How Does a Lupus Support Group Work?
Although there is not a specific program, a member of the Lupus Foundation is always present to facilitate the meeting and provide information about lupus and the services offered by the chapter.
Typically, everyone sits in a circle and begins by introducing him/her self. The discussion follows the inclinations of those present. Often someone has specific questions regarding the disease and/or medications. Other times attendees may bring up problems they have with their family, employment or the medical advice they have been provided. However, persons with lupus are encouraged to learn as much as they can about lupus and to work with their doctors to find the most effective treatment.
Sometime people come because they need to tell their story to sympathetic ears, while others are there just to listen. Some attend the support group regularly, while others' needs are met in one or two meetings.