At one time lupus was thought to be more severe in children than in adults, but most physicians no longer believe this. However, children diagnosed with lupus often have been ill for a longer period before the diagnosis is made, and therefore are more likely to have significant internal organ involvement than most adults with lupus.


Get Answers

How can you monitor bone health in a child or teen taking corticosteroids?

Is the HPV vaccine safe for young people with lupus?

How can I keep my child’s school up to date on how lupus is affecting them?

Is lupus nephritis in children treated differently than in adults?

Do children have neuropsychiatric lupus symptoms?

Can children develop lupus nephritis?

What are some helpful hints when caring for my child with lupus?

Should I explain my child’s lupus to teachers and extracurricular activities leaders?

Will my child’s vision health be affected by lupus treatments?

How do friends and family cope with a diagnosis of lupus in a child?

Will my child’s bone health be affected by lupus treatments?

Is there a specific diet for children with lupus?

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Is there an increased risk of infections in children with lupus?

What medications are available to treat symptoms of lupus in children?

What are flares and triggers in children with lupus?

What kinds of symptoms are common in children with lupus?

What kinds of Health Care Providers usually treat children with lupus?

Is lupus the same in children and adults?

How is lupus diagnosed in children?

How do I help my child with lupus successfully transition to adulthood?

How do I explain my child’s lupus to others?

How do I explain lupus to my child?

What are 504 Plans and IEPs?

How can a teenager learn to live well with lupus?

What is neonatal lupus?


News & Stories

Blog | May. 01, 2016

Ask the Experts - Mental Health and Pediatric Lupus

Children and teens experience a wide range of physical and emotional changes as they grow. This month Andrea Knight, MD MSCE, offers insight into how lupus can greatly impact a child’s or teen’s mental health.

Podcasts | Feb. 29, 2016

Ask the Experts - Steroid Use in Children with Lupus

Ask The Experts: Dr. Emily Von Scheven presents on steroid use in children with lupus

Blog | Oct. 13, 2015

Q&A with Dr. Stacy Ardoin - Lupus in Children and Adolescents

October 2015 - Dr. Stacy Ardoin answered your 15 questions about lupus in children and adolescents.

Video | Aug. 28, 2015

Biomarkers for Pediatric Lupus Nephritis (NpSLE)

Dr. Kathleen Sullivan of the Children's Hospital of Philadelphia provides an overview of here study on biomarkers for kidney disease in children and teens with lupus.

Podcasts | Aug. 27, 2015

Ask the Experts - Lupus in Children and Adolescents.

Ask The Experts: Dr. Stacy Ardoin provides information about lupus in children and adolescents.

General News | Jul. 15, 2015

Lupus Foundation of America’s Collaboration in PARTNERS Seeks to Improve Pediatric Research and Care

Learn more about PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), a new initiative.

Blog | Jul. 07, 2015

Alex Nolan: Lights, Camera, Lupus!

Lupus wasn’t Alex's disease at all — it was her mom’s. That all changed when she was diagnosed at 16-years-old but her dream to create films has not dampened. Read her story.

Blog | May. 20, 2015

Mahlia Mahdi: Finding Her Voice

Mahlia was diagnosed with lupus at just 8-years-old. Now 11, she is finally starting to speak up about her disease, starting with her participation in the Lupus Foundation of America's new KNOW LUPUS public service announcements.

Research News | May. 13, 2015

Study Sheds Light on Racial Differences in Depression Symptoms for Youths with Lupus

A new study conducted by researchers at Children’s Hospital of Philadelphia takes a closer look at depression and anxiety in children with lupus.

Magazine | Feb. 27, 2015

Summer 2015 Lupus Now Editor’s requests

Be a part of the Summer 2015 issue of Lupus Now magazine - check out the topics now!

Video | Dec. 18, 2014

MicroRNA in Pediatric Lupus Nephritis

Dr. Stacy P. Ardoin's research will help determine whether levels of microRNA in the urine can indicate lupus nephritis-related disease activity and damage in the kidneys of children with lupus.

Video | Dec. 04, 2014

Understanding Burden of Pediatric Lupus and the Role of Race in Lupus Severity

Dr. Laura Lewandowski is conducting a study that will help to better understand the burden of pediatric lupus and the role of race in lupus severity.

Blog | Dec. 04, 2014

Lupus Research: Making Great Strides

Sarah Stothers, Lupus Foundation of America Health Educator, reports back about findings from American College of Rheumatology's Annual Meeting in Boston last month. Read more.

Blog | Dec. 03, 2014

Scott’s Experience with Lupus Nephritis

Scott Exler was a published author at the age of nine. At that young age, when most children are only focused on school, homework, and sports, Scott became an unexpected expert on lupus and wrote a book based on his experiences.

