Oct. 27, 2018 9:00 am |

18th Annual NC Lupus Summit

Register Now!

Saturday, October 27, 2018

Hilton Durham Near Duke University Hotel 
3800 Hillsborough Rd
Durham, NC 27705

Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus.  The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to solving the cruel mystery of lupus. 

TICKETS: $25/person (includes lunch, summit materials, and goody bag)
(Scholarship registrations available by calling LFANC Office.)


9:00am - 9:45am         Check-in and Exhibit Browsing
10:00am - 11:00am     Opening Session: Keynote Address
11:15am - 12:00pm     Morning Session Workshops
12:15pm - 1:45pm       Lunch Session
2:00pm - 2:45pm         Afternoon Session Workshops
3:00pm - 3:30pm         Closing Session

Session Topics


Keynote: Sara Gorman, Author, Blogger, Designer, and Lupus Thriver

Sara Gorman was diagnosed with systemic lupus at the age of 26. Determined not to let lupus rewrite her plans for the future, she fought to maintain her demanding work schedule, busy social life, and invincible attitude. But after four years of running her body into the ground, she realized she was fighting life, not living it. Committed to working with the disease rather than against it, she made it her top priority to start living well, despite lupus. Her book, Despite Lupus: How to Live Well with a Chronic Illness, details the steps it took to reach that goal. Letting go of her career, postponing plans for pregnancy, and cutting off her hair (or what she had left) are just a few of the monumental steps she took to reach her goal of living well, despite lupus.

A native of Indiana and graduate of the University of Notre Dame, Sara resides in Alexandria, Virginia with her husband, two young daughters and beloved Tibetan Terrier. She continues to blog about living well with a chronic illness at www.despitelupus.com. In the spring of 2012, Sara launched Sara Gorman’s Pillbags – a line of fun, fashionable pill organizers. The stylish pillbags can be found in retail stores across the country, on Amazon.com, and on her website at www.pillfold.com.


Morning Sessions:

Lupus 101
Presenter: Jen Rogers, MD, Duke Lupus Clinic

This session is designed for both the newly diagnosed patient and anyone needing a refresher in the basics.   Learn about current, medically accurate information on lupus, its symptoms, treatments and coping techniques.

Lupus & the Kidneys
Presenter: Mary Anne Dooley, MD, WakeMed Rheumatology

Did you know that an estimated 40% of all people living with lupus will develop kidney complications? Join us for this workshop and learn about the complications, medical evaluation, and treatment options as it relates to kidney involvement in individuals living with lupus.

How to Start: Lupus & Exercise
Presenters: Daniela Serna, Healing in Motion

Whether or not a person has lupus, exercise is an important way to take care of yourself, but it can be hard to know what your body can handle. Exercise has many physical, emotional and social benefits. It can help reduce inflammation and fatigue and help your muscles be less stiff. Join us to learn where to begin.

Lupus & the Workplace
Presenters: TBA

After a lupus diagnosis, if you want to keep working and feel you can still do your job, you may need a few adjustments. Join us to learn about your rights, how to approach the topic with your company, and reasonable accommodations to make.

Afternoon Sessions:

Lupus & the Immune System
Presenter: Rebecca Sadun, MD, Duke Pediatric Rheumatology

Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease.  From B cells to T cells and everything in between, this will be an "Immunology 101" session.  No background in biology required.

Medications on the Horizon
Presenter: Saira Sheikh, MD, UNC Lupus Clinic

If you have lupus, there are many reasons to feel hopeful these days. Scientists are working hard to gain a deeper understanding of the disease, and they’re researching new ways to better treat it. Many noveler drugs are in the pipeline. This session will detail clinical trial treatment options that are available to lupus patients, what these trials consist of, and who qualifies.

Support Group Experience
Presenters: Tammy Scott & Patricia Morton, New Hanover County Lupus Support Group Facilitators

Ever wonder a support group might be like? Lupus Foundation of America support groups provide a safe and understanding environment where people with lupus can come together to ask questions, listen to others, or lend a helping hand.  Join us to experience a support group meeting.

Managing Lupus Symptoms with Reiki
Presenter: Edwina Strominger, Reiki Master, Simple Bliss Wellness Spa
Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult. Learn strategies to help lighten the burden of your illness and maintain a fulfilling life.




Overnight Accommodations

Hilton Durham Near Duke University Hotel
3800 Hillsborough Rd
Durham, NC 27705

Special Room Rate: $119/night (single or double occupancy)
Special Room Rate Deadline: Wednesday, October 3, 2018
Group Code: NCLUP
To Book Hotel Reservations: Call 1-800-445-8667 or visit NC Lupus Summit Hotel Reservations

Disclaimer: The Lupus Foundation of America, North Carolina Chapter is proud to be a source of information about lupus. Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription. For specific information and advice, please consult your physician. The responsibility for control of content and selection of presenters and moderators is not influenced by sponsors of this event.

The 18th Annual NC Lupus Summit is proudly sponsored by:




Scholarship Sponsor:



Registration is required by Oct. 19, 2018.


Hilton Durham Near Duke University Hotel
3800 Hillsborough Rd
Durham, NC 27705

Cost: $25