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Educational teleconference program on a variety of topics designed to link you with current information about living with lupus. Learn from the comfort of your home.

Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

You can register for teleconferences, webinar’s, or listen to previous recorded teleconferences:


Listen to the 2014 Recordings

February 26, 2014 - Lupus and Intimacy

Lupus and Intimacy - 02.26.14
Speaker: Lisa Covington, MSW, LCSW-C

Intimacy is important in any relationship, and is necessary in order to gain trust and understanding among one another. Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.

Download the presentation (PDF)

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April 12, 2014 - Lupus and Men

Lupus and Men - 04.12.14
Speaker:  Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy

A lot of misinformation exists about lupus—including the incorrect belief that lupus only occurs in women.  While there are many similarities on how the disease affects men and women, there are some key differences on lupus affects men.   Learn about the unique effects of lupus on males living with the disease.

Download Dr. Shanahan's presentation

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April 22, 2014 - Clinical Trial Education

Clinical Trial Education - 04.22.14
Speakers: Karen Obmaces – President of Accurate Clinical Research
               Linda Willies – Clinical Trial Participant for more than 7 years

This teleconference will cover understanding how clinical trials work, frequently asked questions surrounding qualifying to be a participant, and the safety once enrolled.

Download Karen Obmaces presentation

Download Linda Willies presentation

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May 1, 2014- Living With Lupus: An Insider's Perspective

Living with Lupus: An Insider's Perspective - 05.01.14
Speaker:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus

Because lupus is a mysterious and complex disease, a diagnosis can be quite scary.  However, there may also be a measure of relief in being able to put a name to what may have been years of debilitating symptoms and misdiagnoses.  Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.  As a Board Certified Internist, our speaker brings professional expertise along with her personal perspective as an individual living with lupus herself.

Download Dr. Pamela Turnbo Thorpe's presentation

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Download the Support Group Information:

 

May 8, 2014- Vivir con Lupus

Vivir con Lupus - 05.08.14
Speaker:  Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.

Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.

Download Dr. Leyka Barbosa's presentation

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Lupus and the Skin - 7.9.14
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center

Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.

Download Dr. Santoro's Presentation (PDF)

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Lupus and Depression - 8.7.14
Speaker: Beatrice Lazaroff, Ph.D.

Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.

Download Beatrice Lazaroff's Presentation (PDF)

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Nutrition and Rheumatic Diseases - 9.4.14
Speaker: Dr. Roxanne Sukol, Cleveland Clinic

Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.

Download Dr. Sukol's Presentation (PDF)

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Lupus and Disability - 10.18.14
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC

This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.

Download Lisa Gonzalez Goetz's Presentation (PDF)

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Lupus and Stress - 11.13.14
Speaker: Cindy Coney
cindyconey.com

Physical and emotional stresses are among the suspected triggers for a lupus flare.  People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.

Download Cindy Coney's Presentation (PDF)

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2015 Prior Teleconferences

The Lupus-Heart Connection

February 24, 2015
6:00 pm – 7:00 pm CST
Speaker:  Joan M. VonFeldt, M.D., MSEd.

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.

Download the PDF Presentation

Listen to the Recording:

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Disability and Returning to the Workplace

March 31, 2015
6:00 pm – 7:00 pm CST
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.  

Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.

Download the PDF Presentation

Lupus Infographic PDF

Listen to the Recording:

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Lupus and the Eyes

April 8, 2015
6:00 pm – 7:00 pm CST
Speaker: Ricardo N. Sepulveda, M.D.

Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.

Download the PDF Presentation

Listen to the Recording:

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Living Well with Lupus

May 13, 2015
6:00 pm – 7:00 pm CST
Speaker:Donald Thomas, M.D., FACP, FACR, CCD

Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.

Download the PDF Presentation

Download Lupus Secrets Handout

Listen to the Recording:

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Lupus and Hair Loss

June 24, 2015
6:00 pm – 7:00 pm CST
Speaker: Angela Kyei, MD

A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.

Download the PDF Presentation

Listen to the Recording:

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Lupus and the Skin

July 14, 2015
6:00 pm – 7:00 pm CST
Speaker: Victoria P. Werth, MD, University of Pennsylvania School of Medicine

Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.

