Lupus Resource Center - A living collection of up-to-date resources and information on lupus.
Register for Research.forME™ Lupus Registry
LupusConnect - Easy-to-use, online platform that encourages its community members to ask questions, reply to posts and read about others' experiences in a safe and comforting community.
The Expert Series - Educational video series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Each month, lupus experts will offer invaluable insight on a variety of important topics, providing you with the knowledge you need to better manage the disease.Be Fierce. Take Control.™ - Awareness campaign designed to educate and empower those most at-risk for developing lupus.
List of National LFA Patient Education Materials available by contacting our Chapter office
Contact the LFA Health Educator via email or phone 800.558.0121.
Download a list of publications recommended by the LFA.
Financial Assistance A resource for help in finding financial assistance and purchasing lupus medications
AARP Home & Family Caregiving: http://aarp.org/caregiving (Find help on being a caregiver)
About Special Kids: AboutSpecialKids.com (Indiana’s parent-to-parent organization that works throughout the state to give support, answer questions and provide information and resources to families of children with special needs)
American College of Rheumatology: www.rheumatology.org/ The American College of Rheumatology (ACR) represents over 9,400 rheumatologists and rheumatology health professionals around the world. The ACR has compiled a list of assistance programs for certain rheumatology-related drugs.
Christmas in Action Indy: Christmas in Action Indy (This non-profit group completes a one-day home repair blitz targeting low-income, elderly, and/or disabled homeowners in the Indianapolis area.)
Connect2Help211: http://www.connect2help211.org (Where communities find solutions and you find help.)
Health Insurance Marketplace: www.healthcare.gov/marketplace/index.html (The Health Insurance Marketplace is a new way to get coverage that meets patient needs. Get information on the Affordable Health Care Act.) Please visit the Health Insurance Marketplace section on the national LFA site for valuable information and resources.
Indiana Department of Insurance: www.in.gov/idoi/2570.htm (In addition to providing general insurance information, the site includes information on the High Risk Pool. The Indiana Comprehensive Health Insurance Association may be an option for those who have been denied coverage through an individual health insurance company.)
Indiana Healthcare Toolbox: http://www.indianahealthcaretoolbox.org/home (Helps schools, nonprofit groups and community organizations connect uninsured families to Indiana’s public health insurance programs. The toolbox provides families and professionals information on what programs are available and who is eligible, while giving professionals the tools they need to locate and direct those families on where to apply for coverage.)
Indiana Protection & Advocacy Services: http://www.in.gov/ipas/index.htm (Protect and promote the rights of individuals with disabilities, through empowerment and advocacy.)
Janus Development Services: http://www.janus-inc.org/ (Provides low-cost transportation throughout Indiana.)
Meals on Wheels: www.meals-on-wheels.com (Different areas of the state have their own Meals on Wheels programs. Meals on Wheels of Central Indiana is part of the national Food as Medicine coalition and provides medically-tailored meals to people who are unable to prepare their own meals even for a short period of time. A person gets a referral from their doctor who determines the nutritional makeup of the meals. Meals on Wheels works with low income clients who can't afford the standard price. Sign up
Need Help Paying Bills: http://www.needhelppayingbills.com/html/indiana_assistance_programs.html (Provides information on financial assistance programs, charities, non-profits and other resources that can help people make it through a difficult period. Find ways to get help with rent, utility bills, free food, foreclosure and credit counseling, health care, and much more.)
NeedyMeds Patient Assistance Programs: www.needymeds.org/drp.taf?filename=lupus.htm NeedyMeds offers a free drug discount card that can help patients afford their medications as an alternative to insurance.
NIAMS (National Institute of Arthritis and Musculoskeletal and Skin Diseases): www.niams.nih.gov (NIAMS supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases.)
Partnership for Prescription Assistance: www.pparx.org/ The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free.
Patient Advocate Foundation: http://www.patientadvocate.org/ (Patient Advocate Foundation's Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.)
RXAssist - Patient Assistance Center: www.rxassist.org/ RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need.
Servants At Work, Inc. (SAWs): http://www.sawsramps.org/ (SAWs is a non-profit all-volunteer ministry that builds wheelchair ramps to provide persons with disabilities and people with conditions of aging access to their world and the freedom to remain in their communities.)
Social Security Administration: http://www.ssa.gov/pgm/disability.htm (Social Security pays disability benefits to patients and certain members of their family if they have worked long enough and have a medical condition that has prevented them from working or is expected to prevent them from working for at least 12 months or end in death.)
Us in Lupus: www.usinlupus.com (Website and patient tools offered by GlaxoSmithKline; designed to encourage an open and honest discussion between physicians and lupus patients. Includes lupus dictionary, lupus checklist, lupus impact tracker. Request a free lupus journal.)
Well Spouse Association: http://wellspouse.org/ (Providing peer support and education about the special challenges and unique issues facing "well" spouses every day.)