Covid-19: The Latest | Florida
Everything you need to know in one place. Stay updated on all the latest Covid-19 news as it impacts those with lupus from resources, news, and programming. We will be keeping you updated and provide virtual programming to get you through these unprecedented times. You are not alone.
We know how difficult these unprecedented times are for all of you living with lupus and your loved ones. We are committed to walking by your side every step of the way. We will use this page, social media, and emails to keep in constant contact. In times like this, it is even more important than ever that we come together as a community. We are working on developing virtual programs and content to keep everyone informed, connected, and even having some fun while relieving some stress and loneliness through these difficult times. If you need answers, we will be here to provide them. Things are changing all around us but one thing that will remain the same, together we will get through it.
We are here. Always.
Updated: 6/24/2020 12:27 pm
A recent survey conducted by the Lupus Foundation of America via Qualtrics explores the impact of the coronavirus on people with lupus and whether they faced access issues to medications, such as hydroxychloroquine, during the months of March-May of the coronavirus (COVID-19) pandemic.
In a new survey conducted by the Lupus Foundation of America, 55% of respondents taking antimalarials to manage their lupus reported having difficulty accessing their prescription for hydroxychloroquine or chloroquine, during March-May 2020 of the coronavirus (COVID-19) pandemic.
Read more about the findings from our survey to learn more about the impact of the coronavirus on people living with lupus.
Read about how people with lupus can use telehealth and telemedicine, the practice of providing health-related services, and patient care using technology. Read more.
Follow these CDC recommendations to protect your health and lower your risk for infection when your local area lifts quarantine restrictions around COVID-19. Read them here.
In a recently published letter, lupus experts discuss the current facts, uncertainties and recommendations for people with lupus during the COVID-19 pandemic. Read more.
Analysis of initial data on lupus and COVID-19 from the Global Rheumatology Alliance are now available. Of the reported cases in the registry, 17% have lupus.
The CDC has recommended that people with serious underlying health conditions stay home and avoid other people as much as possible. Lupus is a serious underlying health condition that could lead to a compromised immune system. Read more.
If you have lupus, you are at higher risk for infections like the coronavirus (COVID-19), as well as serious complications related to infections. That is why it is not only important to protect yourself with COVID-19 but to also know what to do if you began experiencing symptoms of the virus.
There is no evidence that taking hydroxychloroquine (Plaquenil) is effective in preventing a person from contracting the coronavirus (COVID-19). People with lupus should follow the guidance of their doctor and the safety guidelines being issued by the CDC.
Lupus is a chronic autoimmune disease — that means that the immune system is dysfunctional and attacks ones healthy tissue. This can make the immune system less effective at fighting infections. Medications that suppress the immune system — which people with lupus often take — can also limit their body’s ability to respond to infections. As a result, people with lupus are less able to fight off bacteria and viruses, like COVID-19. When people with lupus do get sick their illness may also trigger a lupus flare. People with lupus may also have other conditions that put them at higher risk for serious illness from coronavirus such as diabetes, cardiovascular disease, kidney disease, and a weakened immune system.
Our Health Educator Network—health-care professionals and lupus specialists who provide individualized answers—have seen their inquires triple in the last week. The following are questions they’ve been frequently asked and their answers. Read more.
Due to the coronavirus (COVID-19), people who have been prescribed hydroxychloroquine (Plaquenil) and chloroquine (Aralen) to treat their lupus and other autoimmune diseases are experiencing difficulties getting their prescriptions filled.
Here are some tips on what to do if you have a prescription for hydroxychloroquine or chloroquine.
The Lupus Foundation of America is working tirelessly to ensure that people with lupus are able to access these medications, and last week partnered with the Arthritis Foundation to send a letter to each state's Board of Pharmacy urging them to take action to protect access to hydroxychloroquine and chloroquine for people with lupus and rheumatoid arthritis.
Importantly, the letter was delivered to other key stakeholders, including each U.S. state's governor, major health plans, national retail pharmacies, and the trade associations who represent these organizations as well as those representing pharmacists and health professionals.
To date, the Florida Board of Pharmacy has not issued any publicly-available guidance related to hydroxychloroquine or chloroquine. We will continue to take action and we will keep you informed.
The Lupus Foundation of America has been working to address the shortage of hydroxychloroquine for lupus patients. In addition to advocating for people with lupus to state and federal governments, state boards of pharmacy, and drug manufacturers, we have been working to identify pharmacies that have supplies of hydroxychloroquine that can be accessed by people with lupus. If you have exhausted your efforts to get your prescription refilled including utilizing our recent tips, here are some additional options.
- Compounding pharmacy with Hydroxycholorquine
- Services all 50 states
- Prices are a $1.45/ pill, plus shipping
- Does not accept insurance
- Have your doctor fax in your prescription
Questions? Reach out here: www.empowerpharmacy.com/contact
- Has hydroxychloroquine in stock for people with lupus or rheumatoid arthritis diagnosis.
- They service 40 states (view the list on their website).
- Hydroxychloroquine prices start at $40 for 30 pills (200mg).
- They are only filling 30-day supplies at this time.
- They do not take insurance.
- You can use coupon code Lupus20 for a one-time savings of %20
- Has brand name Plaquenil and hydroxychloroquine for patients with a verified lupus diagnosis.
- They service all 50 states and take all insurance.
- They will fill up to a 90-day supply
- Shipping is free.
- Currently has hydroxychloroquine in stock and they’ve created a direct landing page to order.
- They do not accept insurance.
- Prices start at $42 for 30 pills (200mg).
- They will fill up to a 90-day supply.
