Cheyenne W. - Diagnosed at age 14
It took some time to receive my lupus diagnosis, as my initial symptoms—rashes—were mistaken for allergies. The turning point came when I woke up one day with complete memory loss, unable to perform basic tasks like using the bathroom or remembering events. This led to months of confusion and challenges until I was finally diagnosed. Shortly after, I developed avascular necrosis in my hip, requiring surgeries. Since then, I’ve been managing lupus with medication, regular doctor visits, and the support of specialists.
My current symptoms include joint pain, fatigue, and flare-ups, but despite the unpredictability of lupus, I’ve learned to live a fulfilling life. Lupus doesn’t define me; it’s just one part of my identity. One thing I’d like people to understand about lupus is that it comes with invisible struggles. There are days when I look fine, but the fatigue and pain can be overwhelming. Yet, with the right treatment and support system, it’s possible to move forward. Living with lupus has undoubtedly impacted my daily life, especially in balancing my health with school, work, and social activities. However, it has also driven me to pursue my Master’s degree in Social Work, concentrating on Medical Social Work, which aligns with my experiences. I’m also proud to be a Graduate Associate for Diversity and work at a group home for foster children.
The obstacles lupus presents have given me a deeper sense of purpose and a desire to make a positive difference in others’ lives. My family has played a crucial role in helping me manage the emotional toll of lupus, keeping me involved and encouraged. While I haven’t specifically engaged with the Lupus Foundation of America’s programs, I’ve found great value in the resources and community support they offer. Ultimately, what gives me hope is seeing my own progress, both personally and professionally. The strength and resilience I’ve discovered in myself—along with the people around me—remind me that I can overcome challenges. Every step I take in my career and personal growth reinforces that lupus is just one part of my journey, and there’s so much more to look forward to.