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Participate in Investigator-Initiated Studies

What are investigator-initiated studies? 

These studies are conducted by individual researchers who have control over the study and its design, as opposed to larger studies conducted by companies or institutions that may have an entire research team. Researchers may or may not be funded to conduct these studies. All studies we share must be certified by an ethics review committee, such as an Institutional Review Board (IRB). We do not share study information without proof of approval.

Study Opportunities

Lupus and COVID-19 Health Information

A research team led by Drs Ann Clarke (University of Calgary) and Susan Elliott (University of Waterloo) is conducting a study on how individuals with Systemic Lupus Erythematosus access health information. Participation involves completing a 15-minute online survey related to how you access health-related information generally, and during the COVID-19 outbreak. Get further information and access the survey here.

For more information regarding the study, please contact fcardwel@uwaterloo.ca

Global Rheumatology Alliance Telemedicine Survey

Take the Global Rheumatology Alliance's survey on telemedicine. If you are living with lupus (or other rheumatic disease) or are the parent or caregiver, share your perspectives on the use of telemedicine in your rheumatologic care during the COVID-19 pandemic. Access the survey here.

SLE and COVID-19 Vaccine Antibody Study

Researchers at Johns Hopkins are enrolling people with SLE in a study to determine COVID-19 antibody levels in those who have received or plan to receive the COVID-19 vaccine. Participants will receive their antibody results. The study does not provide the vaccine, and study team members will not be offering guidance as to whether one should or should not receive the COVID-19 vaccine. Participating in the study includes completing surveys and getting multiple blood draws to track antibody development. Access the study here. Please email vaccineresponse@jhmi.edu for more information regarding this study.

Lupus and COVID-19 Vaccine Research Study

A research team led by Dr Rebecca Sadun (Duke University) is conducting a study into how individuals with lupus feel about the COVID-19 vaccine. Participation involves completing a 10-15 minute online survey about your thoughts on the COVID-19 vaccine and whether you have gotten or plan to get the vaccine. Get further information and access the survey here.

For Researchers

If you are a researcher interested in sharing your study information, please submit inquires with study details, a signed copy of IRB approval on institutional letterhead, and the subject line "Investigator Initiated Studies Posting Request" via e-mail to researchstudy@lupus.org. The Lupus Foundation of America reviews and approves all investigator-initiated studies prior to posting on our website.