Download the PDF Presentation

Listen to the Recording:

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Lupus and Female Issues: From Puberty to Menopause

August 13, 2015
6:00 pm – 7:00 pm CST
Speaker: Amber R. Cooper, MD, MSCI

Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.

Download the PDF Presentation

Listen to the Recording:

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2016 Previously Recorded Teleconferences

Affairs of the Heart: Lupus and Relationships
February 2016
Presenter: Molly Dennis, MSW, Health Partners Plans

February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. Is your life filled with satisfying relationships and love?  Do you feel that others understand your lupus and the demands that it places on you?  Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.

Download the Presentation

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Lupus and the Kidneys
March 2016
Presenter: Dr. Michael P. Madaio, Sydenstricker Professor and Chairman, Department of Medicine, Medical College of Georgia at Augusta University

Did you know that an estimated 40% of all people living with lupus will develop kidney complications? This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

Download the Presentation

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Lupus & Mental Health: How to Know You’re in Trouble
April 2016
Presenter: Stacie Camp Bennett, MA, LPC, LCAS

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn how to determine the difference and recognize and properly treat symptoms.

Download the Presentation

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Lupus and Primary Care
May 2016
Presenter: Adegbenga A. Bankole MD, FACP, Virginia Tech Carilion School of Medicine

The Primary Care Physician plays an important role in quality care to patients with lupus. This teleconference covers the impact of lupus on diseases that are cared for by PCPs, ranging from hypertension to cancer and teach you preventive measures to take.

Download the Presentation


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Lupus and the Thyroid
June 2016
Presenter: Maria Antonelli, MD from Metro Health Hospital

Thyroid problems are common in people with lupus. About 6 percent of people with lupus have underactive thyroid, or hypothyroidism, and 2 percent have overactive thyroid, or hyperthyroidism. Join us to learn about the effects of thyroid disorders and function and their relationship to lupus.

Download the Presentation

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Lupus & the Bones: Diagnosing & Treating Osteoporosis
August 2016
Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis

Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.

Download the Presentation

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Living a Healthy Lifestyle
September 2016
Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa

Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.

Download the Presentation

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Lupus & Dental Health
October 2016
Presenter: Presenter: Diane Earle, DDS, MBA, Kool Smiles

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

Download the Presentation

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Stress Management
November 2016
Presenter: Ellen Sichel, Custom Calm, LLC

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

Download the Presentation

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2017 Previously Recorded Teleconferences

Eating Smart for & Healthy Heart

With: Emily Rubin RD, LDN, Registered Dietitian, Thomas Jefferson University Division of Gastroenterology and Hepatology

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!

Download the presentation (PDF)

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March 2017

Working With Your Pharmacist

With: Susan Corbett, PharmD, RPh, and Lupus Thriver

Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist.  Also learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.

Download the presentation (PDF)

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April 2017

An Overview of Social Security Disability Benefits 

With: Andrew Salata, Public Affairs Specialist, Social Security Administration

The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process.  The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.

Download the presentation (PDF)

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May 2017

Workplace Accommodation for Individuals with Lupus 

 

With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair 

People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.

 

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June 2017

Clinical Trials 101

 

With: Dr. Namieta Janssen, Rheumatologist from Houston, TX

This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus. 

Download the presentation (PDF)

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July 2017

Teens with Lupus: Transitioning into Adulthood

With:  Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.

As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years. 

Download the presentation (PDF)

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Cardiovascular Disease and Lupus 

 

With George Stojan, M.D.

Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.

Download the presentation (PDF)

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2018 Previously Recorded Teleconferences

March 2018 

Reiki and It's Effects On Lupus 

With Bryce Goebel, LRMT, Empowering You to Heal Description

Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.

Download the PDF Presentation


April 2018

The Holistic Approach to Diet and Lupus

With Carrie Holley-Hurt, Holistic Health Coach

In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.

Download the PDF Presentation 


May 2018

Lupus: Making the Diagnosis

With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s

Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.

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Download the PDF Presentation


June 2018

Research Update

With  Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston

 We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.

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Download the PDF Presentation


July 2018

Lupus and the Skin

With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine

Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.

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Download the PDF Presentation