupus

Tools for Living Well with Lupus

With Bené E. Williams, LMSW 

Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.

Download the PDF Presentation

Lupus and Intimacy

Lupus and Intimacy

 

With Iris Zink, MSN, RN, ANP-BC, RN-BC 

Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.

 

Download the PDF Presentation

 

Lupus and the Skin

Lupus and the Skin

With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine

Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.

Download the PDF Presentation

Research Update

Research Update

With  Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston

 We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.

Download the PDF Presentation

 

Lupus: Making the Diagnosis

Lupus: Making the Diagnosis

With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s

Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.

Download the PDF Presentation

 

The Holistic Approach to Diet and Lupus

The Holistic Approach to Diet and Lupus

With Carrie Holley-Hurt, Holistic Health Coach

In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.

Download the PDF Presentation 

 

 

Reiki and It's Effects On Lupus

Reiki and It's Effects On Lupus 

With Bryce Goebel, LRMT, Empowering You to Heal Description

Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.

Download the PDF Presentation

 

Wellness Coach: A Healthy Approach to Lupus

Wellness Coach: A Healthy Approach to Lupus 

With Erica Daniel – CEO & Founder of Elnspire LLC, Speaker, Author, Coach

Committing to a healthy lifestyle can be overwhelming. Join Erica Daniel as she provides you with a process to work actively towards a better quality of health by providing support, encouragement, education, and tools.  

Download the PDF Presentation

 

Think Again: Coping with Lupus Fog

Think Again: Coping with Lupus Fog

With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007

As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.

Download the Presentation (PDF)

Cardiovascular Disease and Lupus

Cardiovascular Disease and Lupus 

With George Stojan, M.D.

Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.

Download the presentation (PDF)

 

Let's Talk about Lupus and the Eyes

Let's Talk about Lupus and the Eyes 

With Careen Lowder, MD, PhD, Cole Eye Institute; Cleveland Clinic

The latest in prevention, diagnostics and treatment options for a wide spectrum of eye conditions - from the routine to the complex. Learn why Cleveland Clinic Cole Eye Institute is ranked No. 1 in Ohio and No. 8 in the U.S. by U.S. News & World Report.

Download the presentation (PDF)

Supported by an unrestricted grant by: