At one time lupus was thought to be more severe in children than in adults, but most physicians no longer believe this. However, children diagnosed with lupus often have been ill for a longer period before the diagnosis is made, and therefore are more likely to have significant internal organ involvement than most adults with lupus.


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How can I keep my child’s school up to date on how lupus is affecting them?

Is lupus nephritis in children treated differently than in adults?

Do children have neuropsychiatric lupus symptoms?

Can children develop lupus nephritis?

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Should I explain my child’s lupus to teachers and extracurricular activities leaders?

Will my child’s vision health be affected by lupus treatments?

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Will my child’s bone health be affected by lupus treatments?

Is there a specific diet for children with lupus?

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Is there an increased risk of infections in children with lupus?

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What are flares and triggers in children with lupus?

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Is lupus the same in children and adults?

How is lupus diagnosed in children?

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What are 504 Plans and IEPs?

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What is neonatal lupus?


News & Stories

Blog | Apr. 15, 2014

Caregivers, You Are Not Alone

Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.

Research News | Apr. 14, 2014

Research May Help Clinicians Improve Quality of Life among Children with Lupus

A new study supported by the Lupus Foundation of America and published in Arthritis and Rheumatology offers clinicians and researchers a new way to better understand how various treatments may impact the quality of life of children and adolescents living with lupus.

Magazine | Feb. 05, 2014

Parental Support - Finding guidance for Mom and Dad

When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.

Research News | Feb. 04, 2014

Pilot Study Testing a Combination of Immunosuppressive Drugs Holds Promise for Children with Lupus

Results from a small pilot study provide hope that lupus disease activity can be suppressed in children with lupus. Read more.

Research News | Dec. 05, 2013

Cancer Risk May Be Higher Among Young Patients with Lupus

Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.

Podcasts | Nov. 12, 2013

App Assists Transition from Pediatric to Adult Lupus Care

Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.

Podcasts | Nov. 08, 2013

Pediatric Lupus Health-Related Quality of Life Research

Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.

Research News | Oct. 28, 2013

Children Born to Mothers with Lupus Might be at Increased Risk of Autism

Although the overall risk is small, children born to mothers with lupus may have a higher risk of autism spectrum disorders than children born to mothers without the disease, according to the results of a study presented this week at the American College of Rheumatology Annual Scientific Meeting in San Diego.

Magazine | Jul. 01, 2013

Understanding Your Child’s Eye & Heart Health

Being the health care advocate for a child with lupus is a full-time job, and follow-up and preventive care, especially for the eyes and heart, are critically important. Start care early for long-term benefits.

Research News | Jan. 24, 2013

Protein Predicts Lupus-Related Organ Damage

A team of lupus researchers has identified a potential new biomarker that may be helpful in determining whether a person with lupus is at risk for developing organ damage.

Magazine | Nov. 01, 2012

Growing Up: Teens, young adults must learn to manage lupus on their own

For many young people with lupus, the transition to caring for themselves as adults is challenging.

Research News | Oct. 16, 2012

Depression Among Girls with Lupus

The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.

Podcasts | Sep. 11, 2012

Parents Caring for Children with Lupus

Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.

Research News | Aug. 15, 2012

Academic Performance in Children With Lupus

The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.

Magazine | Jul. 01, 2012

Circle of Hope: Erin Luciano

When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.

Research News | May. 16, 2012

Predictors of Bone Density Changes in Children with Lupus

The researchers hoped to learn about the long-term outcomes of bone mass density (BMD) in children newly diagnosed with lupus.

Research News | Feb. 17, 2012

Reduced Bone Density in Newly Diagnosed Children with Lupus

The researchers hoped to learn about the prevalence of low bone mineral density (BMD), as well as to identify risk factors for its development, in a large cohort of newly diagnosed children and adolescents with lupus.

Research News | Jan. 20, 2012

First Ever Study of Cholesterol-Lowering Drugs in Children With Lupus

The researchers hoped to learn about the safety and efficacy of atorvastatin (Lipitor®) in reducing cholesterol in children with lupus.

Research News | Dec. 02, 2011

Reduced Growth and Delayed Puberty in Children with Lupus

The researchers hoped to learn about the effects of lupus and/or its treatments on multiple indicators or growth and development in children.

Podcasts | Nov. 16, 2011

Developing Consensus Treatment Plans for Pediatric Lupus Nephritis

Dr. Emily von Scheven of the University of California at San Francisco discusses the development of consensus treatment plans for proliferative nephritis in juvenile systemic lupus.

