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Participate in Investigator-Initiated Studies

What are investigator-initiated studies? 

These studies are conducted by individual researchers who have control over the study and its design, as opposed to larger studies conducted by companies or institutions that may have an entire research team. Researchers may or may not be funded to conduct these studies. All studies we share must be certified by an ethics review committee, such as an Institutional Review Board (IRB). We do not share study information without proof of approval.

Current Studies
Vaccination Coverage Level in Patients with Systemic Lupus Erythematosus: VA-LES Study

    Around the world, the coverage level for vaccines against pneumonia or influenza in people with lupus is unknown. Vaccines are very important to prevent serious respiratory infections. We invite you to complete a brief survey about vaccination coverage that will take you 3-4 minutes to complete.

    The objectives of this study are to:

    1. Know the vaccination coverage level of patients with lupus
    2. Investigate the reasons why patients are not vaccinated
    3. Measure the frequency of risk for infection (other than lupus) among those not vaccinated

    The survey is anonymous, and no confidential data will be collected.

    Principal Investigator: Dr. Edson Hernan Chiganer, MD, Hospital Carlos G. Durand, Buenos Aires, Argentina

    Survey Link: https://goo.gl/forms/a6ANdlHOHfuTxsxC3

    Use of Health-Related Social Media by Parents of Children with Rheumatic Diseases

    We are working with a PARTNERS researcher to explore whether parents are using social media to learn about their child’s health condition, and how this may affect their child’s medical care.

    We are inviting you to complete a short, 10-minute anonymous survey about your social media use. The survey was developed in partnership with several parents of children with rheumatic illnesses, with the goal of providing support and improving resources available to families.

    Principal Investigator: Dr. Jonathan S. Hausmann, MD, Boston Children's Hospital

    Survey Link: www.lupus.org/PARTNERS_socialmediasurvey

    For Researchers

    If you are a researcher interested in sharing your study information, please submit inquires with study details, a signed copy of IRB approval on institutional letterhead, and the subject line "Investigator Initiated Studies Posting Request" via e-mail to [email protected]. The Lupus Foundation of America reviews and approves all investigator-initiated studies prior to posting on our website.