Quantavia G. - Diagnosed at age 31
How long did it take to get a lupus diagnosis and what were your initial symptoms?
I found out that I had lupus one year after having my last child. My symptoms were body aches, stiff joints, knots on my arms, swollen feet and numbness in hands.
What are your current symptoms and what would you like others to know about lupus?
So far, my symptoms aren’t as bad as they were in the beginning. I do have my bad days to the point where my fingers swell, especially my thumbs. My chest tightens up, knots in my arms and pain in my joints. Having lupus can be very difficult to have. I may look fine on the outside, but on the inside, my body is fighting.
How has lupus impacted your daily life and future?
Lupus has really affected me far as not being able to be in direct sunlight for a certain amount of time. Due to having kids and going to places where I will come in contact with direct sunlight really is bad for me. I have to constantly go out to keep from being directly in the sun and it kinds of interfere with me being able to stay out with my children longs hours of the day. During the winter, I definitely can’t be outside because if I become too cold, I tend to swell up and start blistering and itching. The itching is irritating and the swelling is painful. I have accepted that this illness is permanently with me.
What has helped you manage lupus and have you engaged with any Lupus Foundation of America resources or programs?
Resting when my body tells me to and avoiding a lot of stress. Having a great support system helps out a lot as well. The days when I’m feeling down and have no energy, my family really steps up and help take care of me and the things that needs to be done around the house.
What gives you hope?
My children give me hope. Being in their presence and having that bonding time makes me fight even harder to be here for them. Praying and asking God to heal my body has given me hope also. I am a strong black woman and I will not give up for the sake of my family.