Ask the Experts Teleconference Series Past Teleconferences

 

Think Again: Coping with Lupus Fog

With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007

As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.

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Cardiovascular Disease and Lupus 

With George Stojan, M.D.

Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.

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Teens with Lupus: Transitioning into Adulthood

With:  Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.

As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years. 

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Clinical Trials 101

 

With: Dr. Namieta Janssen, Rheumatologist from Houston, TX

This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus. 

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Workplace Accommodation for Individuals with Lupus 

 

With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair 

People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.

 

 

An Overview of Social Security Disability Benefits- 4.13.17 

 

With: Andrew Salata, Public Affairs Specialist, Social Security Administration

The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process.  The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.

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Working With Your Pharmacist - 3.22.17

With: Susan Corbett, PharmD, RPh, and Lupus Thriver


Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist.  Also learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.

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Eating Smart for & Healthy Heart 02.28.17
with Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology

 

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!

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Stress Management
November 2016
Presenter: Ellen Sichel, Custom Calm, LLC

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

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Lupus & Dental Health
October 2016

Presenter: Diane Earle, DDS, MBA, Kool Smiles

It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.

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Living a Healthy Lifestyle
September 2016

Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa

Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.

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Lupus & the Bones: Diagnosing & Treating Osteoporosis

August, 31 2016


Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis

Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.

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Finances 101: Living with a Chronic Illness

July 2016

Presenters: Shawn Arrington, President and CEO and Shanna Tedder, Financial Services Educator and Advisor, White Rhino Financial

Everyone should have a financial plan to protect themselves and their loved ones.  Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.

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Lupus and the Thyroid

June 2016

Presenter: Maria Antonelli, MD from Metro Health Hospital

Thyroid problems are common in people with lupus. About 6 percent of people with lupus have underactive thyroid, or hypothyroidism, and 2 percent have overactive thyroid, or hyperthyroidism. Join us to learn about the effects of thyroid disorders and function and their relationship to lupus.

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Lupus and Primary Care
May 2016

Presenter: Adegbenga A. Bankole MD, FACP, Virginia Tech Carilion School of Medicine

The Primary Care Physician plays an important role in quality care to patients with lupus. This teleconference covers the impact of lupus on diseases that are cared for by PCPs, ranging from hypertension to cancer and teach you preventive measures to take.

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Lupus and Mental Health: How to Know You're in Trouble 

April 2016

Presenter: Stacie Camp Bennett, MA, LPC, LCAS

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn how to determine the difference and recognize and properly treat symptoms.

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Lupus and the Kidneys
March 2016

Presenter: Dr. Michael P. Madaio, Sydenstricker Professor and Chairman, Department of Medicine, Medical College of Georgia at Augusta University

Did you know that an estimated 40% of all people living with lupus will develop kidney complications? This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.

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Affairs of the Heart: Lupus and Relationships

February 2016

Presenter: Molly Dennis, MSW, Health Partners Plans

February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. Is your life filled with satisfying relationships and love?  Do you feel that others understand your lupus and the demands that it places on you?  Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.

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The Lupus-Heart Connection

February 24, 2015
7:00 pm – 8:00 pm EST
Speaker:  Joan M. VonFeldt, M.D., MSEd.

Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.

Download the PDF Presentation

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Disability and Returning to the Workplace

March 31, 2015
7:00 pm – 8:00 pm EST
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.  

Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.

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Lupus Infographic PDF

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Lupus and the Eyes

April 8, 2015
7:00 pm – 8:00 pm EST
Speaker: Ricardo N. Sepulveda, M.D.

Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.

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Living Well with Lupus

May 13, 2015
7:00 pm – 8:00 pm EST
Speaker:Donald Thomas, M.D., FACP, FACR, CCD

Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.

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Download Lupus Secrets Handout

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Lupus and Hair Loss

June 24, 2015
7:00 pm – 8:00 pm EST
Speaker: Angela Kyei, MD

A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.

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Lupus and the Skin

July 14, 2015
7:00 pm – 8:00 pm EST
Speaker: Victoria P. Werth, MD, University of Pennsylvania School of Medicine

 

Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.

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Lupus and Female Issues: From Puberty to Menopause

August 15, 2015
7:00 pm – 8:00 pm EST
Speaker: Amber R. Cooper, MD, MSCI

Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.

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Coping with Lupus

September 29, 2015
7:00 pm – 8:00 pm EST
Speaker: Robert H. Phillips, Ph. D.

When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.

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Lupus and the Kidneys

Speaker: Arti Gupta, M.D., Dallas Nephrology Associates, Dallas, Texas

Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.

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Lupus de los Riñones

Speaker: Carlos Pancorvo, M.D., Dallas Nephrology Associates, Dallas, Texas

Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.

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