When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
At one time lupus was thought to be more severe in children than in adults, but most physicians no longer believe this. However, children diagnosed with lupus often have been ill for a longer period before the diagnosis is made, and therefore are more likely to have significant internal organ involvement than most adults with lupus.
News & Stories
Results from a small pilot study provide hope that lupus disease activity can be suppressed in children with lupus. Read more.
Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.
Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.
Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.
Although the overall risk is small, children born to mothers with lupus may have a higher risk of autism spectrum disorders than children born to mothers without the disease, according to the results of a study presented this week at the American College of Rheumatology Annual Scientific Meeting in San Diego.
A team of lupus researchers has identified a potential new biomarker that may be helpful in determining whether a person with lupus is at risk for developing organ damage.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.
Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.
The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.
When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.
The researchers hoped to learn about the long-term outcomes of bone mass density (BMD) in children newly diagnosed with lupus.
The researchers hoped to learn about the prevalence of low bone mineral density (BMD), as well as to identify risk factors for its development, in a large cohort of newly diagnosed children and adolescents with lupus.
The researchers hoped to learn about the safety and efficacy of atorvastatin (Lipitor®) in reducing cholesterol in children with lupus.
The researchers hoped to learn about the effects of lupus and/or its treatments on multiple indicators or growth and development in children.
Dr. Emily von Scheven of the University of California at San Francisco discusses the development of consensus treatment plans for proliferative nephritis in juvenile systemic lupus.
How 504 Plans and IEPs Can Help Children With Lupus Succeed in School
Current treatments for lupus nephritis in children are toxic and sometimes ineffective. New tests for proteins that might be abnormal in lupus nephritis could help make the diagnosis earlier and might also point to new ways of treating the disease.
For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.
Dr. Jill Buyon of the New York University School of Medicine, a leading authority on congenital heart block in neonatal lupus, discusses this rare complication and the next steps in the study of neonatal lupus.
Dr. Kathleen O'Neil discusses a multi-center longitudinal observational study of girls with prepubertal onset lupus as they approach and pass through puberty, measuring hormone levels, autoantibodies and markers of lupus activity.
Neuropsychiatric lupus (NPSLE) is difficult to diagnose and can be present when disease activity in other organs cannot be identified. The researchers hoped to learn whether antibodies to ganglioside M1 could predict childhood NPSLE any better than standard laboratory measures currently in use.
LFA-Funded Research Improves the Outlook for Childhood Lupus
Dr. Emily Von Scheven, Director of Pediatric Rheumatology at the University of California San Francisco Medical Center, discusses the issues surrounding bone health in children with lupus and other health issues associated with treatment of lupus.
Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.
How to Stay Upbeat When Dealing with Lupus
Steroids are frequently used to treat lupus because they are highly effective and work quickly. However, steroids have many serious side effects. How much of a risk this may pose for children with lupus or younger adults with lupus has not been well-studied.
The researchers wanted to find out whether the amount of leptin, adiponectin, or ghrelin in children with lupus might be different than in children without lupus.
The Heartland Chapter’s Summer Jam Youth Retreat is the only LFA-sponsored camp in the country for young women with lupus.
Learn about what to expect in the future for a child living with lupus.
Our Annual Lupus Symposium in Augusta has moved to March 22, 2014!
Our Social Butterfly group is a non-mediated, casual gathering where lupies and/or their loved ones can gather to talk, get to know one another, share stories, and make friends. Sometimes it helps to share your experiences with people who really "get it"! *Groups also meet in American Fork, and St. George. Follow Link for more information.
Questions about coping with Lupus? Sign up today!
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!