Sayeka K. - Diagnosed at age 18
When I was a child, I used to get a fever once a year. I was always fine, only at night, my hands would hurt a little, and my legs would get wrapped when I played. In 2012, I took my 10th class board exam, and I passed it. At the end of 2012, I got black fever, and I was sick for a long time. In 2013, I was in 11th class when I got thyroid and then how do I know? I was hurt by my very close person's words and anger. I took 40 estimated tablets, and after that, my depression increased in the 12th class. I took the board final exam and I passed.
In early 2015, I got typhoid, and my hair fell out. I was sick for 2 months. One thing I noticed was that in winter, my hands used to change color; some parts were white. Some areas would turn blue and I would sweat profusely in hot weather. Then, on 2015 August 5, I lost my sister because of lupus, and I went crazy with grief and stopped eating and drinking. I guess SLE attacked me in September. Then I felt severe joint pain all over my body, weakness felt a lot, mouth sores, hair loss started again, migraines started, mouth race, a brittle nose appeared, lack of appetite, food difficulty in digestion, increasing anger day by day, always having anxiety, sometimes feeling good and sometimes feeling bad. In that I was studying for university exam I used to get sick. Then I finished graduation in 2020, then 2021 again admission post graduation but again I got very sick for 4 months in a row. I had a 30% lung infection due to coughing and vomiting, and I was very dry and all my hair fell out and I had allergies.
In 2022, I was diagnosed with mild heart problems and increased sweating, which is still present. In 2023, more food poisoning followed by ulcers, and again this year, food poisoning. Lupus hell my life, and day by day, I am getting weaker mentally. I just want to live alone. I don't like crowded gatherings. I just miss my sister very much, and I remember how she felt that time, and when I remember that time, I felt so sick and weak. Lupus any time reminds me what is pain.