Providing Answers, Support and Hope in Delaware, New Jersey and Pennsylvania
Virtual Living Well with Lupus Symposium
The Living Well with Lupus Symposium is the Philadelphia Tri-State Chapter's signature educational event, featuring experts from the Tri-State area.
The 23rd Annual event will take place Saturday, April 29th, 2023 starting at 9AM.
- Lupus 101 by Catherine Blackwell, GSK
- How to Create a Flare Plan by Lynnai Jay
- Lupus and Exercise by Michael Rankin
- Lupus Research Update by Dr. Susan Manzi
- Get Uncomfortable: Lupus Nephritis by Dr. Alvin Wells
- Nutrition: Food Triggers by Tanya Freirich
- Get Ready for Lupus Awareness Month by Adrienne Randall
Check out he recordings of past year's Living Well with Lupus Symposium below and on our YouTube Channel.
Check out recordings from the 22nd Annual Symposium by clicking on the session title.
Learn how to hone the power of your story and how you can use it to advocate for elected officials at the state and federal level to join our fight against lupus. Hear how you can be an advocate and support research efforts to find a cure, identify new treatments and understand what causes lupus.
Dr. Catherine Sims will give us an deep dive in Women's Reproductive Health specifically pertaining to lupus and other autoimmune conditions. She will cover topics like, birth control, fertility, family planning, menopause, medications and more.
Learn from a lupus expert about the basics of lupus. Whether your are newly diagnosed or have been diagnosed for years, this an overview and refresher for everyone!
Learn more about Lupus Nephritis and what’s on the horizon with Aurinia Pharmaceuticals!
Do you know what questions to ask your pharmacist? Here's your chance to ask anything you want! Join us in this session to learn how to better leverage your relationship with your pharmacist and how to better manage your medications.
This presentation will discuss the latest understanding on the immune system in SLE, different approaches to SLE and treatment goals, and how to interpret clinical measures. Brought to you by AstraZeneca!
Helping you navigate a chronic condition; we will explore some tips for enhanced understanding where to start and what questions to ask your health care provider related to insurance coverage when you area living with a chronic condition.
Elissa Lewin, founder of Nancy's House, a program that promotes and supports self-care for caregivers, will provide the how's and why's of taking care of you. Come enjoy some quick and easy self-care techniques that you can fit into your busy life
Close out the program with us and participate in a mindful meditation session to wrap up the program!
Aurinia exists to make a difference. From the earliest days of the company, they’ve had a goal of changing the course for patients in disease areas that have been historically challenging to address.
Thank you to our dedicated sponsor, the Wawa Foundation, for your continued support!
Us in Lupus is designed to give you more than just the facts about lupus. It's a resource designed by GSK that offers people living with lupus the skills, tools, and confidence they need to help them face lupus.
AstraZeneca aims to bring scientific advancements to the lupus community and challenge the boundaries they’ve had to accept for too long.
Check out recordings from the 21st Annual Symposium by clicking on the session title.
Dr. Aruni Jayatilleke of Temple Rheumatology will present an overview of lupus for those who are newly diagnosed or loved ones seeking information about this disease.
Dr. Marianthi Kiriakidou of Jefferson Rheumatology will present a session on the link between lupus and genetics.
Thank you to our event sponsor, Aurinia! Dr. Michael Levin of Temple Health presents on the prevalence, diagnosis, and treatment of lupus nephritis.
Dr. Joy McNeil, a psychologist from North Carolina, discusses trauma as a trigger for lupus and its flares, and how to cope with this.
Though 90% of people with lupus are women, 10% are men, who struggle with the unique challenges of living with this disease. Cindy Fiske of GSK/Us in Lupus will present this session.
Monique Gore-Massy, a longtime lupus advocate, will discuss her life with lupus and how she moves forward in a mission moment.
Thanks to everyone who attended the virtual 20th Annual Living Well with Lupus Symposium! Check out recordings from the Symposium by clicking on the session title.
Supporting someone with lupus often means learning a lot about a disease that is mysterious to so many. How do you best support your loved one with lupus while caring for yourself?
Thanks to our sponsor, GSK and Us in Lupus! Patient Engagement Liaison Cindy Fiske discusses the basics of lupus and how to make a plan that best tracks your disease activity that works for you, as well as covering Us in Lupus, an informative platform that provides free resources to help you better manage your lupus.
Many people say the first symptoms of lupus that led them to the doctor were visible, like hair loss and skin rashes. This panel explores how self-image evolves when one lives with lupus. How does lupus play a part in your relationship with yourself, and what are ways one can improve their self-image?
It's never to late to educate yourself on bone health! Dr. Linda Brecher of Rowan Medicine will cover the ins and outs of bone health and how you can provide the best care for your body.
Thanks to our sponsor Aurinia Pharmaceuticals! Learn more about lupus nephritis, along with an overview of the ALL IN for Lupus Nephritis program. Recording coming soon.
Lupus disproportionately impacts women of color, particularly Black women, and the implicit and explicit bias within the health care system may prevent them from receiving a timely diagnosis and the best care possible. In this panel discussion discusses efforts to close this gap through education, awareness, and advocacy.
Local physicians in the Greater Philadelphia area discuss the future of medicine for lupus, including drug development, treat-to-target, and more, as well as insights into COVID-19 and the COVID-19 vaccine.
Thanks to everyone who attended the 19th Annual Living Well with Lupus Symposium! Whether you're new to lupus, have lived with it for decades, or somewhere in the middle, we're glad you could join us for a day of education. See presentations below.
Presenter: Cindy Fiske, Patient Engagement Liaison at GSK
Presenter: Dr. Roberto Caricchio, Temple Health
Presenter: Tom Giordano, Pond Lehocky Stern Giordano
Presenter: Dr. Roberto Caricchio, Temple Health
Presenter: Dr. Lawrence Brent, Temple Health
Presenter: Dr. Arundathi Jayatilleke, Temple Health