2018 National Advocacy Summit

Join us in Washington March 20-21 for the 2018 National Advocacy Summit and help us continue to make a difference in the fight against lupus. The two-day Summit will feature educational sessions, and this year will include programing on childhood lupus. In addition, the Summit will have interactive sessions for all advocates and provide attendees with the tools they need to tell their lupus story on Capitol Hill, increase funding for research and ensure all people with lupus have access to the care they need.

Registration Details

We have reached capacity for the 2018 National Lupus Advocacy Summit, and registration is now CLOSED. If you are not registered for the Summit, you can still watch portions of the Summit programming, which will be live-streamed on Facebook Live. You also can still make your voice heard by participating in the Summit’s Virtual Advocacy Day (March 21)! Sign up and become a lupus advocate to make sure you receive details about Virtual Advocacy Day and other action alerts that let you know how you can make a difference throughout the year.  

Registration for the Lupus Heroes Reception remains open. This is a separate ticketed event and does not include access to other National Lupus Advocacy Summit activities.

Preliminary Schedule of Events

Tuesday, March 20

The first day of the Summit will focus on advocacy training and educational programming with a special focus on childhood lupus. It will feature engaging discussions on the latest in lupus research and drug development and other issues of importance for the entire lupus community. 

8:00 am - Breakfast and Registration

9:00 am - Welcome and Introduction

10:00 am - Panel One: The State of Childhood Lupus Research and Drug Development

11:00 am - Panel Two: Advocacy 365: How to Make a Difference Throughout the Year

12:00 pm - Lunch & Storytelling Workshop

1:30 pm - Prep for the Hill and Role Play

3:00 pm - Closing

3:15 pm - Family Social (open to all attendees)

Throughout the day, children and young adults are invited to visit The Family Lodge, where they can:

  • Link up, connect, and learn from each other
  • Relax, recharge, and refuel!

6:00 pm - 7:30 pm - Lupus Heroes Reception

The first day of activities concludes with an evening reception honoring lupus heroes whose leadership has made a difference in the fight against lupus.

The Lupus Heroes Reception is a separate ticketed event that requires a registration fee of $50.

Wednesday, March 21

Together, we turn Capitol Hill PURPLE and advocate for more lupus research and education funding through meetings with your members of Congress.

7:00 am - 8:30 am - Continental Breakfast

8:00 am - 4:00 pm - Meetings on Capitol Hill (lunch on your own)

3:00 pm - 6:00 pm - Hospitality Room

Additional Information

Hotel Information

The 2018 National Lupus Advocacy Summit and Lupus Heroes Reception will be held at the Washington Marriott Metro Center.

Youth Scholarship Program

Application submissions for the Youth Scholarship Program are now CLOSED.

Thank you to our sponsors!

Exclusive Summit Sponsor


Lupus Heroes Reception Sponsor


Summit Supporting Sponsors

Aurinia Pharmaceuticals
Biotechnology Innovation Organization
Boeringer-Ingelheim Pharmaceuticals
Eli Lilly and Company
Faegre Baker Daniels
Lupus and Allied Diseases Association, Inc.
Mallinckrodt Pharmaceuticals
Pfizer Inc.