Ask the Experts Series Past Teleconferences
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When it comes to exercising with an autoimmune disease, it can be difficult to find what works best for you. Maybe you feel hindered by chronic pain and the thought of going to the gym is too much to handle. Maybe you are an avid exerciser but somehow you still end up with a significant amount of flare-ups. Learn what factors are important to consider when exercising with an autoimmune disease; from exercise, intolerance to which kind of exercise is best. Certified Personal Trainer and Strength and Conditioning Specialist, Daniela Spear, will cover the ins and outs of a healthy exercise routine that will benefit you while living with an autoimmune disease.
Depression and Lupus Fog: What is the difference?
Depression and anxiety are related and common emotional states. Approximately 3-7% of the general population experience depression and anxiety that are related to mental disorders. This talk will focus on identifying depressive symptoms and disorders. I will also distinguish between depression and “lupus fog,” and discuss coping strategies for both issues.
Presenter: Dr. Sharon Boyd-Jackson, Ph.D.
With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
Presenter: Dr. Victoria Werth, MD
This presentation will look at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome. We will cover how they are similar and different, and the approaches to treatment.
Presenter: Dr. Kathleen M. O'Neil, MD
Presenter: Dr. Maria Antonelli, M.D.
Dr. Antonelli is a rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at Metro Health Medical Center in Cleveland, Ohio. She is an Assistant Professor of Medicine at Case Western Reserve University. She is a passionate physician that cares greatly for the lupus community. She will focus the presentation on the correlations of Joint replacement with Lupus. The goal is to give us a better understanding of the topic and learn how to live well with lupus.
Presenter: Dr. Robert H. Phillips
Lupus affects each of us—patients and loved ones alike—and too often we struggle daily with this illness. Join Dr. Phillips for Coping with Lupus—a conversation about living better with this devastating disease. Hear techniques explained and learn new ideas and strategies, which can be tailored to meet your individual needs.
Presenter: Dr. Ashira Blazer
"Systemic Lupus Erythematosus, a multi-organ system autoimmune disease, has been shown to affect ethnic minorities more frequently and more severely than other populations. Minorities are 3-4 times more likely to develop SLE and twice as likely to experience severe manifestations such as kidney disease. Finding personalized approaches to treating minority patients starts with quality research. In our talk with Dr. Ashira Blazer, an academic rheumatologist at NYU Langone Hospital, we will explore the presumed causes and contributors to disparities in SLE, future directions in management, and tools to help even the most vulnerable of patients live well."
Presenter: Dr. Samuel Pegram
Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced Rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Presenter: Lindsay Sappah, RD LDN CNSC
Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Presenter: Dr.Lesley Davila M.D.
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Presenter: Thomas J. Giordano, JR., Esquire
Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Presenter: Dr. Rebecca Sadun
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
With Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
Presenter: Dr. Philip Khan, MD
This teleconference will cover an overview of issues pertaining to this transitioning period. Lupus can interfere with an adolescent development of independence, peer relationships, and day-to-day normal activities. Adolescence is stressful for healthy teens; add the stress of living with a chronic illness and adolescence can be overwhelming.
Presenter: Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the boy have improved pregnancy outcomes over the last 40 years. Join us for this session to learn more about lupus and pregnancy.
Presenter: Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
Presenter: Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
Presenter: Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
Presenter: Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
Presenter: Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
Presenter: Bryce Goebel, LRMT, Empowering You to Heal Description
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
Presenter: Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Presenter: George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Presenter: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Presenter: Dr. Namieta Janssen, Rheumatologist from Houston, TX
This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus.
Presenter: Attorney R. Patrick White, LFA Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
Presenter: Andrew Salata, Public Affairs Specialist, Social Security Administration
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process. The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.
Presenter: Susan Corbett, PharmD, RPh, and Lupus Thriver
Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist. Also learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.
Presenter: Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!
Presenter: Diane Earle, DDS, MBA, Kool Smiles
It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.
Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa
Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.
Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis
Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.
Presenters: Shawn Arrington, President and CEO and Shanna Tedder, Financial Services Educator and Advisor, White Rhino Financial
Everyone should have a financial plan to protect themselves and their loved ones. Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.
Presenter: Maria Antonelli, MD from Metro Health Hospital
Thyroid problems are common in people with lupus. About 6 percent of people with lupus have underactive thyroid, or hypothyroidism, and 2 percent have overactive thyroid, or hyperthyroidism. Join us to learn about the effects of thyroid disorders and function and their relationship to lupus.
Presenter: Adegbenga A. Bankole MD, FACP, Virginia Tech Carilion School of Medicine
The Primary Care Physician plays an important role in quality care to patients with lupus. This teleconference covers the impact of lupus on diseases that are cared for by PCPs, ranging from hypertension to cancer and teach you preventive measures to take.
Presenter: Stacie Camp Bennett, MA, LPC, LCAS
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn how to determine the difference and recognize and properly treat symptoms.
Presenter: Dr. Michael P. Madaio, Sydenstricker Professor and Chairman, Department of Medicine, Medical College of Georgia at Augusta University
Did you know that an estimated 40% of all people living with lupus will develop kidney complications? This educational teleconference will address complications, medical evaluation and treatment as it relates to kidney involvement in lupus.
Presenter: Molly Dennis, MSW, Health Partners Plans
February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. Is your life filled with satisfying relationships and love? Do you feel that others understand your lupus and the demands that it places on you? Join us for this teleconference and explore ways to improve interpersonal relationships and build lasting bonds.
Speaker: Joan M. VonFeldt, M.D., MSEd.
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc. and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.
Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.
Speaker: Ricardo N. Sepulveda, M.D.
Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.
Speaker:Donald Thomas, M.D., FACP, FACR, CCD
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
Speaker: Angela Kyei, MD
A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.
Speaker: Victoria P. Werth, MD, University of Pennsylvania School of Medicine
Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.
Speaker: Amber R. Cooper, MD, MSCI
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Speaker: Robert H. Phillips, Ph. D.
When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
Speaker: Arti Gupta, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.
Speaker: Carlos Pancorvo, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.