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National Lupus Advocacy Summit

Learn. Connect. Advocate.

Join lupus warriors from all over the country for the largest lupus advocacy event of the year in Washington, DC! Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of their fellow lupus warriors and advocate for increased research funding, ensure access to care and advance policies to improve the lives of all people with lupus. Don’t miss your chance to turn Capitol Hill purple! Stay tuned for 2025 dates.

What you'll do at the National Lupus Advocacy Summit:

Each year, the National Lupus Advocacy Summit brings together the entire lupus community in pursuit of our shared goal: a world without lupus. See our 2024 Recap for more!


Hear firsthand from the brightest minds researching and treating this disease and receive training on how to advocate for yourself and others with lupus throughout the entire year.


There's no other event in the world that brings together as many people affected by lupus as the Summit. Be surrounded by those who understand your challenges and can help you manage them.


Meet with your members of Congress to tell your lupus story and urge them to join our fight against this terrible disease by supporting policies to improve the lives of all people affected by lupus.

The National Lupus Advocacy Summit is the keystone of our comprehensive advocacy program that has generated more than $768 million in federal funding for lupus research in the last five years.

National Lupus Advocacy Summit

We have closed registration for our 2024 National Lupus Advocacy Summit. Stay tuned for other ways to make your voice heard by signing up to be an advocate.

Overview of In-Person Summit Events
Sunday, May 19

6:00–7:00 pm
Welcome Reception at the JW Marriott (optional) 
Join us at the JW Marriott for an informal evening reception with Summit attendees and Lupus Foundation of America staff. Receive your materials for the Summit and enjoy light refreshments as you get to know lupus advocates from across the country.

Monday, May 20

8:30–9:30 am
Registration Opens and Breakfast 

9:30-9:45 am
Welcome Remarks 

9:45-11:00 am
The Promise of Lupus Treatment Development - Panel
Clinical research is critically important for improving outcomes for people living with lupus. This session will highlight the exciting work taking place in lupus drug and treatment development, including the vital roles people living with lupus play in making new treatments possible.
Joan T. Merrill, MD (Moderator)

11:00–11:15 am

11:15 am–12:30 pm (Breakout)
Advocacy Works - The Importance of Federal Lupus Research and Education Programs - Panel
Lupus advocates have helped to generate nearly $800 million over the last five years alone to establish and support lupus research and education programs at federal agencies. During this session, attendees will learn about the important work underway within the federal government, demonstrating not only why advocacy is so important, but also how it is making a difference.
Karen Costenbader, MD, MPH (Moderator)

11:15 am– 12:30 pm (Breakout)                                                                                                                  Making Yourself a Priority

Led by the Foundation’s Health Education team, this interactive breakout session focuses on self-care and will share tools and resources that are available to help people living with lupus exercise self-care, helping to ensure their physical and emotional needs are met, which is especially important for people with lupus. (Please Note: separate registration required as space is limited, more details to come!)

12:30 –1:30 pm

1:30–2:15 pm (Breakout #1)
Advocacy 101 (new advocates)                                                                                                                   Meeting with members of Congress and visiting Capitol Hill for the first time can be intimidating! This session, designed for first-time Summit attendees, will ease those fears and reassure lupus warriors of the power in their advocacy. The session will review all of the basics of advocating on Capitol Hill, from how to navigate the Congressional office buildings and where to eat lunch on the Hill, to what to expect in the Hill meetings and the role each person plays in those meetings.

LFA Expo & Advocate Networking (returning advocates) 
During this time, Summit and Congressional meeting veterans are invited to visit the Exhibit Hall to engage with our partners and learn about the Lupus Foundation of America programs that can help improve the lives of people with lupus. This also is a great opportunity to network with other lupus advocates or to simply take a break!

2:15–3:00 pm (Breakout #2)
Advocacy Year-Round (returning advocates)
While Advocacy Day on Capitol Hill is critically important, advocacy is a year-round activity and there are many additional opportunities for lupus warriors to make a difference during the other 364 days of the year. During this session, participants will learn more about these opportunities, including about Congressional district meetings, how to advocate virtually, participate in local and state advocacy and how they can help grow the lupus advocate network, which is more than 40,000 strong across the country.

LFA Expo & Advocate Networking (new advocates) 
During this time, those who participated in the Advocacy 101 breakout session are invited to visit the Exhibit Hall to engage with our partners and learn about the Lupus Foundation of America programs that can help improve the lives of people with lupus. This also is a great opportunity to network with other lupus advocates simply take a break!

3:00-3:45 pm (Full group Session)
Prep for the Hill
The Foundation's Advocacy & Government Relations team will discuss the issues we will be taking to Capitol Hill the next day, prepare you to tell your story in the most impactful way, and make sure you are fully prepared for three successful Congressional meetings the following day.

3:45–4:45 pm
Closing & Delegation Prep
State delegations will meet to coordinate and plan their Congressional meeting strategies for the meetings on Capitol Hill on Tuesday. Foundation staff will be present to answer any questions and help you practice.

6:00–8:00 pm
Lupus Heroes Reception 
Join us as we honor our advocates, Ambassadors, and all of those who have made a difference in the fight against lupus. During the reception we will recognize lupus heroes, including presenting the Sandra Raymond Advocate of the Year Award and the Barlin Family of the Year Award. Refreshments will be served.

Tuesday, May 21

7:30 – 9 am Breakfast (Optional)

9 am – 4 pm Congressional Meetings 

Meet with your members of Congress on Capitol Hill to tell the lupus story and urge them to support policies that will advance the fight against lupus. Lunch on your own. Capitol photo.

3 – 5:00 pm Recap at the JW Marriott (Optional) 

Recap your day with Foundation staff and your fellow advocates, complete your Congressional Meeting Reports, and grab a snack before heading back home.

Congressional Meetings

The Foundation will use the address you provide when registering to schedule meetings for you with your three members of Congress. Please do not attempt to schedule your own meetings. Click here to find out who represents you in Congress.

Traveling with Lupus

If you are living with lupus and planning to attend the Summit, check out our guide to traveling with the disease and this helpful packing list as you prepare for your trip to Washington. If you have specific nutritional needs or require ADA hotel accommodations, please contact Ameenah Habib after you have registered for the Summit. 

An image of the US Capitol dome against a blue sky with a white and purple stamp reading "Turn Capitol Hill Purple"

We understand that traveling to Washington can be costly. It's important to us that we provide advocates every opportunity to be a part of this powerful event, and that's why we developed this fundraising guide to help you offset the cost of attending the Summit. The guide will help you budget for your trip, leverage the power of crowdsourcing, and much more.

Download the Guide

Capitol Sponsor


Summit Sponsors

Summit Sponsors 2024

Exhibit Sponsors 

Cartesian Therapeutics
Dr. Reddy's Laboratories, Inc.
Lupus and Allied Diseases Association, Inc.
Mallinckrodt Pharmaceuticals

For questions about the National Lupus Advocacy Summit, please contact Sara Chang at