Community Program Aims to Advance Research
The Lupus Foundation of America Northeast Region is committed to providing community initiatives that educate and connect those living with lupus and their loved ones. On Saturday, June 22, we partnered with the Feinstein Institute for Medical Research at Lenox Hill Hospital for Lupus: Learning & Living for an informative session focused on advancing lupus research.
Keynote speakers Dr. Meggan Mackay and Dr. Cynthia Aranow of the Feinstein Institute for Medical Research kicked off the event describing the types of lupus research currently underway followed by a question and answer session. The doctors stressed the importance of research participation by a diverse group of patients and the public to accelerate cures for this cruel disease.
Jason Harris, Director of Public Policy for the Lupus Foundation of America, detailed the advocacy efforts currently underway as well as future plans. Jason highlighted ways that individuals can share their stories with their elected officials to stress the importance of national funding for lupus research.
The day concluded with a patient panel where individuals living with lupus – Tanya, Martha, Nicole, and Lourdes - shared their experiences as participants in clinical trials and other research studies and why they believe it is essential. They also spoke candidly about the challenges involved.
Get involved. Learn more about research opportunities.
- Feinstein Institute for Medical Research
- Search for Clinical Trials
- Join the Lupus Registry
- Overview of Research Opportunities
- Advocate with Us
Since 2016, the Northeast Region has hosted community education programs seasonally across New York and Connecticut. Join our contact list or follow us on Facebook and Instagram to keep up with the latest news and events.