Ask the Experts: Teleconference Series
Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
This Ask the Experts series is offered as a free service of the Lupus Foundation of America, Indiana Chapter. All costs of services for patients and families are underwritten by the fundraising efforts of the Indiana Chapter, including the Walk to End Lupus Now.
Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants prior to the event.
March 2018 - Reiki and Its Effects on Lupus
Tuesday, March 27, 2018, 7:00 – 8:00 pm (EST)
Presenter: Bryce Goebel, LRMT, Empowering You to Heal
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
April 2018 - The Holistic Approach to Diet and Lupus
Thursday, April 12, 2018, 7:00 – 8:00 pm (EST)
Presenter: Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
May 2018 - Lupus: Making the Diagnosis
Tuesday, May 29, 2018, 7:00-8:00 PM (EST)
Presenter: Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
June 2018 - Research Update
Wednesday, June 13, 2018, 8:00 – 9:00 pm (EST)
Presenter: Samuel Pegram, MD, Rheumatologist, The Rheumatic Disease Clinic of Houston
Summer/Fall Topics 2018:
July: Lupus and the Skin, TBA
August: Lupus and Intimacy, Wednesday, August 22, 2018 from 7:00 pm – 8:00 pm (EST)
September: Resources You Need, TBA
October: Managing the Doctor/Patient Relationship, TBA
November: Lupus and Pregnancy, TBA
December, Transitioning from Childhood Care to Adolescent Care to Adult Care, TBA
Caring for the Caregiver - 2.28.18
With Elissa Lewin, MA, Founder/President, Nancy’s House
February is Heart Month and we know that the heart and cardiovascular system, like other organ systems of the body, can be affected by lupus. Lupus can also affect affairs of the heart and relationships. What happens when someone you love Is diagnosed with lupus? It can be hard to understand the needs of our loved one especially when the signs and symptoms of lupus aren’t always obvious. Feelings and emotions can get overwhelming, but taking care of yourself is one of the most important things you can do to support your loved one. The stronger you remain—physically and mentally—the more support you will be able to offer.
Wellness Coach: A Healthy Approach to Lupus - 11.15.17
With Erica Daniel – CEO & Founder of Elnspire LLC, Speaker, Author, Coach
Committing to a healthy lifestyle can be overwhelming. Join Erica Daniel as she provides you with a process to work actively towards a better quality of health by providing support, encouragement, education, and tools.
Think Again: Coping with Lupus Fog - 10.18.17
With Pamela Thorpe, M.D. FACP, lupus survivor since 2001, currently medical director of pharmacovigilance in the pharmaceutical industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Cardiovascular Disease and Lupus - 9.5.17
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Let’s Talk about Lupus and the Eyes - 8.16.17
With Sumit Sharma, MD, Cole Eye Institute; Cleveland Clinic
The latest in prevention, diagnostics and treatment options for a wide spectrum of eye conditions - from the routine to the complex. Learn why Cleveland Clinic Cole Eye Institute is ranked No. 1 in Ohio and No. 8 in the U.S. by U.S. News & World Report.
Teens with Lupus: Transitioning into Adulthood - 7.11.17
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Clinical Trials 101 - 6.15.17
with Dr. Namieta Janssen, Rheumatologist from Houston, TX
An overview of how clinical trials work, why it is beneficial to participate, and the latest trials focused on treatments for lupus.
Workplace Accommodations for Individuals with Lupus - 5.11.17
with Attorney R. Patrick White, LFA, Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
An Overview of Social Security Disability Benefits - 4.13.17
with Andrew Salata, Public Affairs Specialist, Social Security Administration
filing process. The presentation reviews additional considerations for women receiving Social Security and how Social Security assists families.
Working with Your Pharmacist - 3.22.17
with Susan Corbett, PharmD, RPh, and Lupus Thriver
Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist. Also, learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.
Eating Smart for a Healthy Heart - 2.28.17
with Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!