Blog | Nov. 17, 2014

American College of Rheumatology Annual Meeting 2014 – Day 2

Today’s sessions will focus on pediatric lupus and biomarkers, including a Foundation-funded research program about pediatric lupus in South Africa. Learn more!

Blog | Nov. 14, 2014

Guest Blog – Becoming a Lupus Caregiver

November is National Family Caregivers Month. Mary Jane Goodman-Giddens, caregiver to two children with lupus, offers her personal advice for new caregivers and talks about the importance of taking care of yourself.

Research News | Oct. 20, 2014

Intensive Follow-Up Recommended for People Diagnosed with Lupus During Childhood

Adolescent-onset lupus has worse prognosis and increased risk of lupus-related kidney disease and death.

Blog | Oct. 07, 2014

A Family Devoted to Awareness

Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.

General News | Sep. 30, 2014

Foundation Announces Pediatric Lupus Research Grantee & LIFELINE Grant Program™ Recipients

The Lupus Foundation of America announced four grants that will allow lupus investigators to continue critical lupus research. Another grant will be used to develop a groundbreaking diagnostic tool for children with lupus-related kidney inflammation, or lupus nephritis.

Magazine | Aug. 01, 2014

School Days

August means school is right around the corner. Read the following tips to learn more about what school officials, staff, and teachers need to know about lupus.

Research News | May. 20, 2014

Low Vitamin D Associated With Increased Cardiovascular Risks in Children and Teens with Lupus

New research published in Lupus Science & Medicine looks at the potential association between vitamin D deficiency and heightened cardiovascular risk in children and teens with lupus.

Research News | May. 15, 2014

Foundation Issues Request for Applications to Advance Research in Pediatric Lupus Nephritis

The Lupus Foundation of America announced today that the Foundation is seeking grant applications to provide critical funding that will, for the first time, address an unmet need in pediatric lupus nephritis.

Magazine | May. 15, 2014

Creative Inspiration - Art Therapy helps with coping, encourages healing

Any type of creative outlet—painting, sculpture, photography, acting, or dance—can be therapeutic, provided the artist is able to find a sense of healing and release in the practice. See how four people living with lupus are using art to help them cope with lupus.

Research News | May. 06, 2014

A Look at Educational and Employment Success in Adults with Childhood-onset Lupus

A new study published in Arthritis Care & Research offers a first time, in-depth look at educational and employment outcomes in adults with childhood-onset lupus and provides new insights into properly navigating the path from adolescence to adulthood.

Blog | Apr. 15, 2014

Caregivers, You Are Not Alone

Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.

Research News | Apr. 14, 2014

Research May Help Clinicians Improve Quality of Life among Children with Lupus

A new study supported by the Lupus Foundation of America and published in Arthritis and Rheumatology offers clinicians and researchers a new way to better understand how various treatments may impact the quality of life of children and adolescents living with lupus.

Magazine | Feb. 05, 2014

Parental Support - Finding guidance for Mom and Dad

When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.

Research News | Feb. 04, 2014

Pilot Study Testing a Combination of Immunosuppressive Drugs Holds Promise for Children with Lupus

Results from a small pilot study provide hope that lupus disease activity can be suppressed in children with lupus. Read more.

Research News | Dec. 05, 2013

Cancer Risk May Be Higher Among Young Patients with Lupus

Children with lupus may have a higher risk for developing cancer – especially blood cancers such as non-Hodgkin’s lymphoma and leukemia – compared to children without lupus.

Podcasts | Nov. 12, 2013

App Assists Transition from Pediatric to Adult Lupus Care

Dr. Miriam Kaufman discusses a smartphone app that helps adolescents make the transition from pediatric to adult lupus care.

Podcasts | Nov. 08, 2013

Pediatric Lupus Health-Related Quality of Life Research

Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.

Research News | Oct. 28, 2013

Children Born to Mothers with Lupus Might be at Increased Risk of Autism

Although the overall risk is small, children born to mothers with lupus may have a higher risk of autism spectrum disorders than children born to mothers without the disease, according to the results of a study presented this week at the American College of Rheumatology Annual Scientific Meeting in San Diego.

Magazine | Oct. 01, 2013

Teen Talk

Most teenagers today lead incredibly busy lives—their days packed with schoolwork, extracurricular activities, jobs, sports, family, and friends. But adding a chronic illness like lupus can threaten that balance. Three teens tell their story.

Magazine | Jul. 01, 2013

Understanding Your Child’s Eye & Heart Health

Being the health care advocate for a child with lupus is a full-time job, and follow-up and preventive care, especially for the eyes and heart, are critically important. Start care early for long-term benefits.

Research News | Jan. 24, 2013

Protein Predicts Lupus-Related Organ Damage

A team of lupus researchers has identified a potential new biomarker that may be helpful in determining whether a person with lupus is at risk for developing organ damage.

