Take a look below to learn more about the many programs and services we offer. Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, and advocacy. In fulfilling our mission, we run and provide a variety of different programs and services for lupus patients and their support systems.
If you are having trouble identifying the program that's right for you, please call us at 1 (888) NO-LUPUS, and ask to speak with our Patient Navigator. She is always happy to help!
Local LFA chapters operate lupus support groups for people with lupus and for members of their family. Support groups usually meet monthly under the auspices of a trained support group leader. Speakers from the medical community frequently will present a discussion about various aspects of lupus, including the latest medical research findings, disease management, nutrition, and stress reduction and treatment options.
The LFA conducts seminars to provide newly diagnosed lupus patients and their families with basic information about managing the disease and living well. Usually, this is the first opportunity for lupus patients to realize that there are other people available to help them cope with their illness.
We know that, sometimes, coordinating a trip to an event can be a logistical nightmare. That shouldn't stop the lupus community from finding the education and support it needs. Recognizing the need for digitally accessible material, we are pleased to offer digital programs! Check out our digital programs below.
Ask the Experts
Several chapters of the LFA have joined together to present this year's "Ask the Experts" teleconference series. During each call, a doctor or professional will focus on and answer questions about his or her specialty. To register for the next upcoming "Ask the Experts" teleconference series, click here.
If you would like to view past teleconference series, click here.
Call-In Support Group
Don't let the Ohio weather or transportation challenges keep you from the support you want. Join our monthly Call-In Support Group to access support no matter where you are. Click here to register for the next Call-In Support Group.
TTYL (TeleTalk for Young Lupians)
This is a teleconference chat designed specifically for adolescent patients living with lupus or living with a family member who has lupus. Click here to find out more, and to RSVP for the next talk.
The Expert Series
The Expert Series is a new educational video series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Each month, lupus experts will offer invaluable insight on a variety of important topics, providing you with the knowledge you need to better manage the disease. New segments of The Expert Series are available on the third Thursday of every month. Click here to watch.
The LFA provides referrals for physicians, treatment centers and services, as well as answering basic questions about the disease. A free Lupus Information Packet is available that provides basic information, a list of local support groups, and details about services available through local LFA chapters.
The Lupus Foundation of America receives thousands of calls annually from individuals requesting information. Health educators answer questions and direct patients to the local chapter serving their community. The toll-free number is 1-888-665-8787. The internet web site assists thousands of visitors every year.
The LFA creates awareness by producing and placing public service announcements on national and regional broadcast networks, on cable and satellite channels and in major newspapers and magazines. The LFA also works with producers, editors, writers and reporters to increase the exposure for lupus through the news media.
The LFA Medical Council solicits research proposals from hundreds of medical centers, universities and research institutions. Each year, the Council selects several projects for funding. The Foundation seeks innovating and promising new research ideas that some day may lead to the cure for lupus.
The Lupus Foundation of America develops programs to train volunteers, community leaders and representatives of the medical community to provide services to people with lupus. The LFA has certified hundreds of individuals to lead local support groups for lupus patients.
The federal government is an important partner with the LFA in the search for new knowledge about lupus. The LFA works in partnership with the Department of Health & Human Services and the National Institutes of Health to stimulate medical research, public awareness and services for people affected by lupus. By educating government officials about lupus and its health impact, the LFA insures that proper resources will be made available to lead the fight against the disease.
Most LFA chapters sponsor an annual education symposium featuring speakers, workshops and exhibits about the management of lupus. The symposiums also provide an opportunity for lupus patients to interact with one another and to develop new friends.
The Lupus Foundation of America publishes two outstanding newsletters, lupus News and LE Aware. These publications provide patients and family members with the latest information on lupus research and treatment. The LFA also sells or lends peer-reviewed books and videos.