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Providing Answers, Support and Hope in Ohio
This is my chapter   |   

How Your Donations Do More!

In 2018, your support has helped us to:

· Educate over 400 Ohioans about lupus through our Power Up for Lupus Summits.

We shared professional resources to increase self-management and assist in navigating the lupus journey.

· Provide 18 Support Groups throughout the state that had over 900 in attendance.

This is vital to many who are isolated and feel alone. Peer to peer meetings have great value.

· Host over 40 families at our “Class for the Newly Diagnosed Patient.”

We step up when clinicians do not have the time to give clarity and direction for this cruel and complicated illness.

· Educate over 150 Clinicians with CEUs and 200 Physicians with CMEs so that they are all better equipped to diagnose and treat lupus patients.

We worked with local Ohio colleges like Kent State University Nursing Program, Ohio University Osteopathic Medicine, and Marietta College Physician Assistant Programs to help educate our future medical leaders on lupus and the needs of lupus patients.

· Participate in 24 Health Fairs and Community Outreach Events designed to reach those who are at the highest risk.

Our Outreach Coordinator was able to share and influence these constituents to seek education and provide much-needed resources to manage their lupus.

· Help children impacted by lupus.

This is especially rewarding – and challenging too. There is little being done for children diagnosed with lupus, but the LFA, GOC is making strides. We support a bi-monthly pediatric peer group with Nationwide Children's Hospital in Columbus. In 2018 we also worked with Cincinnati Children's Hospital to support Camp Joy in Clarksville and formed a Pediatric Lupus Coalition to help advocate for lupus patients needs and rights in the 2018 Lupus Advocacy Summit.

· Provide representation and advocacy.

The 2018 Omnibus Appropriations Bill was approved by the House of Representatives and the Senate on March 22 and signed into law by President Trump. The Bill included critical funding for lupus research and education programs.

· Help establish the $5 million Lupus Research Program at the U.S. Department of Defense (DoD).

LFA, GOC president Suzanne Tierney was the opening speaker in Washington, D.C. at the event announcing the new program. The Lupus Research Program guarantees that DoD funds not only are dedicated to lupus research, but also are prioritized to fund the most important areas of lupus research which can have the most immediate impacts on patient care, and provides direction for how those funds are spent – how the dollars can make the most dierence as soon as possible for people living with lupus.

• Create overall lupus awareness across the state.

This is important so that more people know and understand what those living with lupus experience, encouraging empathy for patients and their caregivers.

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