Magazine | Nov. 01, 2012

Growing Up: Teens, young adults must learn to manage lupus on their own

For many young people with lupus, the transition to caring for themselves as adults is challenging.

Research News | Oct. 16, 2012

Depression Among Girls with Lupus

The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.

Podcasts | Sep. 11, 2012

Parents Caring for Children with Lupus

Dr. Emily von Scheven of the University of California at San Francisco discusses the challenges of caring for a child with lupus.

Research News | Aug. 15, 2012

Academic Performance in Children With Lupus

The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.

Magazine | Jul. 01, 2012

Circle of Hope: Erin Luciano

When Mary and Albert Luciano found out in 2008 that their daughter Erin had lupus, they were determined to learn everything they could about the illness.

Research News | May. 16, 2012

Predictors of Bone Density Changes in Children with Lupus

The researchers hoped to learn about the long-term outcomes of bone mass density (BMD) in children newly diagnosed with lupus.

Research News | Feb. 17, 2012

Reduced Bone Density in Newly Diagnosed Children with Lupus

The researchers hoped to learn about the prevalence of low bone mineral density (BMD), as well as to identify risk factors for its development, in a large cohort of newly diagnosed children and adolescents with lupus.

Research News | Jan. 20, 2012

First Ever Study of Cholesterol-Lowering Drugs in Children With Lupus

The researchers hoped to learn about the safety and efficacy of atorvastatin (Lipitor®) in reducing cholesterol in children with lupus.

Research News | Dec. 02, 2011

Reduced Growth and Delayed Puberty in Children with Lupus

The researchers hoped to learn about the effects of lupus and/or its treatments on multiple indicators or growth and development in children.

Podcasts | Nov. 16, 2011

Developing Consensus Treatment Plans for Pediatric Lupus Nephritis

Dr. Emily von Scheven of the University of California at San Francisco discusses the development of consensus treatment plans for proliferative nephritis in juvenile systemic lupus.

Magazine | Nov. 01, 2011

School Rules

How 504 Plans and IEPs Can Help Children With Lupus Succeed in School

Research News | Mar. 04, 2011

New Blood Tests May Improve the Tracking of Lupus Kidney Disease in Children

Current treatments for lupus nephritis in children are toxic and sometimes ineffective. New tests for proteins that might be abnormal in lupus nephritis could help make the diagnosis earlier and might also point to new ways of treating the disease.

Magazine | Mar. 01, 2011

Bone Health: Ways Children and Adults Can Reduce Their Fracture Risk

For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.

Video | Feb. 14, 2011

Congenital Heart Block in Neonatal Lupus

Dr. Jill Buyon of the New York University School of Medicine, a leading authority on congenital heart block in neonatal lupus, discusses this rare complication and the next steps in the study of neonatal lupus.

Video | Feb. 11, 2011

Effect of Pubertal Hormone Changes on Lupus

Dr. Kathleen O'Neil discusses a multi-center longitudinal observational study of girls with prepubertal onset lupus as they approach and pass through puberty, measuring hormone levels, autoantibodies and markers of lupus activity.

Research News | Feb. 10, 2011

New Combination of Antibodies May Better Predict Childhood Neuropsychiatric Lupus

Neuropsychiatric lupus (NPSLE) is difficult to diagnose and can be present when disease activity in other organs cannot be identified. The researchers hoped to learn whether antibodies to ganglioside M1 could predict childhood NPSLE any better than standard laboratory measures currently in use.

Magazine | Nov. 01, 2010

Safeguarding Our Youth:

LFA-Funded Research Improves the Outlook for Childhood Lupus

Video | Oct. 29, 2010

Bone Health in Children with Lupus

Dr. Emily Von Scheven, Director of Pediatric Rheumatology at the University of California San Francisco Medical Center, discusses the issues surrounding bone health in children with lupus and other health issues associated with treatment of lupus.

Video | Oct. 22, 2010

Health-Related Quality of Life Measures in Children with Lupus

Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.

Magazine | Jul. 01, 2010

Self-Esteem Survival Skills

How to Stay Upbeat When Dealing with Lupus

Research News | Mar. 23, 2010

Earlier Steroid Treatment In Pediatric Lupus Patients Is Related to Higher Risk of Bone Disease

Steroids are frequently used to treat lupus because they are highly effective and work quickly. However, steroids have many serious side effects. How much of a risk this may pose for children with lupus or younger adults with lupus has not been well-studied.

Research News | Jan. 20, 2010

Potential New Indicators of Lupus Being Studied in Children

The researchers wanted to find out whether the amount of leptin, adiponectin, or ghrelin in children with lupus might be different than in children without lupus.


