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Congressional Lupus Caucus

We worked tirelessly with our champions in Congress to establish the first-ever Congressional Lupus Caucus in 2012.

In the United States Congress, a caucus is a group of lawmakers who share an interest in a particular issue and come together to discuss and advance policies related to it. Caucuses allow legislators to work directly with their colleagues on the issues that they’re passionate about.

Since 2012, the Caucus has grown to include more than 60 members of Congress, all united by a connection to lupus and a desire to fight back. The Caucus works to raise awareness about lupus among their colleagues on Capitol Hill and push forward legislation to allocate more funding to lupus research and education, accelerate drug development, and more.

The Congressional Lupus Caucus is led by four co-chairs, three of whom have been serving in that role since the Caucus was first established in 2012. This remarkably stable leadership has been instrumental to the growth and success of the Caucus, and we are extremely grateful to all four of our co-chairs for their passion, dedication, and commitment to the fight against lupus. 

Congressional Lupus Caucus Co-Chairs
Rep. Tom Rooney

Original Co-Chair; Representing Florida in Congress since 2009.

Rep. Ileana Ros-Lehtinen

Original Co-Chair; Representing Florida in Congress since 1989.

Rep. Bill Keating

Original Co-Chair; Representing Massachusetts in Congress since 2011.

Rep. Eddie Bernice Johnson

Co-Chair since 2015; Representing Texas' 30th congressional district since 1993.

Members of the Congressional Lupus Caucus have been instrumental in many of our advocacy victories since 2012.

  • The Caucus circulates yearly Dear Colleague letters in support of critical funding for lupus research and education programs. Dear Colleague letters allow members of Congress to voice their support for funding proposals before the annual appropriations process begins. View the Caucus' fiscal year 2019 Dear Colleague letter.
  • In early 2015, the Caucus asked the National Institutes of Health to update their 2007 report on the landscape of lupus research, leading to the Action Plan for Lupus Research.
  • Annually participating in Put on Purple Day to raise lupus awareness among their colleagues on Capitol Hill. 
  • Participating in briefings for legislators and their staff about the devastating toll of lupus, most recently at the 2018 National Lupus Advocacy Summit.
Congresswoman Ileana Ros-Lehtinen (R-FL)
I look forward to working with my Congressional colleagues and the Lupus Foundation of America as we work to better understand this debilitating disease and give a voice and hope to its sufferers and their loved ones.
Congresswoman Ileana Ros-Lehtinen (R-FL)
On the founding of the Congressional Lupus Caucus in 2012

Members of the Congressional Lupus Caucus

  • Rep. Brian Babin (R-TX)
  • Rep. Sanford Bishop (R-UT)
  • Rep. Rob Bishop (R-UT)
  • Rep. Marsha Blackburn (R-TN)
  • Del. Madeleine Bordallo (D-GU)
  • Rep. Anthony Brown (D-MD)
  • Rep. Cheri Bustos (D-IL)
  • Rep. Steve Cohen (D-TN)
  • Rep. Tom Cole (R-OK)
  • Rep. Gerald Connolly (D-VA)
  • Rep. Susan Davis (D-CA)
  • Rep. Ted Deutch (D-FL)
  • Rep. Debbie Dingell (D-MI)
  • Rep. Lloyd Doggett (D-TX)
  • Rep. John J. Duncan, JR. (R-TN)
  • Rep. Tom Emmer (R-MN)
  • Rep. Eliot Engel (D-NY)
  • Rep. Elizabeth Esty (D-CT)
  • Rep. Lois Frankel (D-FL)
  • Rep. Alcee Hastings (D-FL)
  • Rep. Denny Heck (D-WA)
  • Del. Eleanor Holmes Norton (D-DC)
  • Rep. Darrell Issa (R-CA) 
  • Rep. Pramila Japayal (D-WA)
  • Rep. Lynn Jenkins (R-KS)
  • Rep. Eddie Bernice Johnson (D-TX)
  • Rep. Hank Johnson (D-GA)
  • Rep. Bill Keating (D-MA)
  • Rep. Ro Khanna (D-CA)
  • Rep. Pete King (R-NY)
  • Rep. Steve Knight (R-CA)
  • Rep. Barbara Lee (D-CA)
  • Rep. Sander Levin (D-MI)
  • Rep. John Lewis (D-GA)
  • Rep. Ted Lieu (D-CA)
  • Rep. David Loebsack (D-IA)
  • Rep. Zoe Lofgren (D-CA)
  • Rep. Nita Lowey (D-NY)
  • Rep. Blaine Luetkemeyer (R-MO)
  • Rep. Sean Patrick Maloney (D-NY)
  • Rep. Gregory Meeks (D-NY)
  • Rep. Donald Norcross (D-NJ)
  • Rep. Bill Posey (R-FL)
  • Rep. Mike Rogers (R-AL)
  • Rep. Ileana Ros-Lehtinen (R-FL)
  • Rep. Tom Rooney (R-FL)
  • Rep. Jan Schakowsky (D-IL)
  • Rep. Kathleen Rice (D-NY)
  • Rep. David Scott (D-GA)
  • Rep. Carol Shea-Porter (D-NH)
  • Rep. Brad Sherman (D-CA)
  • Rep. Darren Soto (R-FL)
  • Rep. Steve Stivers (R-OH)
  • Rep. David Valadao (R-CA)
  • Rep. Ann Wagner (R-MO)
  • Rep. Greg Walden (R-OR)
  • Rep. Frederica Wilson (D-FL)
  • Rep. Joe Wilson (R-SC)
  • Rep. Rob Woodall (R-GA)
  • Rep. John Yarmuth (D-KY)
  • Rep. Kevin Yoder (R-KS)
  • Rep. David Young (R-IA)
Grow the Congressional Lupus Caucus

If your Representative isn’t on the Congressional Lupus Caucus, in just a few clicks you can let them know how lupus has changed your life and ask them to support you by joining the Caucus. And if they already are on the Caucus, send them a note of gratitude!

Contact Your Representative