We are here for you.
We offer support groups, self-help courses, emergency financial assistance, a seminar series, and more for our community. Check out our offerings below.
As an additional resource, check out Us in Lupus for more.
Have more specific questions about lupus? Check out these resources to learn more about this mysterious disease.
This is a living collection of up-to-date resources and information on lupus. Doctors, scientists, health educators, and people with lupus work together to create our resources and programs. That means we have the trusted information you need to learn about lupus.
This is a series of monthly educational webinars designed to provide you with important information about living with lupus and better managing your symptoms. Live teleconferences last one hour and are accessible through Zoom.
These seminars are the Philadelphia Tri-State Chapter's signature educational events. Each seminar brings together people living with lupus, their families, interested health professionals and a panel of experts to share the latest information to help individuals live well - or better - with lupus.
The Living Well with Lupus Symposium is the Philadelphia Tri-State Chapter's signature educational event, featuring experts from the Tri-State area. Check out this page to watch recordings of the program!
Check out our 5-part series, which gives an overview of how to live your best life with lupus at all stages; Understanding Lupus, Diagnosing Lupus, Treating Lupus, Living with Lupus and Coping with Lupus.
We are here for you. Each one of these programs is designed to uplift and support you at any point along your lupus journey.
A support group is a self-help group, composed of people with lupus along with their family members and friends who gather periodically to share common concerns. Support groups are a place to be yourself, facilitated by positive and empowering leaders who are in your corner! We offer meetings in Pennsylvania, Delaware and New Jersey.
The goal of a Patient Navigator is to improve overall disease management which results in better health outcomes for the Lupus Clinic’s SLE and lupus nephritis (LN) patients.
LupusConnect™ is an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences. It’s an easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community.
Each one of these resources and tools strives to help you life your best life with lupus.
The Systemic Lupus Erythematosus Self Help (SLESH) Course is a free course geared towards those living with lupus. This 5-week course has been proven to assist those living with lupus to take a more active role in their health. Topics covered include medications, exercise, grief, coping with pain and fatigue and much more. You will learn about lupus and learn from others in their lupus journeys, but also be expected to share about your life with lupus.
SELF is a free online self-management program designed to help people with lupus live their best life. SELF can be your virtual coach to help you manage lupus symptoms, manage stress, manage medications, and work with your health care team.
Take Charge is a weekly education email series for people with lupus, including those recently diagnosed. Each week for 12 weeks, you'll get an email from our Health Educators with tips and resources that can empower you to take charge of your health.
Living with lupus can have high costs. Explore these links to find out how some of these resources may help you and your family.
The Guggenheim Grant-In-Aid Fund was established to provide limited financial assistance for special or emergency needs for individuals with lupus in the tri-state area (Pennsylvania, Southern New Jersey, and Delaware).
Under this fund, HealthWell can assist with premium costs. Medicare supplemental policies can help with cost shares related to many aspects of your health care. Using a HealthWell grant to cover premiums may be a better option than treatment-specific cost shares.
The Darlene Croce Lifeknocks Get Up Once More Scholarship supports children and teens living with lupus to attend a summer or extracurricular program or camp in 2022. While not required, preference will be given to activities and programs that focus on the creative arts.