Archived Teleconference Recordings

View/Register for the 2017 Ask The Experts Teleconference Series.

Below are archived recordings from the Lupus Educational Teleconference Series. Documents denoted with (PDF) require Adobe Acrobat software.
 
 

Cardiovascular Disease and Lupus

August 2017

With George Stojan, M.D.

Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.

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Teens with Lupus: Transitioning into Adulthood

July 2017

With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.

As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years. 

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Clinical Trials 101

June 2017

With: Dr. Namieta Janssen, Rheumatologist from Houston, TX

This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus. 

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Workplace Accommodation for Individuals with Lupus 

May 2017

With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair 

People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.

 

An Overview of Social Security Disability Benefits 

April 2017

With: Andrew Salata, Public Affairs Specialist, Social Security Administration

The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process.  The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.

Download the presentation (PDF)

 

Eating Smart for & Healthy Heart

February 2017

Presenter: Emily Rubin RD, LDN, Registered Dietitian

Thomas Jefferson University Division of Gastroenterology and Hepatology

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!

Download the presentation (PDF)

 


Stress Management
November 2016
Presenter: Ellen Sichel, Custom Calm, LLC

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

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Lupus & Dental Health
October 2016
Presenter: Presenter: Diane Earle, DDS, MBA, Kool Smiles

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

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Living a Healthy Lifestyle
September 2016
Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa

Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.

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Lupus & the Bones: Diagnosing & Treating Osteoporosis
August 2016
Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis

Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.

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Finances 101: Living with a Chronic Illness
July 2016
Presenters: Shawn Arrington, President and CEO and Shanna Tedder, Financial Services Educator and Advisor, White Rhino Financial

Everyone should have a financial plan to protect themselves and their loved ones.  Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.

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Lupus and the Thyroid
June 2016
Presenter: Maria Antonelli, MD from Metro Health Hospital

Thyroid problems are common in people with lupus. About 6 percent of people with lupus have underactive thyroid, or hypothyroidism, and 2 percent have overactive thyroid, or hyperthyroidism. Join us to learn about the effects of thyroid disorders and function and their relationship to lupus.

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Lupus and Primary Care
May 2016
Presenter: Adegbenga A. Bankole MD, FACP, Virginia Tech Carilion School of Medicine

The Primary Care Physician plays an important role in quality care to patients with lupus. This teleconference covers the impact of lupus on diseases that are cared for by PCPs, ranging from hypertension to cancer and teach you preventive measures to take.

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Lupus & Mental Health: How to Know You’re in Trouble

April 2016
Presenter: Stacie Camp Bennett, MA, LPC, LCAS

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn how to determine the difference and recognize and properly treat symptoms.

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Lupus and the Kidneys

March 2016
Presenter: Dr. Michael P. Madaio, Sydenstricker Professor and Chairman, Department of Medicine, Medical College of Georgia at Augusta University

Did you know that an estimated 40% of all people living with lupus will develop kidney complications? This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

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Affairs of the Heart: Lupus and Relationships (2/25/16)
Presenter: Molly Dennis, MSW, Health Partners Plans
February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. Is your life filled with satisfying relationships and love?  Do you feel that others understand your lupus and the demands that it places on you?  Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.

 
Lupus and the Kidneys (10/7/15)
Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.
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Lupus de los Riñones (10/7/15)
Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.
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Coping with Lupus (9/29/15)
When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
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Lupus and Female Issues: From Puberty to Menopause (8/15/15)
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Listen to the Recording:
 
Lupus and the Skin (7/14/15)
Speaker: Victoria P. Werth, MD, University of Pennsylvania School of Medicine
Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.
Listen to the Recording:
 
Lupus and Hair Loss (6/24/15)
Speaker: Angela Kyei, MD
A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.
 
Living Well with Lupus (5/13/15)
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
 
Lupus and the Eyes (4/8/15)
Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.
 
Disability and Returning to the Workplace (3/31/15)
Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.
 
