Participate in Investigator-Initiated Studies

Researchers from Ball State University College of Health are seeking volunteers to participate in a study researching the specific symptoms of “brain fog” associated with Systemic Lupus Erythematosus. Study participants will complete a brief online survey regarding language deficits (aphasia) that might occur during moments of “brain fog.”  The study seeks information from both individuals diagnosed with SLE and their care partners. The survey should take no more than 15 minutes to complete. Survey responses are kept anonymous, meaning no identifying information, such as names, will appear in any publication or presentation of the data.

Participant Eligibility (Self-report survey):

• Diagnosed with SLE.
• Aged 18 years or older.
• Located: United States of America

Participant Eligibility (Caregiver survey):

• A self-reported care partner or loved one of an individual diagnosed with SLE
• Aged 18 years or older.
• Located: United States of America

For more information regarding this study, please contact Melissa McGrath, PhD, CCC-SLP at Mamcgrath@bsu.edu

Study’s end recruitment date: Rolling/ TBD

Researchers at Baylor College of Medicine are seeking 25 individuals experiencing lupus symptoms who have not yet been diagnosed or are facing challenges in obtaining a diagnosis to participate in a 60-minute interview. The goal of this study is to conduct interviews to gain insight into your experiences and enhance the understanding and prevention of diagnostic errors— instances where health conditions are not accurately or promptly identified. Insights from these interviews will help develop tools tailored to meet the diverse needs of patients, especially those from historically marginalized groups. The findings will support patient-centered strategies to identify, address, and reduce diagnostic errors in healthcare. Compensation is available upon completion of the interview.

Participant Eligibility:

• Black or African-American, Asian, Arab or Middle Eastern Descent.
• Latinx or Hispanic.
• Female, Non-binary, or Transgender.
• Aged 18 years or older.
• Have not been diagnosed with Lupus yet but have symptoms and difficulty receiving diagnosis.
•  Located: United States of America

For more information regarding this study, please contact Dr. Sheryl Jefferson at Sheryl.Jefferson@bcm.edu.

Study’s end recruitment date: Rolling; Dependent on when sample size is reached.
 

Researchers from Stanford University are seeking volunteers to participate in a study to evaluate the feasibility and acceptability of using wearable digital health technology for continuous monitoring of physiological, sleep, and physical activity data in adolescents with chronic musculoskeletal pain. This research aims to develop objective digital endpoints of the pain experience to improve diagnosis, prevention, and treatment outcomes.

Participant Eligibility:

• Aged 14-24 years old
• Experiencing musculoskeletal pain in one or more regions lasting over 3 months, causing significant distress or life interference
• Located in the United States
• Able to read and understand English (USA) language
• Must have internet access

Compensation: Up to $210 available to participant upon completion of study.

For more information regarding this study, please visit bpp.stanford.edu/trac-pain/ or contact Ms. Sahrish Masood at sahrishm@stanford.edu. 

Study’s end recruitment date: November 30, 2026