Danielle E. - Diagnosed at age 26

I will never forget feeling miserable on my 26th birthday. I knew something was wrong. After dinner with friends, I went to urgent care for blood work. A few days later, I got a phone call with the news that my blood markers were signaling an autoimmune disease. Because my symptoms were so aligned with the lupus criteria, I was able to get a quick diagnosis. I remember my symptoms affected everything I loved…. being a teacher, a social life, traveling. 

Once my medication kicked in and I thought the hurdles were done, COVID hit and I was immunocompromised. I felt so scared and isolated. Having the Lupus Foundation of America has made me feel less alone. I am able to connect with others who understand what I am going through and it’s a way for me to advocate for lupus awareness and healthcare. 

Having lupus isn’t easy….it can wear you down, fatigues you, make you sick, and affect your mental health. However, I have learned through this journey that I am strong, brave, and determined. The symbol for lupus is a butterfly…and I think of it as a reminder that I will never let lupus stop me from spreading my wings.