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Share Your Personal Story

A personal story is powerful – to those who tell it and to those who hear it. In the words of the lupus warriors and caregivers themselves come stories of hope and struggle.

Share Your Story
Anna Taylor Featured in United Way Campaign

Summer Jam Youth Retreat camper, Anna Taylor, was featured in the 2018 United Way of Greater St. Louis 2018 Campaign and shared her story.

READ ANNA'S STORY

The Power of Sharing Your Personal Story

Sharing your story of living with lupus and engaging in advocacy is powerful and empowering. Just one story can and does make the difference. Share Your Story

Need help on what to write? Consider the questions below as you think of what you want to share.

  • How long did it take to get a lupus diagnosis and what were your initial symptoms?
  • What are your current symptoms and what would you like others to know about lupus?
  • How has lupus impacted your daily life and future?
  • What has helped you manage lupus and have you engaged with any Lupus Foundation of America resources or programs?
  • What gives you hope?

My Lupus Story

Alia El-Qunni
Lupus Advocate
Saint Louis, MO

DeVonshae Person
Lupus Ambassador
Author
Saint Louis, MO

Lilian Tackitt
Lupus Child Ambassador
Wood River, IL

Marshala Bernaugh
Lupus Advocate
Saint Louis, MO

Nikia Montgomery
Lupus Ambassador
Saint Louis, MO

Patricia Dees
Lupus Ambassador
Saint Louis, MO

Patricia Florian-Smith
Lupus Warrior
Saint Louis, MO

Samantha Powers
Lupus Child Ambassador
Sparta, IL

Lamar S Johnson
Lupus Advocate
Kansas City, MO

Kendall Eilerman
Lupus Advocate
Batchtown, IL

Jewel McDaniels
Lupus Advocate
Saint Louis, MO

Anna Taylor
Lupus Advocate
St. Charles, MO