The Lupus-Heart Connection (2/24/15)
Speaker:  Joan M. VonFeldt, M.D., MSEd.
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.
 
Lupus and Stress (11/13/14)
Speaker: Cindy Coney
cindyconey.com
Physical and emotional stresses are among the suspected triggers for a lupus flare.  People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.
 
Lupus and Disability (10/18/14)
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC
This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.
 
Nutrition and Rheumatic Diseases (9/4/14)
Speaker: Dr. Roxanne Sukol, Cleveland Clinic
Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
 
Lupus and Depression (8/7/14)
Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.
 
Lupus and the Skin (7/9/14)
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center
Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.
 
Pediatric Lupus (6/4/14)
Speaker:  Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
 
Vivir con Lupus (5/8/14)
Speaker:  Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar.  Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
 
Living with Lupus: An Insider's Perspective (5/1/14)
Presented by:  Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus
 
Lupus and Men (4/12/14)
Presented by:  Joseph Shanahan, M.D., Shanahan Rheumatology & Immunotherapy
 
Clinical Trial Education (3/22/14)
Presented by: Karen Obmaces, President of Accurate Clinical Research & Linda Willies, Clinical Trial Participant for more than 7 years
 
Lupus & Intimacy (2/26/14)
Presented by:  Lisa Covington, MSW, LCSW-C
 
Living with Lupus (5/11/13)
Presented by: Stacy D. Kennedy, MD/MBA
Listen here.
 
Lupus and Cognitive Dysfunction (4/18/13)
Presented by: Michael Parsons, PhD
Listen here.
 
Managing the Doctor/Patient Relationship (3/14/13)
Presented by: Melissa Hughes, MD
Listen here.
*Personal Medical Records Forms (PDF)- keep track of your doctor visits, medications, allergies and much more
 
Lupus and Employment (2/23/13)
Presented by: Rachel D. Ziolkowski, Esq.
Listen here.
 
Coping and Living with Fatigue (11/1/12)
Presented by: Afton Hassett, PsyD
 
Lupus and the Heart (10/9/12)
Presented by: Joan von Feldt, MD
 
Living Well With Lupus (10/6/12)
Presented by: Sara Gorman
 
Lupus Treatments (9/20/12)
Presented by: Murray Urowitz, MD, FACP, FRCPC
 
Parents Caring for Children with Lupus (9/11/12)
Presented by: Emily von Scheven, MD
 
Social Security and Disability with Lupus (7/12/12)
Presented by: Sheri Abrams, Attorney at Law
 
Coping and Living with Skin Lupus (6/7/12)
Presented by: Victoria Werth, MD
 
Living with Lupus (5/15/12)
Presented by: Donald Thomas, MD, FACP, FACR, CCD
Listen here.
 
Vivir Con Lupus (5/5/12)
Presented by: Marcos E. Maldonado, MD
Listen here.
 
Nutrition, Diet & Exercise Educational Webinar (2/16/12)
Presented by: Dr. Joe Raphael
 
Advances in Lupus Research: Spotlight on Treatment (10/26/11)
Watch the webinar here.
 
Lupus and the Brain (11/13/10)
Presented by: Robin L. Brey, MD
 
Living with Lupus (10/13/10)
Presented by: Philip Cohen, MD
 
Vivir Con Lupus (10/12/10)
Presented by: Marcos E. Maldonado, MD
 
Lupus and the Skin (6/12/10)
Presented by: Lynn McKinley-Grant, MD
 
Disability Issues and Lupus (4/22/10)
Presented by: Winnie P. Pannell, PC
 
Kidney Involvement in Lupus (3/11/10)
Presented by: Keisha L. Gibson, MD, MPH
 
 
The Lupus Foundation of America, Philadelphia Tri-State Chapter is proud to be a source of information on lupus.  Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription. For specific information or advice, please consult your physician. If you need help finding a physician, we maintain a list of physicians who treat individuals with lupus.