Lupus Awareness Month | Philadelphia Tri-State
This May, celebrate Lupus Awareness Month! Did you know that 73% of Americans, ages 18-34, those most at risk for the disease, have never heard of lupus or know little or nothing about lupus beyond the name? We need more people to understand the importance of lupus and will be conducting activities this month to spread awareness and raise funds for much-needed research.
What is Lupus Awareness Month?
Lupus Awareness Month is a globally observed month celebrating the many advancements in lupus research, while acknowledging that we must still fight every day for a cure.
Public awareness of lupus remains low. Nearly two-thirds of the public knows little or nothing about the disease beyond the name. We need your help to change that. Join the growing number of communities that go purple in May!
Lupus has the power to inflict physical, emotional, and financial strain- all the more reason to end its devastating impact. Educate yourself about this disease this Lupus Awareness Month, and share what you learn with others.
On average, people with lupus take eight prescription medications to manage all of their medical conditions, including lupus. Sometimes, side effects from medications like steroids can cause long-term damage, so researchers are looking to provide alternative medications.
Between 15 and 60 percent of people with a chronic illness will experience clinical depression. Caring for both the body and mind is crucial for people living with lupus.
A person living with lupus incurs an average medical and loss of productivity cost of roughly $20,000 per year. This can increase to $63,000 per year if he or she has kidney complications.
Jeweler Kendra Scott gives back, as 20% of purchases made with the code GIVEBACK-1ETG will go back to the Philadelphia Tri-State Chapter. Purple earrings, bracelets, necklaces, and more!
This global day of observance is observed annually on May 10 to recognize the 5 million people across the world living with lupus.
Put on Purple on May 21 and tell people WHY! Let's raise awareness of lupus together.
Join us on May 25 at Green Valley Country Club for a socially-distanced golf tournament!
We're sharing 1 story per day of members of the local lupus community. Want to join? Submit your story today to show others they're not alone in this lupus journey.
Learn more about lupus-related issues during lunch as we interview a local expert. Check out our Facebook page to tune in. Dates to be announced.
Tonya: "I sometimes feel like a walking pharmacy"
I was diagnosed with Lupus when I celebrated my 22nd birthday. I was an invalid for almost 8 months. My body wouldn’t retain anything but Pedialyte. I had to roll on the floor to crawl to the bathroom. I had no strength or ability to stand on my own. I was miserable in a room for months with barely no visitors. My family and I had no idea what lupus was. But no one talked about it, because no one knew anything about it.
Once I changed rheumatologists, I was put on steroids, Methotrexate and Plaquenil, which allowed me to resume working and living a pretty normal life. I got married, had one daughter and experienced early menopause because of lupus, and lost the ability to have any other children. As I climbed the corporate ladder, I excelled in my career and decided to finish college. The month after I received my Bachelor’s Degree, I was terminated from my job because I’d used all of my FMLA time. This was a huge pill to swallow and my life has never been the same and I struggle daily with new diagnoses, side effects and symptoms from the medications I’m on. I sometimes feel like a walking pharmacy. But I will continue to fight and advocate for a cure!
A donation in honor of Lupus Awareness Month shows us that you hear voices of lupus champions everywhere and seek to amplify them. Earn a pair of purple Goodr sunglasses with a donation of $50 or more! The money we raise goes towards programs and services, like self-help courses and advocacy days, as well as research initiatives at the local and national level.Make a gift today