2018 National Advocacy Summit and Evening Conversation

Unite for lupus


Join us in Washington March 20-21 for the 2018 National Advocacy Summit and help us continue to make a difference in the fight against lupus. The two-day Summit will feature educational programming with a special focus on childhood lupus,  interactive sessions and fun activities, and provide advocates with the tools they need to tell their lupus story on Capitol Hill, increase funding for research and ensure all people with lupus have access to the care they need.

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Why the Advocacy Summit Matters

For years, lupus advocates have joined the Lupus Foundation of America in Washington to use their voices and stories to advance policies that improve the lives of people living with lupus. From increasing funding for lupus research and education, to ensuring access to quality health care, the power of our advocates is undeniable.  But there’s still more that must be done!

 


Preliminary Schedule of Events

 

Tuesday, March 20

The first day of the Summit will focus on advocacy training and educational programming highlighting childhood lupus research and lupus drug development. Throughout the day, children and young adults are invited to visit The Family Lodge, where they can:

  • Link up, connect, and learn from each other
  • Participate in the launch of the Lupus Life Hacks video series, and
  • Relax, recharge, and refuel!

8:00 am - Breakfast and Registration

9:00 am - Welcome and Introduction

10:00 am - Panel One: The State of Childhood Lupus Research and Drug Development

11:00 am - Panel Two: Advocacy 365:How to Make a Difference Throughout the Year

12:00 pm - Lunch & Storytelling Workshop

1:30 pm - Prep for the Hill and Role Play

3:00 pm - Closing

3:15 pm - Family Reception

The Lupus Foundation of America's Evening Conversation
Beginning at 6:00 pm on March 20, the Foundation will host an Evening Conversation: The Impact of the 21st Century Cures Act on Health Care in America. This plated dinner event will feature a panel discussion about the landmark law, enacted in 2016, which has ushered in a new commitment to patient engagement during every step of the drug development process. Panelists will include leaders from government agencies, the lupus community and the pharmaceutical industry.
Note: The Evening Conversation is a separate ticketed event with a $50.00 registration fee.

Wednesday, March 21

Together, we turn Capitol Hill PURPLE and advocate for more lupus research and education funding through meetings with your members of Congress.

7:00 am - 8:30 am - Continental Breakfast

8:00 am - 4:00 pm - Meetings on Capitol Hill (lunch on your own)

3:00 pm - 6:00 pm - Hospitality Room

 

Registration Details

Registration for the 2018 National Policy Summit is open! Your registration fee for the Summit provides you access to the full day of informational and training sessions on Tuesday March 20. The Foundation will schedule your Congressional meetings and provide an interactive app for your phone or tablet that will have your meeting schedule, background information about the issues and other details and resources to enhance your Summit experience. The registration fee also includes breakfast, lunch, and refreshments on March 20 as well as breakfast and refreshments on March 21.

Registration Fee: $50.00 per attendee. Registration fees are waived for children age 21 and younger.

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All registered attendees will receive additional details in advance of traveling to Washington to help you prepare to attend the Summit. This includes an opportunity to participate in a webinar to learn more about the issues you will be advocating on Capitol Hill and how to hold effective meetings with your Members of Congress.  

Hotel Information

After you register for the Summit, you will receive information on how to reserve your hotel room at discounted rates within the Lupus Foundation of America’s room block at the host hotel, Washington Marriott Metro Center. The room rate is $309 per night (single/double occupancy).