Providing Answers, Support and Hope in Missouri, Southern Illinois, & Kansas
Lupus typically affects young women during a time in their life when they may be preparing for college, launching a career, getting married, or starting a family. In other words, life is busy, and dealing with a chronic disease like lupus probably wasn’t part of the plan.
Join us for this inspiring and informative virtual retreat for young women aged 19-30 living with lupus to learn how to take control of your health and well-being while meeting and sharing with others your age with lupus.
Agenda & Presenters
MEET OUR PRESENTERS
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Welcome
9:00 a.m. – 9:10 a.m.
Amy Ondr
President & CEO, Lupus Foundation of America, Heartland Chapter
Taking an Active Role in your Lupus Care
9:10 a.m. – 10:00 a.m.
Joyce Chang, MD
Pediatric Rheumatologist, Boston Children's Hospital & Assistant Professor of Pediatrics, Harvard Medical School
Communicating with your health care team about the good, the bad, and the ugly of lupus is critical to living well with the disease. Join Dr. Joyce Chang as she discusses ways you can take an active role in your lupus care. Learn how to survey your skill set, stick to a treatment plan, effectively problem-solve, and plan ahead for school, work, and play.
Understanding and Managing Lupus Nephritis
10:00 a.m. – 10:45 a.m.
Joanne Mitchell-McLaren, RN, BSN, MSN, NP
Patient Engagement Liaison with GSK
Lupus nephritis is an inflammation of the kidneys caused by systemic lupus erythematosus. As many as 50% of adults and 80% of children with lupus will go on to develop lupus nephritis. Joanne Mitchell-McLaren, RN, BSN, MSN, NP, Patient Engagement Liaison with GSK will discuss the important role of the kidneys and help you understand lupus nephritis and how to effectively manage the disease.
Six Pillars of Health, Happiness, and Healing + Cooking Demo
10:45 a.m. – 11:30 a.m.
Kathy Levin, RDN, CDCES, DipACLM
Nutritiously Simple
Join Registered Dietician, Kathy Levin to learn how you can replace unhealthy behaviors with positive ones — such as eating healthfully, being physically active, managing stress, avoiding risky substances, getting adequate sleep and having a strong support system. Kathy will also share some of her delicious plant-based recipes and show you how to prepare them in a live cooking demonstration. All registrants will receive the recipes in advance via email so you can follow along.
Break 11:30 a.m. – 12:00 p.m.
Reproductive Health in People with Lupus
12:00 p.m. – 12:45 p.m.
Catherine Sims, MD
Rheumatologist, Duke University
Join Dr. Catherine Sims as she walks you through the phases of reproduction from birth control to pregnancy, and ultimately menopause. People with lupus should have the opportunity to discuss with their doctors how to properly time pregnancy to minimize complications, what birth control is safe for them to take, and how to manage menopause. This presentation is supplemented by printable handouts from lupuspregnancy.org that patients can bring with them to clinic visits to discuss what you learn with your doctors.
Grieving My Old Life, Receiving a New One
12:45 p.m. – 1:15 p.m.
Shanelle Gabriel
Poet, Singer, Educator, & Lupus Warrior
Shanelle Gabriel will discuss the grieving process of being diagnosed with a chronic illness and explore the path to acceptance. Learn some tips on how to continue living your life to the fullest while battling lupus.
Thriving with Lupus – A Panel Discussion
1:15 p.m. – 2:00 p.m.
Kristin Brittain, Southeast Region
Kelly Wegmann, Heartland Chapter
Shruti Rangnekar, Philadelphia Tri-State Chapter
Join our panel of young women living with lupus as they share their personal lupus stories and provide tips, inspiration, and ideas for living well with lupus through school, work, and relationships. This is a great way to interact and learn from others who have been in your shoes.
MEET OUR PANELISTS
All presentations include time for Q & A. Register & ATTEND the retreat to be entered into a drawing to win a $200 Visa Gift Card!
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