Events

Jun. 14, 2016 6:30 pm | Baptist Health Resource Center

Miami/Dade Lupus Support Group (Doral)

Jun. 14, 2016 7:00 pm | Highland Regional Library

North Florida Lupus Support Group (Jacksonville)

Oct. 22, 2016 5:00 pm | Marlins Park

Walk to End Lupus Now Miami

Join us at Marlins Park for 2016 Walk to End Lupus Now! Come and spend your afternoon at the ballpark while helping us raise awareness!

Mar. 03, 2016 7:00 pm | Teleconference

Lupus and the Kidneys: Ask the Experts

This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

Feb. 20, 2016 10:00 am | Nova Southeastern University

Living Well with Lupus Seminar Orlando

Please join us for our Living Well with Lupus Seminar in Orlando.

Jun. 05, 2016 4:00 pm—Jul. 05, 2016 12:00 am | Palm Beach Zoo

Walk to End Lupus Now Palm Beach Donation Deadline

Thank you Palm Beach for coming out to Walk to End Lupus Now. You have until July 5 to turn in your donations and help us reach our goal.

May. 21, 2016 3:00 pm—Jun. 21, 2016 6:30 pm | Lake Eola Park

Walk to End Lupus Now Orlando Donation Deadline

Thank you Orlando for coming out to Walk to End Lupus Now. You have until June 21 to turn in your donations and help us reach our goal.

Mar. 13, 2016 4:00 pm—Apr. 13, 2016 6:30 pm | Riverside Arts Market

Walk to End Lupus Now Jacksonville Donation Deadline

Thank you Jacksonville for coming out to Walk to End Lupus Now. You have until April 13 to turn in your donations and help us reach our goal.

May. 30, 2015 9:00 am | Nova Southeastern University

Support Group Training

Are you interested in starting a group in your area or becoming a co-facilitator of an exisiting group? If, so we invite you to attend our next facilitator training.

Nov. 14, 2015 2:00 pm—Dec. 14, 2015 12:00 am | Wickham Park

Walk to End Lupus Now Central Florida Donation Deadline

Thank you for Melbourne for coming out to Walk to End Lupus Now. You have until December 14 to turn in your donations and help us reach our goal.

Oct. 25, 2015 3:00 pm—Nov. 30, 2015 12:00 am | Marlins Park

Walk to End Lupus Now South Florida Fall Donation Deadline

Thank you for Miami for coming out to Walk to End Lupus Now. You have until November 30 to turn in your donations and help us reach our goal.

Nov. 15, 2014 10:30 am | Physicians Regional Medical Center, Palm Dining Room

Southwest Florida Lupus Support Group (Naples)

Nov. 20, 2014 6:30 pm | Bethesda Memorial Hospital, Sand Dollar Room

South Palm Beach Lupus Support Group (Boynton Beach)

Oct. 29, 2014 12:30 pm | Broward Health Coral Springs Hospital, Classroom C

West Broward Lupus Support Group (Coral Springs)

Nov. 12, 2014 7:00 pm | Memorial Regional Hospital South Conf. Room 4

East Broward Lupus Support Group (Hollywood)

Nov. 11, 2014 7:00 pm | Online

Viviendo con Lupus (Living with Lupus) Online Spanish Support Group

Nov. 10, 2014 6:00 pm | St Mary's Medical Center,Main Entrance Conference Room

North Palm Beach Lupus Support Group ( West Palm Beach)

Feb. 28, 2015 7:30 am | Mercato

Walk to End Lupus Now Southwest Florida

Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.

May. 02, 2015 4:00 pm | Palm Beach Zoo

Walk to End Lupus Now South Florida Spring

We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Mar. 29, 2015 4:30 pm | Riverside Arts Market

Walk to End Lupus Now Northern Florida

NEW in 2015! The Walk to End Lupus Now is coming to Northern Florida in Jacksonville. Join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.

Nov. 05, 2016 2:00 pm | Wickham Park

Walk to End Lupus Now Melbourne

Join us at Wickham Park for a fun afternoon while raising funds and awareness for those suffering from the cruel mystery of lupus.

Oct. 17, 2015 | Wichita

Lupus Conference

Nov. 01, 2014 10:00 am | Online

Online Living with Lupus Support Group

Nov. 12, 2014 6:30 pm | Clay County Library Orange Park Branch, Room A

North Florida Lupus Support Group (Orange Park)

Jun. 04, 2014 7:00 pm

Ask the Experts Teleconference: Pediatric Lupus

Learn about what to expect in the future for a child living with lupus.

May. 07, 2015 5:30 pm | LFA-Iowa Office

Des Moines Support Group

Sep. 27, 2014 9:00 am | Jordan Creek Town Center lake area, West Des Moines, IA

Walk to End Lupus Now

Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!