Live educational teleconferences on a variety of topics designed to provide you with important information about living with lupus.
October 17, 2019 - Coping With Lupus
Where: "In the comfort of your home" teleconference
Presenter: Dr. Robert H. Phillips M.D.
Time: 7:00 p.m. to 8:00 p.m (central time)
Dr. Phillips will talk about some of the coping strategies that can help you live a better life... despite having lupus, as well as answering your coping questions.
Registration page for the November - December teleconferences will be posted one month prior.
"Systemic Lupus Erythematosus, a multi-organ system autoimmune disease, has been shown to affect ethnic minorities more frequently and more severely than other populations. Minorities are 3-4 times more likely to develop SLE and twice as likely to experience severe manifestations such as kidney disease. Finding personalized approaches to treating minority patients starts with quality research. In our talk with Dr. Ashira Blazer, an academic rheumatologist at NYU Langone Hospital, we will explore the presumed causes and contributors to disparities in SLE, future directions in management, and tools to help even the most vulnerable of patients live well."
Presenter: Dr. Ashira Blazer
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.
Presenter: Dr. Mohammad Kamran
Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced Rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Presenter: Dr. Samuel Pegram
Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Presenter: Lindsay Sappah, RD LDN CNSC
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Presented by Dr.Lesley Davila M.D.
Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Presenter: Thomas J. Giordano, JR., Esquire
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
Presented by Dr. Rebecca Sadun
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
Presented by Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University
With Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the boy have improved pregnancy outcomes over the last 40 years. Join us for this session to learn more about lupus and pregnancy.
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.