Pabrita B. - Diagnosed at age 18

In 2010, at the age of 18, I received the devastating diagnosis of lupus. It all began with joint pain, which was initially misdiagnosed as arthritis. Despite temporary relief from steroids and NSAIDs, my health soon took a turn for the worse.

Glands appeared on my cheeks, persisting despite multiple visits to ENT specialists. Soon, I was plagued by mouth ulcers and throat wounds, rendering swallowing nearly impossible. Two months of agony passed before a hospitalization, during which my low WBC count and fever finally led to a lupus diagnosis.

For the past 14 years, my life has been a relentless battle against this invisible foe. Painful shingles, nerve pain, and now, fifth-stage lupus nephritis, have become unwelcome companions on this journey. Digestive issues plague me, leaving me underweight and with a diminished appetite. Fatigue is a constant companion, making concentration at work a Herculean task.

Despite the relentless challenges, I wear a smile and carry on, hiding my pain behind a facade of strength. Makeup becomes a shield, concealing the physical toll of my illness. But the mental toll is equally heavy, as the outer world fails to grasp the magnitude of my struggle. Instead, I am often misunderstood, judged as lazy or inactive.

But behind the facade lies a truth too painful to bear alone. Each day, I fight an invisible battle, drawing strength from the resilience that lies within. Though the world may not see my struggles, they are very much real, shaping every aspect of my existence.

Living with lupus is not just a physical battle but also an emotional and mental one. Coping with mood swings and navigating the judgmental comments of others can be incredibly challenging. However, finding strength and support from your family and maintaining hope for recovery are powerful motivators.

Your resilience and determination to keep working towards a bright future despite the obstacles you face are truly admirable. It's also wonderful to hear that spirituality has been a source of comfort and strength for you. Taking care of your mind, body, and soul through practices like mindfulness and spiritual learning can be invaluable tools in managing the ups and downs of living with a chronic illness like lupus.

Remember that you are not alone in your journey, and it's okay to seek support from loved ones, support groups, or mental health professionals when needed. Your resilience and positivity are inspiring.