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2024 National Lupus Advocacy Summit

Learn. Connect. Advocate.

Join lupus warriors from all over the country for the largest lupus advocacy event of the year in Washington, DC! From May 19–21, Summit attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of their fellow lupus warriors and advocate for increased research funding, ensure access to care and advance policies to improve the lives of all people with lupus. Don’t miss your chance to turn Capitol Hill purple once again!

What you'll do at the 2024 National Lupus Advocacy Summit:

Each year, the National Lupus Advocacy Summit brings together the entire lupus community in pursuit of our shared goal: a world without lupus. At the 2024 Summit, you'll help us build on our past successes and push for more.

book
Learn.

Hear firsthand from the brightest minds researching and treating this disease and receive training on how to advocate for yourself and others with lupus throughout the entire year.

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Connect.

There's no other event in the world that brings together as many people affected by lupus as the Summit. Be surrounded by those who understand your challenges and can help you manage them.

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Advocate.

Meet with your members of Congress to tell your lupus story and urge them to join our fight against this terrible disease by supporting policies to improve the lives of all people affected by lupus.

The National Lupus Advocacy Summit is the keystone of our comprehensive advocacy program that has generated more than $684 million in federal funding for lupus research in the last five years.

Attend the 2024 National Lupus Advocacy Summit in Washington, DC

We can't turn Capitol Hill purple without you! We hope you'll join us in Washington this May for a truly impactful event.

Overview of In-Person Summit Events
Sunday, May 19

Welcome to Washington! Get checked in, grab your materials for the rest of the Summit and say hello to Lupus Foundation of America staff and your fellow advocates at our Welcome to Washington reception. Then, rest up before the Summit begins bright and early the next morning!

Monday, May 20

Get ready to learn! We'll get started early Monday morning at the JW Marriott with sessions detailing the latest breakthroughs in lupus research and drug development and what they will mean for you. After lunch, you'll hear about the legislative landscape and the priority policies we will be taking to Capitol Hill on Tuesday. Lupus Foundation of America staff will fully prepare you with everything you'll need for successful meetings with your members of Congress – from navigating congressional office buildings to telling your story in the most impactful way

Tuesday, May 21

It all builds to this! Put on your purple and head to Capitol Hill, where we will have arranged meetings for you with your members of Congress. You'll meet with the offices of your U.S. Representative and both of your U.S. Senators to tell them how lupus has changed your life and what they can do to join our fight against this devastating disease. After your meetings, join us back at the JW Marriott to debrief your day with Lupus Foundation of America staff and your fellow advocates.

Registration Details

Your Summit registration fee of $50 provides you with an all-access pass to the 2024 National Lupus Advocacy Summit. We collect this fee to reserve your spot at the event and help offset the costs associated with planning and executing an event of this size. The registration fee is waived for advocates 18 or under.

Included in your registration fee is:

  • Exclusive access to our discounted room rate at the JW Marriott, Washington, DC
  • Breakfast, lunch, and snacks throughout the day on Monday, May 20
  • Breakfast on Tuesday, May 21 and refreshments after your meetings on Capitol Hill
  • Discounted transportation to and from Capitol Hill for your congressional meetings
  • Scheduled meetings with your members of Congress and access to a mobile app to help you navigate Capitol Hill, keep notes on your meetings, engage your members of Congress on social media, and more.

After you register for the Summit, you'll receive much more information to help you prepare for your trip to Washington. The week before the Summit, we will host a webinar to review everything you need to know and answer any final questions you may have. If you have any questions in the meantime, please contact us.

Register Now for the 2024 National Lupus Advocacy Summit

Hotel Information

The 2024 Summit will be hosted at the JW Marriott in Washington, DC. All Summit events will be held in the hotel, with the exception of the congressional meetings on May 21. After registering for the Summit, you'll receive access to reserve a room at our discounted room block in the JW Marriott. The room rate is $339/night.

Summit Scholarships

The Foundation will provide scholarships for advocates to attend the Summit. Scholarships are limited, and we unfortunately are not able to provide scholarships for everyone who applies. The deadline to apply for a scholarship was February 11th and we are no longer accepting applicants.

Congressional Meetings

The Foundation will use the address you provide when registering to schedule meetings for you with your three members of Congress. Please do not attempt to schedule your own meetings. Click here to find out who represents you in Congress.

Traveling with Lupus

If you are living with lupus and planning to attend the Summit, check out our guide to traveling with the disease and this helpful packing list as you prepare for your trip to Washington. If you have specific nutritional needs or require ADA hotel accommodations, please contact Ameenah Habib after you have registered for the Summit. 

An image of the virtual lobby from the 2022 Digital Lupus Advocacy Summit.
Virtual Access to the 2024 Summit

For advocates unable to travel to Washington, DC this May, we will provide an opportunity for advocates to participate virtually by streaming Summit sessions and connecting with their fellow advocates, and urging their members of Congress to support policies to improve the lives of people with lupus. Please stay tuned for the virtual registration!

An image of the US Capitol dome against a blue sky with a white and purple stamp reading "Turn Capitol Hill Purple"

We understand that traveling to Washington can be costly. It's important to us that we provide advocates every opportunity to be a part of this powerful event, and that's why we developed this fundraising guide to help you offset the cost of attending the Summit. The guide will help you budget for your trip, leverage the power of crowdsourcing, and much more.

Download the Guide

For questions about the 2024 National Lupus Advocacy Summit, please contact Ameenah Habib at habib@lupus.org