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Lupus Foundation of America, NC Chapter COVID-19 (Coronavirus) Update | North Carolina

Update on the Coronavirus and Lupus

Please use this page as a reference for information regarding our programming and events, as well as resources for those with lupus and how to combat COVID-19 (coronavirus)

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UPDATED: March 25, 2020

March 24, 2020 - The NC Board of Pharmacy Board passes emergency rules to mitigate certain drug shortages, specifically hydroxychloroquine- a common drug used in the treatment of lupus patients. View the board's emergency rule here. 

March 24, 2020 - Our new resource looks to help you cope with the stress and emotional strain of both the coronavirus itself and being isolated from loved ones. Read more.

March 24, 2020 - Three new frequently-asked questions have been added to the FAQ from our Health Educators on this page.These questions are:

  • What should lupus patients do if their pharmacy runs out of HCQ/plaquenil?
  • How are my disability benefits affected by coronavirus?
  • How do I explain to people that lupus puts me at higher risk for serious complications from the coronavirus?

March 23, 2020 - Read the joint statement by the Lupus Foundation of America, American College of Rheumatology, American Academy of Dermatology, and the Arthritis Foundation urging the White House Coronavirus Task Force and nation's governors to ensure Hydroxychloroquine access during the COVID-19 crisis.

March 21 2020 - The Lupus Foundation of America partnered with national patient organizations to submit a letter to the Congressional Leadership and the Administration calling for the implementation of needed patient protections that include ensuring people with lupus continue to have access to hyrdroxychloroquine (HCQ). The Foundation was responsible for adding language about the needs of the lupus community to this letter. We continue to work in partnership with other patient and provider organizations to explore additional ways in which the patient community can work with government and other stakeholders to preserve access to needed care and treatments.

March 21, 2020 Read our questions and answers regarding Hydroxychloroquine (Plaquenil) and Coronavirus

March 20, 2020 - Read our statement regarding access to hydroxychloroquine (Plaquenil) for people with lupus. 

March 17, 2020 - The CDC has recommended that people with serious underlying health conditions stay home and avoid other people as much as possible through March 30, 2020. Lupus is a serious underlying health condition that could lead to a compromised immune system. 

Please see Appendix A (on page 10) in this document from the CDC for a more detailed explanation of underlying health conditions that may increase the risk of serious illness from coronavirus.

At the Lupus Foundation of America, North Carolina Chapter the health and well-being of people with lupus is our highest priority. Due to the growing concern around the coronavirus disease 2019 (COVID-19), and in alignment with recent recommendations laid out by the U.S. Centers for Disease Control and Prevention (CDC) and other health experts, we have made changes to our Walk to End Lupus Now events, in-person programming, and office operations.

The 2020 Walk to End Lupus Now events will now be postponed to the Fall, and our in-person support group meetings will be suspended through the end of April 2020.

The Fall dates for the WTELN events are as follows:

  • Walk to End Lupus Now: Fayetteville, Saturday, September 26, 2020 at Paradise Acres
  • Walk to End Lupus Now: Charlotte, Saturday, October 31, 2020 at CPCC
  • Walk to End Lupus Now: Triangle, Saturday, November 21, 2020 at NC Museum of Art

Please review the FAQs below for answers to all your questions about this change and how you can continue your fundraising during this longer period of time. Additionally, we've provided tips and resources below to help individuals prepare. This page will be updated as more information becomes available.

Tips & Resources for COVID-19 (Coronavirus) & Lupus

If you have lupus, you’re at higher risk for infections like the coronavirus, also known as COVID-19. Some people with lupus may also be at risk for more serious complications from catching the coronavirus.

Although the chance of catching the coronavirus in the U.S. is low, the threat the infection poses for people with lupus is higher than the general population. We urge you to follow these Centers for Disease Control and Prevention (CDC) recommendations to protect your health and lower your risk for infection:

More Information
Walk to End Lupus Now
Are the 2020 Walk to End Lupus Now events cancelled?

No. The 2020 Walk to End Lupus Now events have not been cancelled, but rather postponed until the Fall of 2020. In an abundance of caution for the health and safety of our constituents, partners, employees and the community, and in alignment with best practices laid out by the CDCWorld Health Organization, and other relevant entities regarding coronavirus disease 2019 (COVID-19), we arepostponing our Spring WTELN events to be held in the Fall of 2020. We hope you will continue to fundraise for these events and participate virtually until the in-person events this Fall.

New Walk to End Lupus Now Event Dates:

  • Walk to End Lupus Now: Fayetteville, Saturday, September 26th at Paradise Acres.
  • Walk To End Lupus Now: Charlotte, Saturday, October 31 at CPCC
  • Walk To End Lupus Now: Triangle, Saturday, November 21 at NC Museum of Art
What are the new dates for the Fall Walks?

New Walk to End Lupus Now Event Dates:

  • Walk to End Lupus Now: Fayetteville, Saturday, September 26th at Paradise Acres.
  • Walk To End Lupus Now: Charlotte, Saturday, October 31 at CPCC
  • Walk To End Lupus Now: Triangle, Saturday, November 21 at NC Museum of Art
Are the walks at the same locations for each city?

Yes. The walk locations WILL NOT be changing. Only the dates of the walks.

Will LFANC refund my registration fee if I cannot attend the new walk dates?

We highly encourage those already registered to keep their registration live. We encourage this for two reasons:

1. Your dollars for registration are donated to the good work that the organization is doing on behalf of those living with lupus and help support our programmatic offerings.

2. Keeping your registration live allows you to continue your fundraising efforts. If you cannot attend the walks due to the new dates, we strongly advise you to "virtually fundraise" even though you cannot be there in person.

How do these new dates affect fundraising deadlines?

We are currently still working through specifics around fundraising deadlines. Please check back in the near future for a more updated response.

Programs & Services
Will your in-person support groups be meeting?

No. As of March 16, 2020, we have suspended all in-person support group meetings through the end of April 2020. 

Will you still be hosting your Ask the Experts: Teleconference Series?

Yes. Since these are not in-person educational offerings, this series will continue as normal. Topics and dates for this programming can be found on our home page by visiting our News & Events. Make sure you use the filter to only show Events to easily find these offerings and can register.

Is your patient inquiry line still available to call?

Yes. Our patient services line (704-716-5640 ext. 1) is and will remain available for individuals to call and get resources and questions answered.