Kawanna J. – Diagnosed at Age 30

In college, I was initially diagnosed with Sjögren’s syndrome, and later diagnosed with lupus after ongoing complications with severe skin infections. My scalp would develop wounds and infections so serious that I needed treatment from a wound specialist. I also experienced infections in my arm that became severe enough to require surgery after the infection reached the bone. 

I was recommended to the Mayo Clinic by my dermatologist. When I went to the Mayo Clinic, I was evaluated by a team of specialists and underwent two biopsies that confirmed my diagnosis. Since then, I have battled low white blood cell count, pain, fatigue, joint pain, and hair loss. 

Lupus has changed many parts of my life. I was once very active as a sports coach and someone who worked out regularly. Now, even when my mind wants to keep going, my body often reminds me to slow down. One of the hardest parts for me has been the hair loss. Looking in the mirror and knowing that, over time, your hair may continue to fall out is an emotional journey that is difficult to put into words. The other tough part is people telling me I don’t “look sick.” 

What has helped me most is the support of my family. There are days when I simply cannot do certain things, and they give me grace without requiring explanations. My faith has also kept me grounded and continues to give me strength to press forward. 

Over time, I have become more open about sharing my journey with others. What gives me hope is knowing that my story may encourage or help someone else as they walk through their own challenges. 

Pain is real, but so is the strength I’ve discovered within myself.