Providing Answers, Support and Hope in Pennsylvania, Delaware and Southern New Jersey

Researchers at NYU Langone Health are conducting a multicenter clinical research study to better understand the safety and immune response of the herpes zoster subunit vaccine (Shingrix) in adults living with systemic lupus erythematosus. This randomized, double-blind, placebo-controlled crossover study compares the vaccine to placebo in people with lupus who have varying levels of disease activity and different medication exposures. The study will examine whether receiving the vaccine increases the risk of moderate or severe lupus flares within 24 weeks and how well people with lupus develop an immune response compared to what has been observed in healthy individuals in previous studies. The goal is to help improve understanding of shingles vaccination safety and effectiveness for people living with lupus.

Participant Eligibility:

•  Aged 18 years or older
• Have a diagnosis of systemic lupus erythematosus based on established classification criteria
• Able to provide informed consent
• Willing to follow study requirements, including contraception guidelines if applicable
• Must not have previously received the shingles vaccine or had a recent shingles infection
• Must not be pregnant, nursing, or planning pregnancy during the study
• Must not have had recent severe lupus flares, certain infections, or specific immune-suppressing treatments, as determined by the study team

Compensation: Participants will be reimbursed for travel and lodging expenses related to study visits, up to $65 per visit, with receipts required for reimbursement.

For more information regarding this study, please visit https://clinicaltrials.med.nyu.edu/clinicaltrial/2289/multicenter-randomized-double-blind-placebo-controlled/ or contact  Ms. Alice Hogan at Alice.hogan@nyulangone.org or 646-501-7386.

Study’s end recruitment date: July 30, 2026

Researchers from Ball State University College of Health are seeking volunteers to participate in a study researching the specific symptoms of “brain fog” associated with Systemic Lupus Erythematosus. Study participants will complete a brief online survey regarding language deficits (aphasia) that might occur during moments of “brain fog.”  The study seeks information from both individuals diagnosed with SLE and their care partners. The survey should take no more than 15 minutes to complete. Survey responses are kept anonymous, meaning no identifying information, such as names, will appear in any publication or presentation of the data.

Participant Eligibility (Self-report survey):

• Diagnosed with SLE.
• Aged 18 years or older.
• Located: United States of America

Participant Eligibility (Caregiver survey):

• A self-reported care partner or loved one of an individual diagnosed with SLE
• Aged 18 years or older.
• Located: United States of America

For more information regarding this study, please contact Melissa McGrath, PhD, CCC-SLP at Mamcgrath@bsu.edu

Study’s end recruitment date: Rolling/ TBD

Researchers at Baylor College of Medicine are seeking 25 individuals experiencing lupus symptoms who have not yet been diagnosed or are facing challenges in obtaining a diagnosis to participate in a 60-minute interview. The goal of this study is to conduct interviews to gain insight into your experiences and enhance the understanding and prevention of diagnostic errors— instances where health conditions are not accurately or promptly identified. Insights from these interviews will help develop tools tailored to meet the diverse needs of patients, especially those from historically marginalized groups. The findings will support patient-centered strategies to identify, address, and reduce diagnostic errors in healthcare. Compensation is available upon completion of the interview.

Participant Eligibility:

• Black or African-American, Asian, Arab or Middle Eastern Descent.
• Latinx or Hispanic.
• Female, Non-binary, or Transgender.
• Aged 18 years or older.
• Have not been diagnosed with Lupus yet but have symptoms and difficulty receiving diagnosis.
• Located: United States of America

For more information regarding this study, please contact Dr. Sheryl Jefferson at Sheryl.Jefferson@bcm.edu.

Study’s end recruitment date: Rolling; Dependent on when sample size is reached.
 

Researchers from the University of Michigan are inviting people living with systemic lupus erythematosus to participate in a national, online survey-based study focused on understanding the real-world, day-to-day experiences of people with lupus.

This observational study is broken into three parts and asks participants to share information about their symptoms, including fatigue, pain, mood, and sleep; their physical activity habits and any challenges with daily functioning; their overall health and other medical conditions; and social or environmental factors that may affect their health. The study also gathers input on what types of exercise programs would feel most useful, accessible, and realistic for the lupus community, with the goal of using participant feedback to help inform and design future programs and resources that better reflect the needs, preferences, and priorities of people living with lupus.

Participant Eligibility:

• Aged 18 years or older
• Have a physician-confirmed diagnosis of systemic lupus erythematosus
• Able to complete online surveys in English
• Have access to a smartphone, tablet, or computer
• Located in the United States or U.S. territories

Compensation: Up to $60 available to participants upon completion of all study surveys ($15 for Part I, $15 for Part II, and $30 for Part III).

For more information regarding this study, please visit https://redcap.link/lupussurvey or contact Ms. Jen Lin at lupussurvey@umich.edu. 

Study’s end recruitment date: February 28, 2026

Researchers from Stanford University are seeking volunteers to participate in a study to evaluate the feasibility and acceptability of using wearable digital health technology for continuous monitoring of physiological, sleep, and physical activity data in adolescents with chronic musculoskeletal pain. This research aims to develop objective digital endpoints of the pain experience to improve diagnosis, prevention, and treatment outcomes.

Participant Eligibility:

• Aged 14-24 years old
• Experiencing musculoskeletal pain in one or more regions lasting over 3 months, causing significant distress or life interference
• Located in the United States
• Able to read and understand English (USA) language
• Must have internet access

Compensation: Up to $210 available to participant upon completion of study.

For more information regarding this study, please visit bpp.stanford.edu/trac-pain/ or contact Ms. Sahrish Masood at sahrishm@stanford.edu. 

Study’s end recruitment date: November 30, 2026