Aneshia B. - Diagnosed at age 37
I’m a 37-year-old, healthy, active and fit nurse. Early mornings you can find me in the gym by 4:30am. No prior medical history.
How long did it take to get a lupus diagnosis and what were your initial symptoms?
Towards the end of May of this year, I recall feeling a little off. Not sick. Not ill or under the weather.... just off. I went on to follow-up with my primary doctor who did a whole lab work up on me. Early June 2024, my ANA (detects antinuclear antibodies) came back elevated, indicating a positive diagnosis of lupus. By June’s end I developed a butterfly rash. August 2024, I was hospitalized with a fever of 103.8 secondary to lupus flare. I was diagnosed, in an acute flare, with class 4 involvement to my kidneys.
What are your current symptoms and what would you like others to know about lupus?
Fatigue, high blood pressure (kidney inflammation), and abnormal lab values. I want others to know that lupus has no face. It affects millions and is more prevalent than we realize, but it can be managed.
How has lupus impacted your daily life and future?
I‘ve had to reestablish a new normal. Workout regimen has changes depending on energy levels, more indoor workouts to avoid the sun. I’m on several medications to manage the flares and kidney involvement.
What has helped you manage lupus and have you engaged with any Lupus Foundation of America resources or programs?
Yes, I recently participated in the lupus walk in my area to help spread awareness to this disease.
What gives you hope?
God. Family. A multidisciplinary team dedicated to putting this lupus in remission. Existing and developing research and resources regarding lupus treatment options.