Highschooler Bethany Lindeblad has her world turned upside down with an unexpected lupus diagnosis.
At one time lupus was thought to be more severe in children than in adults, but most physicians no longer believe this. However, children diagnosed with lupus often have been ill for a longer period before the diagnosis is made, and therefore are more likely to have significant internal organ involvement than most adults with lupus.
News & Stories
Neuropsychiatric lupus mainly affects children and young adults and can weaken cognitive functions. With a new non-invasive imaging technique, the damage can now be studied.
New study results show that a short questionnaire designed for adolescents to assess the impact of lupus on quality of life makes it easier for them to report their mental, physical, and social well-being.
Rodeilyn has participated in the New York Walk since she was diagnosed with lupus as age 12. This year's walk was especially memorable!
Children and teens experience a wide range of physical and emotional changes as they grow. This month Andrea Knight, MD MSCE, offers insight into how lupus can greatly impact a child’s or teen’s mental health.
Ask The Experts: Dr. Emily Von Scheven presents on steroid use in children with lupus
October 2015 - Dr. Stacy Ardoin answered your 15 questions about lupus in children and adolescents.
Dr. Kathleen Sullivan of the Children's Hospital of Philadelphia provides an overview of here study on biomarkers for kidney disease in children and teens with lupus.
Ask The Experts: Dr. Stacy Ardoin provides information about lupus in children and adolescents.
Lupus Foundation of America’s Collaboration in PARTNERS Seeks to Improve Pediatric Research and Care
Learn more about PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), a new initiative.
Lupus wasn’t Alex's disease at all — it was her mom’s. That all changed when she was diagnosed at 16-years-old but her dream to create films has not dampened. Read her story.
Mahlia was diagnosed with lupus at just 8-years-old. Now 11, she is finally starting to speak up about her disease, starting with her participation in the Lupus Foundation of America's new KNOW LUPUS public service announcements.
A new study conducted by researchers at Children’s Hospital of Philadelphia takes a closer look at depression and anxiety in children with lupus.
Be a part of the Summer 2015 issue of Lupus Now magazine - check out the topics now!
Dr. Stacy P. Ardoin's research will help determine whether levels of microRNA in the urine can indicate lupus nephritis-related disease activity and damage in the kidneys of children with lupus.
Dr. Laura Lewandowski is conducting a study that will help to better understand the burden of pediatric lupus and the role of race in lupus severity.
Sarah Stothers, Lupus Foundation of America Health Educator, reports back about findings from American College of Rheumatology's Annual Meeting in Boston last month. Read more.
Scott Exler was a published author at the age of nine. At that young age, when most children are only focused on school, homework, and sports, Scott became an unexpected expert on lupus and wrote a book based on his experiences.
Today’s sessions will focus on pediatric lupus and biomarkers, including a Foundation-funded research program about pediatric lupus in South Africa. Learn more!
November is National Family Caregivers Month. Mary Jane Goodman-Giddens, caregiver to two children with lupus, offers her personal advice for new caregivers and talks about the importance of taking care of yourself.
Adolescent-onset lupus has worse prognosis and increased risk of lupus-related kidney disease and death.
Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.
The Lupus Foundation of America announced four grants that will allow lupus investigators to continue critical lupus research. Another grant will be used to develop a groundbreaking diagnostic tool for children with lupus-related kidney inflammation, or lupus nephritis.
August means school is right around the corner. Read the following tips to learn more about what school officials, staff, and teachers need to know about lupus.
New research published in Lupus Science & Medicine looks at the potential association between vitamin D deficiency and heightened cardiovascular risk in children and teens with lupus.
The Lupus Foundation of America announced today that the Foundation is seeking grant applications to provide critical funding that will, for the first time, address an unmet need in pediatric lupus nephritis.
Any type of creative outlet—painting, sculpture, photography, acting, or dance—can be therapeutic, provided the artist is able to find a sense of healing and release in the practice. See how four people living with lupus are using art to help them cope with lupus.
A new study published in Arthritis Care & Research offers a first time, in-depth look at educational and employment outcomes in adults with childhood-onset lupus and provides new insights into properly navigating the path from adolescence to adulthood.
Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.
A new study supported by the Lupus Foundation of America and published in Arthritis and Rheumatology offers clinicians and researchers a new way to better understand how various treatments may impact the quality of life of children and adolescents living with lupus.
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
Results from a small pilot study provide hope that lupus disease activity can be suppressed in children with lupus. Read more.
Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.
Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.
Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.
Although the overall risk is small, children born to mothers with lupus may have a higher risk of autism spectrum disorders than children born to mothers without the disease, according to the results of a study presented this week at the American College of Rheumatology Annual Scientific Meeting in San Diego.
Most teenagers today lead incredibly busy lives—their days packed with schoolwork, extracurricular activities, jobs, sports, family, and friends. But adding a chronic illness like lupus can threaten that balance. Three teens tell their story.
Being the health care advocate for a child with lupus is a full-time job, and follow-up and preventive care, especially for the eyes and heart, are critically important. Start care early for long-term benefits.
A team of lupus researchers has identified a potential new biomarker that may be helpful in determining whether a person with lupus is at risk for developing organ damage.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.
Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.
The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.
When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.
The researchers hoped to learn about the long-term outcomes of bone mass density (BMD) in children newly diagnosed with lupus.
The researchers hoped to learn about the prevalence of low bone mineral density (BMD), as well as to identify risk factors for its development, in a large cohort of newly diagnosed children and adolescents with lupus.
The researchers hoped to learn about the safety and efficacy of atorvastatin (Lipitor®) in reducing cholesterol in children with lupus.
The researchers hoped to learn about the effects of lupus and/or its treatments on multiple indicators or growth and development in children.
Dr. Emily von Scheven of the University of California at San Francisco discusses the development of consensus treatment plans for proliferative nephritis in juvenile systemic lupus.
How 504 Plans and IEPs Can Help Children With Lupus Succeed in School
Current treatments for lupus nephritis in children are toxic and sometimes ineffective. New tests for proteins that might be abnormal in lupus nephritis could help make the diagnosis earlier and might also point to new ways of treating the disease.
For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.
Dr. Jill Buyon of the New York University School of Medicine, a leading authority on congenital heart block in neonatal lupus, discusses this rare complication and the next steps in the study of neonatal lupus.
Dr. Kathleen O'Neil discusses a multi-center longitudinal observational study of girls with prepubertal onset lupus as they approach and pass through puberty, measuring hormone levels, autoantibodies and markers of lupus activity.
Neuropsychiatric lupus (NPSLE) is difficult to diagnose and can be present when disease activity in other organs cannot be identified. The researchers hoped to learn whether antibodies to ganglioside M1 could predict childhood NPSLE any better than standard laboratory measures currently in use.
LFA-Funded Research Improves the Outlook for Childhood Lupus
Dr. Emily Von Scheven, Director of Pediatric Rheumatology at the University of California San Francisco Medical Center, discusses the issues surrounding bone health in children with lupus and other health issues associated with treatment of lupus.
Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.
How to Stay Upbeat When Dealing with Lupus
Steroids are frequently used to treat lupus because they are highly effective and work quickly. However, steroids have many serious side effects. How much of a risk this may pose for children with lupus or younger adults with lupus has not been well-studied.
The researchers wanted to find out whether the amount of leptin, adiponectin, or ghrelin in children with lupus might be different than in children without lupus.
Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!
This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Please join us for our Living Well with Lupus Seminar in Orlando.
Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.
Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.
Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.
Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.
Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.
Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus.
Learn about what to expect in the future for a child living with lupus.
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!