About The Texas Gulf Coast Chapter
OFFICE HOURS: Monday-Friday 10 a.m-5:00 p.m.
The Lupus Foundation of America,Texas Gulf Coast Chapter is part of a national force devoted to solving the cruel mystery of lupus while providing caring support to those who suffer from its brutal impact.
Mission and Purpose
With the help of informed volunteers, lupus medical experts, and committed and caring supporters, our chapter:
- support research and conduct education programs so everyone affected by lupus can have an improved quality of life,
- provide information to ensure people with lupus and their families get answers and health professionals know about new means to diagnose and manage the disease and
- conduct activities to increase awareness of lupus, rally public support for those who are affected by lupus and advocate on their behalf
Help us Solve The Cruel Mystery!
If you join the fight, our Chapter will not have to concede victory to the terrible disease. With your support and involvement, our Chapter will be able to solve the cruel mystery of lupus in our lifetime and end its devastating impact on millions of lives.
In 2017, The Lupus Foundation of America-Texas Gulf Coast Chapter:
• Supported 29 patients with the Patient Access To Healthcare (P.A.T.H.) Program
• Provided 3 Breakfast with the Experts Adult Educational Programs for over 125 patients
• Provided 1 Summer Youth Educational Program for 35 patients/children of patients in attendance
• Launched a Hispanic Outreach Program in the Houston metro area reaching over 400,000 people
• Attended 12 community health fairs in the Houston metro area
• Contributed $40,000 to lupus research
A Comprehensive Strategy
Lupus is a complex disease that requires a comprehensive strategy. Our Chapter's programs and services all have a common purpose: To improve the quality of life for all people affected by lupus.
The Chapter raises money to support research through the Lupus Foundation of America's National Research program, Bringing Down The Barriers™, which aggressively pursues an agenda to find answers to the most difficult questions and advance the science and medicine of lupus. Our national research program has a unique three-pronged strategy: lead special initiatives, fund researchers and advocate for expanded investment.
Education & Support Services
Through the Chapter sponsored programs and one-on-one interaction with our staff, we answer questions about lupus, provides tools, resources and professional referrals to the lupus community. In addition, we help guide individuals and families through the complexities of living with lupus and promote a better quality of life.
Our Chapter conducts outreach efforts and share stories of those who suffer from lupus to increase awareness of lupus, bring greater attention to the disease and its devastating impact, and rally public support to join the fight to end lupus.
Our Chapter advocates on behalf of all people with lupus, their families, and the health professionals who care for them. We educate government officials and industry leaders on the urgent need to expand public and private investment in lupus research, educational programs, and support services.
From the Chapter President/CEO
I am inspired by the courage and determination of women, men and children living with lupus. Their stories are some of the "Faces of Lupus" profiled on our website. We have a passionate volunteer leadership, many of whom are new to the organization, and all are dedicated to growing our programs and support of the 30,000+ with lupus. From new chapter board members, support group leaders, media and community partners to Walk and other committee members, the number of people supporting the chapter grows every day! Some of our chapter programs include:
- Information and Referral
- Patient Assistance Grants
Ninety percent of every dollar raised stays in Texas. We are one of two Chapters in the state of Texas that gives valuable resource for lupus patients, providing thousands with educational information, referrals, resources, support groups and educational programs. We know that lupus is under-researched, under-funded and under-recognized. Nationally, our advocacy efforts have led to increased lupus research funding of $6.5 million. The LFA's direct funding of research has grown 100 percent in the past 3 years with $2 million in direct support to lupus research.
We know our volunteers are our greatest resource. We hope that you will help us to change people’s lives by volunteering. Please get involved and make a difference. Together we can provide hope for a future without lupus and help to everyone living with lupus until that day comes.
Lupus Foundation of America
Texas Gulf Coast Chapter
2017-2018 Board Of Directors
Esther Olivarez - Chair
Dorysa Moore - Vice Chair
Lynn Blandford - Treasurer
Jamie Sparacino - Secretary
Jerome O. Fjeld
Janell E. Long
Janine Yee Lundin
Medical Advisory Board
Dr. Ankur Kamdar, M.D.
Dr. Namieta Janssen, M.D.
Dr. Eyal Muscal, M.D.
Dr. Samuel Pegram, M.D.
Dr. Philip Waller, M.D.
LFA-Texas Gulf Coast Chapter Staff
Rebecca Kramer-President & CEO
Rey Cantu-Community Outreach & Communicaton Director
Lissa Goldsmith-Database & Volunteer Coordinator
Office hours: Monday to Friday 10 a.m.-5 p.m.