Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose, hard to live with, and a challenge to treat. Lupus is a cruel mystery because it is hidden from view and undefined, has a range of symptoms, strikes without warning, and has no known cause and no known cure.
Our lupus toolkit is designed to provide you with guidance, support, and advice, whether you have been a patient, caregiver, or physician for days, months, or even years. The toolkit resource is here to be your guide through this cruel mystery. Click Here For Toolkit
(The links below will redirect you to the LFA National site. Be sure to set Greater Ohio as your chapter to stay involved locally.)
April 28, 2020 - The Lupus Foundation of America, Greater Ohio Chapter (LFA, GOC) is taking precautions due to the national outbreak of COVID-19 (coronavirus). We're continuing to put all in-person events on hold until further notice. This includes support groups, New Patient Education Classes, summits, and kNOw Lupus Zones.The Walk to End Lupus Now® in Cincinnati and Columbus will be postponed until further notice. In addition to these events, we also discourage people with lupus from attending events with large crowds, such as health fairs.
Our goal is to decrease opportunities to spread COVID-19. Your health and well-being are our top priority. We know that these are difficult times, but be assured that we are still here to support you. As we cease and postpone events, we are also making efforts to accommodate your needs via digital outlets. Please feel free to reach out to us if you need assistance accessing digital resources and programs.
We urge you not to panic, but rather, to take efforts to protect yourself and turn to reliable sources to stay informed. Visit our COVID-19 and Lupus page for news, information, and resources. The U.S. Centers for Disease Control and Prevention (CDC) also has information for people at higher risk of serious illness from COVID-19. If you have any questions, concerns, or need assistance in navigating life with lupus, please email the LFA, GOC office Info@LupusGreaterOhio.org or call 1 (888) NO-LUPUS. Pay close attention to LFA, GOC emails, LupusGreaterOhio.org, and @lupusgreateroh on social media for updates. As always, we are so grateful for your continued support of the LFA, GOC.
Join us March 2 – 4, for the nation’s largest lupus advocacy event! We’ll join together for two days of educational sessions on advocacy, research, drug development and support services, while you get to virtually network with others in the lupus community. Then, you can meet virtually with your members of Congress to advocate for policies to improve the quality of life for everyone affected by lupus.Register Now
What do children with pediatric lupus have to think about when planning a life of their own? Learn from pediatric rheumatologist Dr. Joyce Chang and people who have experienced this lifestyle change about the transition from pediatric lupus to adult lupus.Register Now
A lupus diagnosis often brings many physical changes including hair loss, a common side effect of lupus. Join us on March 10 at 7 pm for this in-depth webinar featuring Dr. Amy McMichael. She will discuss how hair and scalp disorders present in patients with lupus and approaches to treatment. She will also review other forms of hair loss that may complicate lupus-related hair loss.Register Now
My Lupus Living Room
The Lupus Foundation of America, Greater Ohio Chapter welcomes you to a space where we get real about what it’s like to live with lupus. Join our host, chapter President & CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.
Interested in sharing your story and being featured in an episode? Send an email to Suzanne@LupusGreaterOhio.org.
If you need to speak with us, please call the office at 1 (888) NO-LUPUS.
Learn more about the many programs and services we offer including support groups and new patient education classes.
Participate in these live educational presentations designed to provide you with important information about living with lupus.
No two people have the same lupus journey. Click here to read about some lupus warriors!
**Select programs funded by the Ohio Commission on Minority Health.