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COVID-19 and Lupus

The Lupus Foundation of America, Philadelphia Tri-State Chapter is taking precautions due to the national outbreak of COVID-19 (coronavirus). Stay tuned for updates about Chapter activities and find more resources here.

We know these are challenging times and we are here for you. See additional resources below for your local health department, financial help, and making the best of this tough situation.

From the Lupus Foundation of America National Office

Resources from the National Office

April 8, 2020 - We've identified a new resource for those people having trouble filling their Plaquenil prescriptions: online pharmacy Honeybee Health. Read the details.

April 8, 2020 - We are proud to support the Global Rheumatology Alliance’s COVID-19 Registry. This important international effort will collect de-identified information from clinicians and people with rheumatic diseases, such as lupus.Read more and access the registry here.

April 4, 2020 - There is no evidence that taking hydroxychloroquine (Plaquenil) is effective in preventing a person from contracting the coronavirus (COVID-19). Read more.

April 3, 2020 - Now you can find out what your state is doing to ensure people with lupus are able to access hydroxychloroquine and chloroquine while they are being investigated for use in treating COVID-19. We're tracking the actions of every state.

April 1, 2020 Watch the video of a conversation with Pat Wildman, Lupus Foundation of America Vice President for Advocacy & Government Relations. He gives a status report on the Foundation's actions to date to ensure a supply of these drugs for people with lupus.

April 1, 2020 - New resource: Tips on what to do if you have a prescription for hydroxychloroquine or chloroquine and are experiencing difficulties getting your prescription filled.

How does the coronavirus affect people living with lupus?

If you have lupus, you’re at higher risk for infections like the coronavirus, also known as COVID-19. Some people with lupus may also be at risk for more serious complications from catching the coronavirus.

What the coronavirus means for people with lupus

¿Qué significa el coronavirus para las personas con lupus?

From the Chapter

March 12, 2020 - The Lupus Foundation of America, Philadelphia Tri-State Chapter is taking precautions due to the national outbreak of COVID-19 (coronavirus). As of March 12, 2020, our office is working remotely. Should you need to reach us please call 215-517-5070 or email [email protected]

Additionally, we are evaluating all in-person events for the next 30-60 days. Watch for continued updates regarding upcoming events.

Effective immediately, we will convert all in-person support groups to a digital format. Please contact your support group leader for specific details regarding your support group. Our goal is to decrease opportunities to spread COVID-19. The health and well-being of our constituents is of the highest priority.

We urge you not to panic, but rather, to take efforts to protect yourself and turn to reliable sources to stay informed. The U.S. Centers for Disease Control and Prevention (CDC) has information for people at higher risk of serious illness from COVID-19. The Lupus Foundation of America has articles about the coronavirus and lupus. See here for recommendations from the American College of Rheumatology. If you have any questions, concerns, or need assistance in navigating life with lupus, please feel free to email the Chapter office at [email protected] or call 215-517-5050. Pay close attention to Chapter emails, lupustristate.org, and @lupustristate on social media for updates.

Walk Update

We are following CDC guidelines and will monitor each walk closely. Your Walk page will remain open and you can still play your critical role in helping us end lupus. It is our hope that you will continue to fundraise and spread awareness of lupus in your community by sharing your story along with your fundraising page via email and social media.

The Walk to End Lupus Now Central Pennsylvania, originally scheduled for April 19, 2020, has been postponed. Details for the new date will be shared as soon as the they are finalized.

The Walk to End Lupus Now South Jersey, scheduled for May 17, 2020, and Walk to End Lupus Now Delaware, scheduled for June 14, 2020, are currently scheduled outside of the CDC recommended 8-week timeline. We will closely monitor this event and provide additional details as they are available.

Walk Information
Living Well with Lupus Seminar Update

The Living Well with Lupus Seminar Delaware, scheduled for March 28, 2020, is now rescheduled for October 3, 2020. The Living Well with Lupus Seminar Lehigh Valley, scheduled for June 6, 2020, is still scheduled as planned but we continue to monitor this event closely and modify as needed.

Seminar Information
Support Group Update

There will be no in-person support groups until otherwise notified. See below listing for our support groups for details on how to participate in a support group teleconference or contact your support group leader for additional information.

Support Group Listing
Food in the Time of COVID-19

Philadelphia has a number of well-established programs tasked with alleviating food insecurity that have stepped up their efforts to adapt to the additional needs precipitated by this pandemic.

Click here
Help Support Medical Personnel

Volunteers across the country have made more than 10 million masks for healthcare providers. See how you can help!

Note: Fabric DIY face masks should not be the first line of defense for healthcare providers, as a CNN article notes: "The masks are not intended to replace N95 respirators, but the idea is that cloth masks could help those respirators last longer at a time when healthcare workers are being asked to reuse masks."

How to Make a Mask
Relieve Tension & Find Joy
Meditate

Meditation is an effective way in easing anxiety. Try out the following apps to see what works for you. They offer ways to get rest, get moving, and control your emotions during this time.

Or, livestream a meditation or yoga session with a local trainer.

Hike

Use caution when going outside and move away from others on trails.

You can also tour a National Park virtually!

Exercise

Movement- no matter how big or small- can elevate your mood and make you feel great.

Other Hobbies During Social Distancing

This too shall pass. Adapting to this situation will make it easier to accept. Try to find joy during this challenging time.