This four-part webinar series is designed to help parents understand lupus and how to care for a child or teen with the disease. Parents and children will learn how to work together to manage symptoms, maintain a healthy lifestyle, and successfully transition to adulthood.Register for Part 3
Lupus can affect both adults and children. Childhood lupus represents approximately 20% of lupus patients, affecting about ten out of one million children per year. Caring for a child or teen with lupus requires knowledge, patience, and acceptance that certain lifestyle changes will need to be made.
Part 3 - Preparing for Life as a Young Adult
This webinar will focus on successfully transitioning from pediatric to adult health care and preparing for the changes ahead, including college, career, dating, family planning, or whatever the future holds. The suggested audience is adolescents with lupus aged 16 and older and parents or guardians of adolescents with lupus.
The webinar will feature an overview from Joyce Chang, MD, MSCE, a Rheumatologist in the Division of Rheumatology and the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia followed by a panel discussion with Dr. Chang, a mental health expert, a parent, and young adults with lupus.
Date: February 10, 2021
Time: 6:30 p.m. (Central)
Joyce Chang, MD, MSCE
Dr. Chang is an attending rheumatologist in the Division of Rheumatology and the Lupus integrated Nephritis Clinic at the Children’s Hospital of Philadelphia (CHOP), as well as an Assistant Professor of Pediatrics at the University of Pennsylvania Perelman School of Medicine. Her clinical interest is in helping youth with lupus and other connective tissue diseases take charge of their disease and successfully navigate the health care system into adulthood. She directs the research efforts within the CHOP Lupus Program and has funding from the National Institutes of Health and the Lupus Research Alliance to develop strategies to prevent long-term problems from childhood-onset lupus, such as heart disease.
One of Dr. Chang’s main focuses is improving the health care transition from pediatric to adult care for youth with rheumatic diseases. She is the transition champion for quality improvement efforts within CHOP and has worked on developing tools to measure how well the care team is doing with processes to help youth prepare for adulthood. She also co-leads the Transition Learning Collaborative (TLC), which is a multi-site effort supported by the Childhood Arthritis and Rheumatology Research Alliance. The TLC aims to understand how to implement health care transition processes within pediatric rheumatology centers across the US.