Pasar al contenido principal
Cerrar

2020 Digital Lupus Advocacy Summit

Learn. Connect. Advocate.

The nation's largest lupus advocacy event went digital – and became even bigger! At the first-ever Digital Summit, attendees learned from experts in the field about the latest in lupus research, connected with hundreds of fellow lupus advocates, and learned how to advocate for yourself and for the entire lupus community throughout the year. All of this, and much more, took place in an immersive, experiential, online environment.

Join us on our mission to end the brutal impact of lupus.
Become an Advocate

Introducing the first-ever Digital Lupus Advocacy Summit!

The nation's largest lupus advocacy event went digital – and became even bigger! At the 2020 Digital Lupus Advocacy Summit, more than 2,700 attendees learned from experts in the field about the latest in lupus research, connected with hundreds of fellow lupus advocates, and learned how to advocate for yourself and for the entire lupus community throughout the year.

All of this, and much more, took place in an immersive, experiential, online environment open to the entire lupus community.

Registration for the 2020 Digital Lupus Advocacy Summit has now closed, and on-demand viewing of the sessions is no longer available. Please sign up as an advocate to receive information about future in-person and digital events.


UPDATE: March 10, 2020

At the Lupus Foundation of America, the health and well-being of people with lupus is our highest priority. Due to the growing concern around the coronavirus disease 2019 (COVID-19), and in alignment with recent recommendations laid out by the U.S. Centers for Disease Control and Prevention (CDC) and other health experts, we have made changes to the 2020 National Lupus Advocacy Summit.

The 2020 National Lupus Advocacy Summit will now be an entirely digital event. No in-person activities will take place in Washington, DC. Panel sessions and presentations originally planned on Monday, March 16 will now take place online. 

Become an Advocate

Registration for the 2020 Digital Lupus Advocacy Summit has now closed, and on-demand viewing of the sessions is no longer available. Please sign up as an advocate to receive information about future in-person and digital events.

Sign Up

Digital Summit – Schedule of Events
Monday, March 16

All times are Eastern

10:00 am                      |    2020 Digital Summit opens

11:00 - 11:15 am      |    Opening remarks

11:15 - 12:30 pm      |    Today & Tomorrow in Lupus Research
2019 was a significant year in lupus research, and 2020 promises to push us even further in our pursuit of quicker diagnoses and more safe and effective treatments. In this session, you'll hear from leading lupus researchers about the recent breakthroughs in lupus drug development and those soon to come.

  • Leslie Hanrahan (Moderator)
    Lupus Foundation of America
  • Robert Huizinga, Ph.D, RN, CNeph(C)
    Aurinia Pharmaceuticals
  • Micki Hultquist, MS
    AstraZeneca
  • Joan T. Merrill, MD
    Oklahoma Medical Research Foundation
  • Jaime Miller, Ph.D, MD
    Lupus Warrior

11:15 - 12:30 pm      |    Youth Congress Session 1: What is Research?
In a session designed specifically for lupus advocates under 21, our partners at the Childhood Arthritis and Rheumatology Research Alliance will discuss their work to advance our understanding of pediatric lupus and how youth can be involved and participate in those efforts.

  • Vincent Del Gaizo
    Childhood Arthritis and Rheumatology Research Alliance

12:30 - 12:45 pm       |    Break

12:45 - 1:45 pm          |    Meet the Lupus Researchers
Hear from two of the leading experts in lupus research about their work to advance our understanding of lupus and identify new safe and effective treatments for the disease, including through the innovative study of mesenchymal stem cells.

  • Susan Manzi, MD
    Allegheny Health Network
  • May Choi, MD, FRCPC
    University of Calgary
  • Gary Gilkeson, MD
    Medical University of South Carolina

12:45 - 1:45 pm         |    Youth Congress Session 2: Creative
Learn about the work of our LFA Design team, and work with them on developing a holiday card for use by the Lupus Foundation of America.

  • Alisha Ladenburg
    Lupus Foundation of America
  • Kym Norris
    Lupus Foundation of America
  • Michael Philip
    Lupus Foundation of America

1:45 - 2:15 pm          |    Break

2:15 - 3:00 pm          |    Navigating the Healthcare System
Quality, affordable healthcare is critical for people with lupus. Learn how to take control of your healthcare and learn about the different federal and state assistance programs, including Social Security Disability Insurance, available for people with lupus.

  • Ashley Holden
    Lupus Foundation of America
  • Pat Wildman
    Lupus Foundation of America

2:15 - 3:00 pm          |    Youth Congress Session 3: Advocacy
In the final session designed specifically for youth, learn how to be an advocate for yourself and for others in a variety of different ways.

  • LFA Advocacy & Government Relations Team

3:00 - 3:05 pm          |    Break

3:05 - 3:45 pm          |    Advocacy x 365
The Summit is just one part of our advocacy strategy. Join us for a deep dive into our year-round advocacy efforts and hear how you can be involved with them to help us continue securing advocacy victories for the entire lupus community.

  • LFA Advocacy & Government Relations Team

3:45 - 4:00 pm          |    Break

4:00 - 5:15 pm          |    Storytelling & Preparing for Capitol Hill
To close out the day, the Foundation's Advocacy & Government Relations team will discuss the issues we will be taking to Capitol Hill, prepare you to tell your story in the most impactful way, explain how to structure a congressional meeting, and make sure you are fully prepared for three successful meetings with your members of Congress the following day.

  • LFA Advocacy & Government Relations Team

Note that this session is only available for advocates who were register to attend the 2020 National Lupus Advocacy Summit in person.

Tuesday, March 17

On Tuesday, March 17, all advocates will have an opportunity to engage with their members of Congress to build support for policies that are improving the lives of people affected by lupus.

  • Advocates who were registered to attend the in-person Summit already have meetings with their members of Congress scheduled, and those meetings are on as planned via phone conference. More details and meeting schedules will be shared with this group as they are available.
  • Advocates who were not registered to attend the in-person Summit will be invited to participate in Virtual Advocacy Day. Through our website, advocates will be able to look up their members of Congress and send them an email explaining how lupus has affected them, and what they can do to support the 1.5 million Americans living with lupus.

2020 Summit Sponsors

 


For questions about the 2020 Digital Lupus Advocacy Summit, please contact Travis Smith, Director of Government Relations, at [email protected] or 202-212-6778.