Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
This Ask the Experts series is offered as a free service of the Lupus Foundation of America, Indiana Chapter. All costs of services for patients and families are underwritten by the fundraising efforts of the Indiana Chapter, including the Walk to End Lupus Now.
Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online (see below). Pre-registration is required. Call-in/log-in information will be provided to all registrants prior to the event.
March 3, 6:00-7:00 PM - Lupus and the Kidneys
Speaker: Arti Gupta, MD, Dallas Nephrology Associates, Dallas, Texas
Teleconference Description: Dr. Gupta will discuss the various aspects of the kidneys and how lupus can affect them. She will cover kidney function, how kidneys can be damaged, how it is diagnosed, and treatments.
April 14, 6:30-7:30 PM - Disability: Navigating the Maze
Speaker: Alicia Paulino-Grisham
May 19, 7:00-8:00 PM - Lupus and the Skin: A Helpful Guide
Speaker: Victoria Werth, MD
Teleconference Description: With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
June 18, 7:00-8:00 PM - Lupus and Men
Speaker: S. Sam Lim, MD, MPH
Teleconference Description: Men represent 10 percent of people with lupus. It’s important for men living with lupus to know that they’re not alone and to be able to find all the information and support they need to help them live with lupus. Dr. Sam Lim, a top researcher at Emory University and head of the Georgia Lupus Registry, will talk about the unique challenges of being a man with this disease and explore opportunities to take charge of your life.
July 14, 7:00-8:00 PM - Lupus Diet Myths and Facts
Speaker: Gretchen Spetz
Teleconference Description: The truth about a lupus diet. What diet really is most effective for a lupus patient.
August 13, 7:00-8:00 PM - Before and After a Lupus Diagnosis: Merging Lifestyles and taking Control
Speaker: Cristina M Drenkard, MD, PhD
Teleconference Description: The effects of lupus are always on the back of your mind, making you feel like you are losing control. From unpredictable symptoms, fatigue, and pain to worry, anxiety and depression, Dr. Cristina Drenkard will provide self-management skills to help you successfully manage daily disease-related challenges and improve your quality of life.
September TBD - Lupus and Pregnancy
Speaker: Dr. Jill Buyon
Teleconference Description: TBD
October 13, 7:00-8:00 PM - Lupus and Exercise: How to Get Started
Speaker: Daniela Spear
Teleconference Description: When it comes to exercising with an autoimmune disease, it can be difficult to find what works best for you. Maybe you feel hindered by chronic pain and the thought of going to the gym is too much to handle. Maybe you are an avid exerciser but somehow you still end up with a significant amount of flare-ups. Learn what factors are important to consider when exercising with an autoimmune disease; from exercise intolerance to which kind of exercise is best. Certified Personal Trainer and Strength and Conditioning Specialist, Daniela Spear, will cover the ins and outs of a healthy exercise routine that will benefit you while living with an autoimmune disease.
November 19, 7:00-8:00 PM - Managing Pain: Non-Opioid Treatment Options
Speaker: Steven Neucks, MD
Teleconference Description: Dr. Steven Neucks, a rheumatologist in Indianapolis who is board certified in pain management, will be discussing the multiple non-opioid options available for managing the pain associated with living with lupus.
December 7, 7:00-8:00 PM - When the Rheumatologist and Patient Fight Lupus Together: Clinical Trials
Speaker: Roberto Caricchiom, MD
Teleconference Description: Clinical trials are an essential part of how advances are made in medicine. Current knowledge of lupus is built upon the results of yesterday’s clinical trials. But what exactly is a clinical trial? How do you find more information about clinical trials or go about enrolling in a clinical trial? Dr. Caricchio is passionate about lupus research and will discuss clinical trials at length, including what to expect in a clinical trial, the challenges facing rheumatologists and patients alike, and how to enroll in one.
Lupus and Overlapping Connective Tissue Disease - 12.11.19
Presented by Kathleen M. O'Neil, MD, and Michael Blakley, MD
This presentation looked at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome. We covered how they are similar and different, and the approaches to treatment.
Joint Replacement with Lupus - 11.1.19
Presented by Dr. Maria Antonelli, rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at MetroHealth Medical Center in Cleveland, Ohio
Dr. Antonelli focused the presentation on the correlations of Joint replacement with lupus. The goal was to give us a better understanding of the topic and learn how to live well with lupus.
Coping with Lupus - 10.17.19
Presented by Dr. Robert H. Phillips
Lupus affects each of us - patients and loved one alike - and too often we struggle daily with this illness. Dr. Phillips discussed some of the coping strategies that can help you live a better life... despite having lupus, as well as answered your coping questions.