Magazine | Nov. 01, 2011

School Rules

How 504 Plans and IEPs Can Help Children With Lupus Succeed in School

Research News | Mar. 04, 2011

New Blood Tests May Improve the Tracking of Lupus Kidney Disease in Children

Current treatments for lupus nephritis in children are toxic and sometimes ineffective. New tests for proteins that might be abnormal in lupus nephritis could help make the diagnosis earlier and might also point to new ways of treating the disease.

Magazine | Mar. 01, 2011

Bone Health: Ways Children and Adults Can Reduce Their Fracture Risk

For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.

Video | Feb. 14, 2011

Congenital Heart Block in Neonatal Lupus

Dr. Jill Buyon of the New York University School of Medicine, a leading authority on congenital heart block in neonatal lupus, discusses this rare complication and the next steps in the study of neonatal lupus.

Video | Feb. 11, 2011

Effect of Pubertal Hormone Changes on Lupus

Dr. Kathleen O'Neil discusses a multi-center longitudinal observational study of girls with prepubertal onset lupus as they approach and pass through puberty, measuring hormone levels, autoantibodies and markers of lupus activity.

Research News | Feb. 10, 2011

New Combination of Antibodies May Better Predict Childhood Neuropsychiatric Lupus

Neuropsychiatric lupus (NPSLE) is difficult to diagnose and can be present when disease activity in other organs cannot be identified. The researchers hoped to learn whether antibodies to ganglioside M1 could predict childhood NPSLE any better than standard laboratory measures currently in use.

Magazine | Nov. 01, 2010

Safeguarding Our Youth:

LFA-Funded Research Improves the Outlook for Childhood Lupus

Video | Oct. 29, 2010

Bone Health in Children with Lupus

Dr. Emily Von Scheven, Director of Pediatric Rheumatology at the University of California San Francisco Medical Center, discusses the issues surrounding bone health in children with lupus and other health issues associated with treatment of lupus.

Video | Oct. 22, 2010

Health-Related Quality of Life Measures in Children with Lupus

Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.

Magazine | Jul. 01, 2010

Self-Esteem Survival Skills

How to Stay Upbeat When Dealing with Lupus

Research News | Mar. 23, 2010

Earlier Steroid Treatment In Pediatric Lupus Patients Is Related to Higher Risk of Bone Disease

Steroids are frequently used to treat lupus because they are highly effective and work quickly. However, steroids have many serious side effects. How much of a risk this may pose for children with lupus or younger adults with lupus has not been well-studied.

Research News | Jan. 20, 2010

Potential New Indicators of Lupus Being Studied in Children

The researchers wanted to find out whether the amount of leptin, adiponectin, or ghrelin in children with lupus might be different than in children without lupus.


Events

May. 31, 2014 | Florida

Michael Jon Barlin Scholarship

LFA Florida is privileged to offer an annual $5,000 scholarship to support educational expenses of a Florida resident diagnosed with lupus.

Jun. 04, 2014 7:00 pm—Jul. 04, 2014 8:00 pm | Teleconferences

Ask the Experts:Pediatric Lupus

Learn about what to expect in the future for a child living with lupus.

Jun. 10, 2014 6:00 pm | Indian River State College, Schreiber Conference Center

Redefining Lupus: Putting the Pieces Together (Treasure Coast)

Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.

Apr. 26, 2014 7:00 pm | Scottish Rite Ballroom & Theater

Classical Ballet Academy’s DANCE COLLABORATIONS

Jun. 06, 2014—Jun. 08, 2014 | POTOSI MO

SUMMER JAM YOUTH RETREAT

The Heartland Chapter’s Summer Jam Youth Retreat is the only LFA-sponsored camp in the country for young women with lupus.

Jun. 04, 2014 7:00 pm

Ask the Experts Teleconference: Pediatric Lupus

Learn about what to expect in the future for a child living with lupus.

May. 31, 2014 1:00 pm | Asia Pacific Cultural Center

The Many Shades of Lupus

Mar. 22, 2014 1:00 pm

Augusta Lupus Empowerment Symposium

Our Annual Lupus Symposium in Augusta has moved to March 22, 2014!

Aug. 21, 2013 6:00 pm | Broadlawns Medical Center

Support Group

May. 07, 2014 6:30 pm | Salt Lake City*

Social Butterflies

Our Social Butterfly group is a non-mediated, casual gathering where lupies and/or their loved ones can gather to talk, get to know one another, share stories, and make friends. Sometimes it helps to share your experiences with people who really "get it"! *Groups also meet in American Fork, and St. George. Follow Link for more information.

Sep. 21, 2013 9:00 am | Kansas City

Kansas City Behind the Mask Education Conference

Questions about coping with Lupus? Sign up today!

Sep. 28, 2013 9:00 am | Jordan Creek Town Center lake area, West Des Moines, IA

Walk to End Lupus Now

Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!