2018 National Advocacy Summit

Join us in Washington March 20-21 for the 2018 National Advocacy Summit and help us continue to make a difference in the fight against lupus. The two-day Summit will feature educational sessions, and this year will include programing on childhood lupus. In addition, the Summit will have interactive sessions for all advocates and provide attendees with the tools they need to tell their lupus story on Capitol Hill, increase funding for research and ensure all people with lupus have access to the care they need.


Why the Advocacy Summit Matters

For years, lupus advocates have joined the Lupus Foundation of America in Washington to use their voices and stories to advance policies that improve the lives of people living with lupus. From increasing funding for lupus research and education, to ensuring access to quality health care, the power of our advocates is undeniable.  But there’s still more that must be done!


Preliminary Schedule of Events

Tuesday, March 20

The first day of the Summit will focus on advocacy training and educational programming with a special focus on childhood lupus. It will feature engaging discussions on the latest in lupus research and drug development and other issues of importance for the entire lupus community. 

8:00 am - Breakfast and Registration

9:00 am - Welcome and Introduction

10:00 am - Panel One: The State of Childhood Lupus Research and Drug Development

11:00 am - Panel Two: Advocacy 365: How to Make a Difference Throughout the Year

12:00 pm - Lunch & Storytelling Workshop

1:30 pm - Prep for the Hill and Role Play

3:00 pm - Closing

3:15 pm - Family Social (open to all attendees)

Throughout the day, children and young adults are invited to visit The Family Lodge, where they can:

  • Link up, connect, and learn from each other
  • Participate in the launch of the Lupus Life Hacks video series, and
  • Relax, recharge, and refuel!

6:00 pm - 7:30 pm - Lupus Heroes Reception

The first day of activities concludes with an evening reception honoring lupus heroes whose leadership has made a difference in the fight against lupus.

The Lupus Heroes Reception is a separate ticketed event that requires a registration fee of $50.

Wednesday, March 21

Together, we turn Capitol Hill PURPLE and advocate for more lupus research and education funding through meetings with your members of Congress.

7:00 am - 8:30 am - Continental Breakfast

8:00 am - 4:00 pm - Meetings on Capitol Hill (lunch on your own)

3:00 pm - 6:00 pm - Hospitality Room


Registration Details

Registration for the 2018 National Policy Summit is open! Your registration fee for the Summit provides you access to the full day of informational and training sessions on Tuesday, March 20. The Foundation will schedule your Congressional meetings and provide an interactive app for your phone or tablet that will have your meeting schedule, background information about the issues and other details and resources to enhance your Summit experience. The registration fee also includes breakfast, lunch, and refreshments on March 20 as well as breakfast and refreshments on March 21.

Registration is $50.00 per attendee.

Registration fees are waived for children age 21 and younger.

After registering, you'll receive additional details in advance of traveling to Washington to help you prepare to attend the Summit. This includes an opportunity to participate in a webinar to learn more about the issues you will be advocating for on Capitol Hill, and how to hold effective meetings with your Members of Congress.



Hotel Information

After you register for the Summit, you will receive information on how to reserve your hotel room at discounted rates within the Lupus Foundation of America’s room block at the host hotel, Washington Marriott Metro Center. The room rate is $309 per night (single/double occupancy). Please note that Summit attendees are not required to stay at the host hotel and may seek other accommodations.

Youth Scholarship Program

Application submissions for the Youth Scholarship Program are closed.