State Regulation of Online Pharmacies
Online pharmacies are required to follow applicable laws in both the state where they are based and in the state where the patient lives. In instances where the laws differ between the two states, standard practice is for the online pharmacy to abide by the more strict laws to ensure they remain in compliance in both states.
As many states have taken action to regulate the prescribing and dispensing of hydroxychloroquine, we recommend checking http://www.lupus.org/StateAction before placing an order on any online pharmacy to find out what your state has done and if it will affect your prescription.
Find food assistance, help paying bills, and other free or reduced cost programs, including new programs for the COVID-19 pandemic. Find them here.
For the first time, people with lupus on Medicare will be able to receive infusions of Benlysta at home and will not be required to go to a physician’s office or another facility to get their infusions. Read more.
GSK Nurse Call Center
- Call 877-423-6597
- Trained nurses are available Monday through Friday, 8 AM- 8 PM ET and can answer questions about products.
- Note, nurses will direct patients to their physician for any medical advice related to disease, treatment or referrals.
Additional Patient Inquiries: Contact your provider or pharmacy directly. If additional information is needed, visit GSK For You or contact the GSK Response Center at 888-825-5249 Monday- Friday, 8:30 AM - 5:30 PM ET
Health Care Professional Inquiries: Contact GSK Medical Information: https://www.gskusmedicalaffairs.com/ or call 877-475-6448 (Monday-Friday, 8:30 AM - 5:30 PM ET) for medical information. Product-specific information is only available to healthcare providers.
Travis Smith, Director of Government Relations for the Lupus Foundation of America, provides an update on recent efforts to expand the supply and access to hydroxchloroquine and choloroqine for people with lupus. He also discusses a new online resource developed to provide state-by-state actions and policies for fulfilling prescriptions of the medications.
The Lupus Foundation of America is leading efforts to tackle the shortage of hydroxychloroquine (Plaquenil) and chloroquine (Aralen) that developed after reports these drugs might be effective for treating people seriously ill with COVID-19. Pat Wildman, Lupus Foundation of America Vice President for Advocacy & Government Relations, gives a status report on the Foundation's actions to date to ensure a supply of these drugs for people with lupus.
Dr. Alisha Blazer, a Rheumatologist at New York University's Langone Medical Center, and a member of the Lupus Foundation of America's multidisciplinary expert Medical-Scientific Advisory Council provides the answers to the most-asked questions about lupus and coronavirus. This update was recorded on March 20, 2020.
The latest news in the state of Florida on Covid-19 can be found here.
List of resources for Floridians who have been impacted by coronavirus pandemic.
We know these are scary times but please also know you are not alone. Although our in-person support groups are suspended until further notice we will be here for you every step of the way. Find out how.
Don't miss the opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home. Participate in several or just the one that most interests you. Learn more.
#TalkAboutIt is our new Q&A series where we feature lupus warriors, health care professionals, caregivers and other experts in their field.
Take a step in the month of May for the over 100,000 Floridians living with lupus.
Delivery companies like GrubHub, Postmates and UberEats are offering no-contact delivery to your home from your favorite restaurants. Some are even offering free delivery.
Some stores like Target (each Wednesday they have reserved the first hour of shopping to support vulnerable guests including the elderly and guests with underlying health conditions) are offering special shopping hours for elderly and those at-risk like lupus patients. Check out stores near you and their policies.
Netflix Party is a gathering of a groups of friends or family where you can get together virtually and watch your favorite Netflix titles on your computers at the same time. Grab your popcorn and enjoy movie night! The extension also comes with a chat room, so you can share your reactions to the programs as you watch.
Here are 33 National Park Tours you can take virtually from your home.
With masses of people stuck at home amid coronavirus, the popular meditation and mindfulness app, Headspace, is offering free content to help manage stress and anxiety.
Live cam located underneath the aurora oval at the Churchill Northern Studies Center in Churchill, Manitoba. Other live streams are available on their website explore.org.
If pain or fatigue-or both- have you struggling just to get through the day, working out is likely the last thing on your mind. But exercise, especially gentle strength training, can improve some lupus symptoms. Read more here.
Online learning sites like Coursera and edX are offering free and low-priced courses taught by instructors from the best universities in the country. Learn more about them here.
Story Time from Space - While in space, astronauts are videotaping themselves reading these books to the children of Earth.
Staying indoors to keep safe and healthy is imperative but it doesn’t have to be boring or detrimental. After your children have finished with their e-learning tasks, click here to see what you could do with them.
Si usted tiene lupus, tiene un mayor riesgo de contraer infecciones como el coronavirus (COVID-19), además de complicaciones graves relacionadas con las infecciones. Es por eso que no solo es importante protegerse del COVID-19 sino también saber qué hacer si comienza a experimentar los síntomas del virus.
Lea algunas de las preguntas mas frecuentes del coronavirus y lupus.
Le instamos a que siga estas recomendaciones de los Centros para el Control y la Prevención de Enfermedades (CDC) para proteger su salud y reducir su riesgo de infección. Lea mas aqui.
Aquí hay algunos consejos sobre qué hacer si usted tiene una receta para la hidroxicloroquina o cloroquina.
Encuentre toda la informacion y noticias actualizadas sobre el coronavirus y el lupus incluso las preguntas y respuestas sobre la Hidroxicloroquina (Plaquenil) y el Coronavirus (COVID-19) :
Lea algunos consejos de la Fundacion Americana de Lupus Lupus sobre cómo las personas con lupus pueden mantenerse sanos en medio de las preocupaciones sobre el coronavirus.
Esto es parte de nuestra cobertura continua del coronavirus y cómo afecta a quienes viven con lupus. Lea mas aqui.
Lea mas informacion sobre como manejar el estres y la salud mental en estos tiempos de incertidumbre.
Recursos en la Florida para la pandemia del Coronavirus