Your Life with Lupus

Life with lupus can be like a rollercoaster - there are good days, bad days and everything in-between.

Help us show the world what living with lupus is really life by submitting photos in the form below that reflect the real unfiltered experience of life with lupus. No need for editing, posed selfies, or filters – just authentic moments that help others see and understand the true reality of lupus.

Not sure what to share? Here are a few ideas and examples:

Photos of symptoms like a butterfly rash, swelling, or fatigue (please include your face, not just the symptom, to capture the full picture of your experience)
Photos of what it’s like when you attend doctor appointments, receive infusions, stay in the hospital, or in a doctor's office waiting room
Photos of the challenges of everyday life like difficulty getting out of bed, struggling with stairs, or moments of seclusion like looking out a window
Photos of how lupus has made you sensitive to light, showing you sitting in shade and/or wearing sun protective apparel
Photos of your community and family support including spending time with loved ones, attending support groups, and other moments of care and connection
Photos of your daily life (looking at the camera or candid), including cooking, using a laptop, and other activities around your house, walking in the neighborhood, relaxing at a park, or playing with kids
Photos of your good days, including smiling with family or friends, laughing, hugging, holding hands, enjoying a meal out, attending a celebration, traveling, doing a favorite hobby, and feeling confident or dressed up

The Lupus Foundation of America will use select photos from people with lupus in our educational materials and communications to help bring greater awareness to what it's like living with lupus and support our shared mission of ending this disease. Your photos will help bring greater awareness to what your life with lupus really means. Thank you for sharing your story!

First NameLast NameEmail

State/ProvinceZIP/Postal Code

Keep this box checked if you would like to begin or continue receiving communications from the Lupus Foundation of America.What is your connection to lupus?If you selected that you are the caregiver of a child with lupus, what is your child's name?In what ways has the Lupus Foundation of America supported you? (For example: by connecting you with the larger lupus community, support groups, resources, education, advocacy, or events.) How has this made a difference in your lupus journey?What was your age when you were diagnosed with lupus? (If you are the caregiver of a child with lupus, please enter your child's age at diagnosis.)

Please upload 1-5 photos below. To help ensure consistency and quality, please keep the following guidelines in mind when taking or selecting a photo:

Avoid visible brands or logos on shirts, hats and other clothing
Make sure the image isn’t too close up (chest-up or full-body shots work best)
Look directly at the camera for most photos and share some photos of living daily life not looking at the camera
Avoid flashy patterns and stark colors
Skip the flash if you can — natural lighting looks best

Maximum 5 files.
64 MB limit.
Allowed types: jpg, png, jpeg, heic.
500 MB limit per form.

Submitted Content Release

Participants submitting written and multimedia content give permission for the Lupus Foundation of America (LFA) to use their submitted content and do hereby acknowledge the irrevocable and unrestricted right, in perpetuity, granted to LFA and its legal representatives, third-party licensees, and assignees to use, re-use, publish, and re-publish their content in connection with the Authorized Uses (as defined below). The term “content” includes text, video or still photography in any format, as well as any other means of recording, including audio recording or reproducing images or other media.

Participants hereby agree that their submitted content may be combined with other text, images, graphics, film, audio, or audio-visual works, and may be cropped, altered, or modified for all intended purposes deemed necessary by LFA and its legal representatives and assignees.

Participants also grant LFA the right to alter and composite submitted images, or make grammatical or spelling corrections, without restriction and without inspection or approval and waive any right to compensation for such uses.

Authorized Uses:

Participants authorize the use of their content for publication, digital and internet use, reproduction to assist in educational, fundraising, advocacy, public relations, marketing, news media, and charitable goals. This includes, but is not limited to: marketing and/or promotional materials of LFA, social media content, and other mission-driven activities (collectively, the “Authorized Uses”).

Participants hereby agree to indemnify and hold LFA, its legal representatives, third-party licensees, and assignees harmless from any liability arising from any blurring, distortion, alteration, optical illusion, or use of photographs in composite form or submitted text, whether intentional or otherwise.

Participants acknowledge they have read this authorization, release, and agreement, as well as the website’s Privacy Policy, prior to submission and are fully familiar with its contents. This release shall be binding upon participants, their heirs, legal representatives, and assignees. Participants agree that this release is irrevocable, worldwide, and perpetual and will be governed by the laws of the United States.

I agree to the terms above and give full consent for my photo(s) to be used by the Lupus Foundation of America.