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Voices of Lupus

Voices of Lupus is a living collection of personal stories that tell the serious and devastating health effects of lupus, while providing hope and inspiration for all lupus warriors fighting this cruel disease. If you have lupus or have been touched by this disease and would like to share your story, please do so here.

Need help on what to write? Consider the questions below as you think of what you want to share.

How long did it take to get a lupus diagnosis and what were your initial symptoms?
What are your current symptoms and what would you like others to know about lupus?
How has lupus impacted your daily life and future?
What has helped you manage lupus and have you engaged with any Lupus Foundation of America resources or programs?
What gives you hope?

Your story matters

First Name

Last Name

What is your closest connection to lupus?

Estado/Provincia

ZIP/Postal Code

Birth Year

Age Diagnosed

Race and/or Ethnicity

Which of the following have made a difference on your lupus journey? (Select all that apply)

Your answers help demonstrate how lupus programs and events make a difference.

Lupus community events such as the Walk to End Lupus Now®, Lupus & You Empowerment Conferences and National Lupus Advocacy Summit

Lupus research, including the availability of lupus-specific treatments, advances in care, and RAY® Lupus Registry

Lupus education and support programs, such as our self-management app SELF and National Resource Center on Lupus – the go-to online source for lupus information

Lupus awareness programs, such as Be Fierce. Take Control. and Lupus Awareness Month

Health programs such as Medicare, Medicaid, the Health Insurance Marketplace (Affordable Care Act) and programs available to members of the military and veterans

Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI)

Otros...

Tell us your story

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Must be JPG or PNG and include the person the story is about.

To help ensure consistency and quality, please keep the following guidelines in mind when taking or selecting a photo:

Avoid visible brands or logos on shirts, hats and other clothing
Make sure the image isn’t too close up (shots from the stomach or chest up work best)
Look directly at the camera
Skip the flash if you can - natural lighting looks best

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