Lupus Across America: Share Your Story

Show lawmakers what's at stake for people with lupus.

Submit your story of what living with lupus is like and how lupus research funding, public health programs, and access to care have made a difference.

Share your story of how federal funding and lupus programs have impacted your life.

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As someone who has been affected by lupus, you know firsthand that this disease takes a deep toll. You know how difficult it is to receive a diagnosis, manage symptoms that up-end daily life, and find and afford a treatment plan that improves quality of life. You also know how new research breakthroughs, expanded clinical trials, and better tools and resources offer hope and can change lives.

Federal funding makes all this progress possible, contributing to public health programs, improved access to care and nearly every breakthrough in lupus research.

But federal funding for lupus programs isn't guaranteed. The future of these programs depends on lawmakers understanding what's at stake for people with lupus and their loved ones.

That's where you come in.

Lawmakers hear statistics all the time. What moves them is hearing from their constituents – you. By sharing the experiences of people from every state and Congressional District, the Lupus Foundation of America’s Lupus Across America campaign helps members of Congress understand how lupus affects their constituents and why continued federal investment in lupus research, public health programs, and access to care is so important.

Share your story through the form below and show elected officials that behind every policy decision are real people whose lives depend on continued progress in lupus research, care, and treatment.

Your story matters

First Name

Last Name

What is your closest connection to lupus?

State/Province

ZIP/Postal Code

Birth Year

Age Diagnosed

Race and/or Ethnicity

Which of the following have made a difference on your lupus journey? (Select all that apply)

Your answers help demonstrate how lupus programs and events make a difference.

Lupus community events such as the Walk to End Lupus Now®, Lupus & You Empowerment Conferences and National Lupus Advocacy Summit

Lupus research, including the availability of lupus-specific treatments, advances in care, and RAY® Lupus Registry

Lupus education and support programs, such as our self-management app SELF and National Resource Center on Lupus – the go-to online source for lupus information

Lupus awareness programs, such as Be Fierce. Take Control. and Lupus Awareness Month

Health programs such as Medicare, Medicaid, the Health Insurance Marketplace (Affordable Care Act) and programs available to members of the military and veterans

Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI)

Other…

Tell us your story and include how any of the programs listed above have helped your lupus journey.

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Must be JPG or PNG and include the person the story is about.

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The Lupus Foundation of America reserves the right to edit content to ensure it is appropriate. If you have questions or need help submitting your story, please email us at advocacy@lupus.org.

Did you know?

Lupus programs at the National Institutes of Health, the Centers for Disease Control and Prevention, the Office of Minority Health and the Department of Defense have contributed to nearly every breakthrough in lupus research.
Federally-funded public health programs have led to the creation of indispensable resources like the Lupus Foundation of America's National Resource Center on Lupus and SELF app that help people with lupus manage their care and improve their health.
Medicare, Medicaid and health plans offered through the Affordable Care Act Marketplace are the primary source of health insurance for nearly half of all Americans living with lupus.