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Participate in Investigator-Initiated Studies

What are investigator-initiated studies? 

These studies are conducted by individual researchers who have control over the study and its design, as opposed to larger studies conducted by companies or institutions that may have an entire research team. Researchers may or may not be funded to conduct these studies. All studies we share must be certified by an ethics review committee, such as an Institutional Review Board (IRB). We do not share study information without proof of approval.

Study Opportunities
Brain Fog in Different Chronic Condition Populations

Researchers at Kent State University at Salem Department of Psychological Sciences are very interested in how you experience "brain fog," a subtle cognitive impairment that is sometimes also known as "fibro fog," Functional Cognitive Disorder, or more simply, cognitive dysfunction. We are asking people to participate in a phone interview that will last between 30 and 45 minutes. 

Please email for more information regarding this study.

Lupus and COVID-19 Health Information

A research team led by Drs Ann Clarke (University of Calgary) and Susan Elliott (University of Waterloo) is conducting a study on how individuals with Systemic Lupus Erythematosus access health information. Participation involves completing a 15-minute online survey related to how you access health-related information generally, and during the COVID-19 outbreak. Get further information and access the survey here.

For more information regarding the study, please contact

For Researchers

If you are a researcher interested in sharing your study information, please submit inquires with study details, a signed copy of IRB approval on institutional letterhead, and the subject line "Investigator Initiated Studies Posting Request" via e-mail to The Lupus Foundation of America reviews and approves all investigator-initiated studies prior to posting on our website.