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We’re here to help you live your best life with lupus.

Our health educators can help you find trustworthy information to answer your questions about lupus and how to cope with it.

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Our health educators are specially trained to provide people affected by lupus with non-medical counseling, disease education, information, and helpful resources. You have lupus, but you are not alone.

Let us know how we can help

Here are a list of the things that we're most commonly contacted for. Take a look through these before you get in touch with us to see if your question is answered.

I would like to request an education packet in mail.

If you’re looking for information on lupus, check out the National Resource Center on Lupus.

If you live in the United States of America and would prefer to receive a sample education packet in the mail, please send an email with your mailing address (name, street address, city, state, zip) to [email protected].

*Please note, that we do not provide bulk information packets for health fairs. You may request a sample packet by emailing your mailing address to [email protected] Or if you would like to order bulk materials, please see all of our printed educational materials in our online store.

I am newly diagnosed with lupus.

If you’re newly diagnosed with lupus and aren’t sure where to start, you’ve come to the right place. In fact, we’d love to help guide you through some of the information you will need without you getting overwhelmed. Get started at the National Resource Center on Lupus

For those who are newly diagnosed, we put together the Take Charge Email series, an 8-week email series that will walk you through the first few weeks of your lupus diagnosis and give you resources and tools you need. You can sign up here.

I am seeking resources for financing my lupus.

The Lupus Foundation of America does not provide direct financial assistance. If you need help financing your medical care, check out some resources listed on our NRCL: www.lupus.org/resources/financial-assistance-for-healthcare

The Expert Series covered it in a video about financing your medical care: www.lupus.org/resources/the-expert-series-financing-your-medical-care

To find out where your donations go, check out our annual report about our research, programs, and services: www.lupus.org/about-us/annual-report

I need help finding a doctor/provider/health care provider.

We work with many experts in a variety of fields from Rheumatology, Immunology, Dermatology, Nephrology, Childhood Lupus and more. For more information on how to find the right provider check out our resources:

I am looking for a support group.

Please search for an in-person support group near you:
www.lupus.org/resources/find-support-near-you        

Or join our online support community, LupusConnect: www.lupus.org/resources/lupusconnect

I need resources for caregivers for loved ones with lupus.

If someone you love has lupus, you may find our Toolkit for Caregivers helpful!

You may also find support from other caregivers within our online support community, LupusConnect.

I need help with health insurance or disability.

There are many options for health insurance. We've provided a list of your options at www.lupus.org/resources/health-insurance-options.

Open enrollment for health insurance starts in November each year. So, plan ahead and go to Healthcare.gov to check out your options.

If you need information on disability, look at our resources for applying for disability.

*Our health educators cannot assist with your insurance or disability application.

Still need help?

Contact a health educator to help you find trustworthy answers and resources on lupus.  

Online

Fill out this form, and our health educators will provide answers

Phone

Call us at 1-800-558-0121

Meet Our Health Educators

Our health educators are lupus education experts, trained to help you find the most credible, up-to-date answers to your questions about lupus.

Lauren

Lauren is a health educator at the Lupus Foundation of America, and holds a license as a Registered Nurse.

Leticia

Lety is a bilingual (Spanish/English) health educator at the Lupus Foundation of America with a Master’s Degree in Public Health and is a Certified Health Education Specialist (CHES).

Ashley

Ashley is a health educator at the Lupus Foundation of America with a Master’s Degree in Health Education and is a Certified Health Education Specialist (CHES).

Join Our Support Community

Our support forum, LupusConnect, lets you be in touch with others and find support for coping with the challenges of lupus.

Sign Up Now