This four-part webinar series is designed to help parents understand lupus and how to care for a child or teen with the disease. Parents and children will learn how to work together to manage symptoms, maintain a healthy lifestyle, and successfully transition to adulthood.Register for Part 1 - What to Expect
Lupus can affect both adults and children. Childhood lupus represents approximately 20% of lupus patients, affecting about ten out of one million children per year. Caring for a child or teen with lupus requires knowledge, patience, and acceptance that certain lifestyle changes will need to be made.
Part 1 - Pediatric Lupus: What to Expect
September 24, 2020 | 6:30 p.m. (CST)
This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, Clinical Director of the Division of Rheumatology, Director of the Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, a psychologist and parents of children with lupus.
- Overview of lupus
- Treatments and side effects
- Working with your child to take medications consistently
- Understanding doctor’s visits
- How to help you and your child cope with the diagnosis
Future Topics in the Series Include:
- Digging into the details (early December)
- Managing life as a young adult (February or March)
- Living your best life (April)
Jon Burnham, MD, MSCE
Dr. Jon (Sandy) Burnham is an Associate Professor of Pediatrics in the Division of Rheumatology at The Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania School of Medicine. He currently is the Clinical Director and Director of Quality and Patient Safety in the Division of Rheumatology. He is the Director of the CHOP Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic.
Dr. Burnham is actively involved in quality improvement initiatives at CHOP and nationally, and studies care delivery in children with juvenile idiopathic arthritis and lupus. He has worked collaboratively to develop clinical pathways to diagnose, treat Kawasaki disease and MIS-C, and prevent acute adrenal insufficiency in children treated with chronic steroids. His work to operationalize “treat to target” in juvenile idiopathic arthritis served as the model for implementation in the Pediatric Rheumatology Care & Outcomes Improvement Network (PR-COIN) at sites across the US and Canada. He is now working to develop and implement the pediatric lupus care index, a composite tool to measure the quality of care with a focus on outcome measurement and comorbidity assessment and prevention.
He is the CHOP site PI of PR-COIN and serves as the co-chair of the PR-COIN Outcomes Committee. In addition to internal funding, he has received funding from the National Institutes of Health and the Rheumatology Research Foundation and is the recipient of the 2018 CHOP Master Clinician Award.