Lupus in Minority Populations - 9.25.19
Presented by Dr. Ashira Blazer
Systemic Lupus Erythematosus, a multi-organ system autoimmune disease, has been shown to affect ethnic minorities more frequently and more severely than other populations. Minorities are 3-4 times more likely to develop SLE and twice as likely to experience severe manifestations such as kidney disease. Finding personalized approaches to treating minority patients starts with quality research. In our talk with Dr. Ashira Blazer, an academic rheumatologist at NYU Langone Hospital, we will explore the presumed causes and contributors to disparities in SLE, future directions in management, and tools to help even the most vulnerable of patients live well.
Managing the Side Effects of Medications - 8.15.19
Presented by Dr. Mohammad Kamran, member of the LFA, Georgia Chapter Medical Advisory Board
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.
Clinical Trials - 7.17.19
Presented by Dr. Samuel Pegram, rheumatologist in Houston, Texas
Dr. Pegram presented on the latest lupus research being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Lupus and Nutrition - 6.10.19
Presented by Lindsay Sappah, RD, CSO, LDN, CNSC
Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
The Role of a Rheumatologist in Treating Lupus - 5.9.19
Presented by Lesley Davila, M.D., Assistant Professor of Internal Medicine in UT Southwestern’s Division of Rheumatic Diseases
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. She discussed the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Social Security Disability: What Every Lupus Patient Should Know - 4.16.19
With Thomas J. Giordano, Jr.
If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Lupus and the Immune System - 3.25.19
With Dr. Rebecca Sadun
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
Lupus and Your Heart - 2.7.19
With Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
Lupus in Adolescence: An Overview, and Issues Pertaining to Transition - 12.4.18
With Dr. Philip Kahn MD
This teleconference covered an overview of issues pertaining to this transitioning period. Lupus can interfere with an adolescent's development of independence, peer relationships, and day-to-day normal activities. Adolescence is stressful for healthy teens; add the stress of living with a chronic illness and adolescence can be overwhelming.
Lupus and Pregnancy - 11.6.18
With Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the boy have improved pregnancy outcomes over the last 40 years. Join us for this session to learn more about lupus and pregnancy.
Lupus and Depression - 10.25.18
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
Tools for Living Well with Lupus - 9.20.18
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet and personal responsibility.
Lupus and Intimacy - 8.22.18
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
Research Update - 6.13.18
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Listen to this Ask the Experts Session and hear about the latest in lupus research.
Lupus: Making the Diagnosis - 5.29.18
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children's Hospital
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Listen as a lupus expert discusses the process of making a lupus diagnosis. The presentation provides an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
The Holistic Approach to Diet and Lupus - 4.12.18
With Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt talked about the connection between diet and inflammation, and provided practical tools so you can create a diet that works for you by improving your quality of life.
Reiki and Its Effects on Lupus - 3.27.18
With Bryce Goebel, LRMT, Empowering You to Heal
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
Wellness Coach: A Healthy Approach to Lupus - 11.15.17
With Erica Daniel – CEO & Founder of Elnspire LLC, Speaker, Author, Coach
Committing to a healthy lifestyle can be overwhelming. Join Erica Daniel as she provides you with a process to work actively towards a better quality of health by providing support, encouragement, education, and tools.
Think Again: Coping with Lupus Fog - 10.18.17
With Pamela Thorpe, M.D. FACP, lupus survivor since 2001, currently medical director of pharmacovigilance in the pharmaceutical industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Cardiovascular Disease and Lupus - 9.5.17
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Let’s Talk about Lupus and the Eyes - 8.16.17
With Sumit Sharma, MD, Cole Eye Institute; Cleveland Clinic
The latest in prevention, diagnostics and treatment options for a wide spectrum of eye conditions - from the routine to the complex. Learn why Cleveland Clinic Cole Eye Institute is ranked No. 1 in Ohio and No. 8 in the U.S. by U.S. News & World Report.
Teens with Lupus: Transitioning into Adulthood - 7.11.17
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Clinical Trials 101 - 6.15.17
With Dr. Namieta Janssen, Rheumatologist from Houston, TX
An overview of how clinical trials work, why it is beneficial to participate, and the latest trials focused on treatments for lupus.
Workplace Accommodations for Individuals with Lupus - 5.11.17
With Attorney R. Patrick White, LFA, Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
An Overview of Social Security Disability Benefits - 4.13.17
With Andrew Salata, Public Affairs Specialist, Social Security Administration
Filing process. The presentation reviews additional considerations for women receiving Social Security and how Social Security assists families.
Working with Your Pharmacist - 3.22.17
With Susan Corbett, PharmD, RPh, and Lupus Thriver
Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist. Also, learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.
Eating Smart for a Healthy Heart - 2.28.17
With Emily Rubin RD, LDN, Registered Dietitian, Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!